Anonymous
Post 06/28/2020 17:24     Subject: Re:Handling daytime child care for newborn cancer patient
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Op here - Would love recommendations on how to find a newborn care specialist - sounds perfect


You need a pediatric oncologist nurse! Either that or you quit your job and take care of your child and I cannot imagine why you aren't doing this


You have no clue what you are talking about. OP herself isn't a nurse. And maybe OP needs to work because she carries the health insurance her kid needs.

Also, even if OP needs a medical professional, why does she need a pediatric oncology (it's "oncology" not "oncologist") nurse? A RN or LPN experienced with infant patients should be able to handle this job. A pediatric oncology nurse is a REALLY specialized type of nurse and they rarely do private care.




Almost all pediatric oncology nurses work in a pediatric cancer ward in a major hospital that has such a ward (e.g., Children's, St. Jude's, City of Hope, etc.) and they don't do home care.

Needs like those of OP's child (feeding tube, CPAP mask, etc.) don't require a pediatric oncology nurse.

Anonymous
Post 06/28/2020 17:20     Subject: Re:Handling daytime child care for newborn cancer patient
Anonymous wrote:
Anonymous wrote:Op here - Would love recommendations on how to find a newborn care specialist - sounds perfect


You need a pediatric oncologist nurse! Either that or you quit your job and take care of your child and I cannot imagine why you aren't doing this


You have no clue what you are talking about. OP herself isn't a nurse. And maybe OP needs to work because she carries the health insurance her kid needs.

Also, even if OP needs a medical professional, why does she need a pediatric oncology (it's "oncology" not "oncologist") nurse? A RN or LPN experienced with infant patients should be able to handle this job. A pediatric oncology nurse is a REALLY specialized type of nurse and they rarely do private care.

Anonymous
Post 06/28/2020 17:17     Subject: Handling daytime child care for newborn cancer patient
Anonymous wrote:Nurse or parent. Needs are too great for a nanny.


+1. Daycare worker here and I would not recommend a daycare either. Even with the utmost cleanliness and loving care, kids can pass along germs but most importantly, a daycare can’t provide the 1-1 care that your child needs.
Anonymous
Post 06/28/2020 16:26     Subject: Re:Handling daytime child care for newborn cancer patient
Anonymous wrote:
Anonymous wrote:Op here - Would love recommendations on how to find a newborn care specialist - sounds perfect


You need a pediatric oncologist nurse! Either that or you quit your job and take care of your child and I cannot imagine why you aren't doing this



Your reasoning is off. OP isn’t a pediatric oncologist nurse so there’s no point in she staying home.

OP, the right nanny could handle it. Good luck!
Anonymous
Post 06/28/2020 15:29     Subject: Re:Handling daytime child care for newborn cancer patient
When we were looking for a home health aide for my grandma, one company (in Bethesda I think) specifically mentioned that they mostly care for children. I think my mom paid $25/hr for my grandma’s aide.
Anonymous
Post 06/28/2020 15:04     Subject: Re:Handling daytime child care for newborn cancer patient
Anonymous wrote:Op here - Would love recommendations on how to find a newborn care specialist - sounds perfect


You need a pediatric oncologist nurse! Either that or you quit your job and take care of your child and I cannot imagine why you aren't doing this
Anonymous
Post 06/28/2020 09:11     Subject: Handling daytime child care for newborn cancer patient
Anonymous wrote:I would not feel comfortable with any of your options. I would quiet my job, if that was in any way possible.


I used to work at a childhood cancer group and a lot of parents end up having to quit their jobs to care for their child -- but it is often financially ruinous for the family and the long-term consequences of the financial fallout are very stressful. If the family can find care, they should do that. I think it is going to be a matter of finding the right person more than finding the right qualifications.
Anonymous
Post 06/28/2020 08:21     Subject: Handling daytime child care for newborn cancer patient
I would not feel comfortable with any of your options. I would quiet my job, if that was in any way possible.
Anonymous
Post 06/28/2020 08:16     Subject: Re:Handling daytime child care for newborn cancer patient
I'm on the SN forum a lot and my first thought was Karasik but I don't know if they take kids that young. Maybe St Coletta? I would also call the ARC and ask if they can help with sources of pediatric medical day care. I would look to funnel the cost through my insurance too.
Anonymous
Post 06/28/2020 07:40     Subject: Handling daytime child care for newborn cancer patient
You might get more ideas in the special needs forum.
Anonymous
Post 06/28/2020 02:37     Subject: Handling daytime child care for newborn cancer patient
I was the first poster who talked about hiring an NCS. I worked through Hush Hush Little Baby and they are a great group. Rates range from $25-45 per hour in general. But the higher end tends to be for twins/triplets.
Anonymous
Post 06/27/2020 10:00     Subject: Handling daytime child care for newborn cancer patient
Anonymous wrote:Nurse or parent. Needs are too great for a nanny.



I disagree. While it’s too much for most nannies, an educated, bright nanny can learn to care for the newborn as well as a parent could.

But yes, a pediatric nurse would be optimal.
Anonymous
Post 06/27/2020 08:51     Subject: Handling daytime child care for newborn cancer patient
Does she qualify for home health
Anonymous
Post 06/27/2020 08:50     Subject: Handling daytime child care for newborn cancer patient
Anonymous wrote:
Anonymous wrote:Nurse or parent. Needs are too great for a nanny.


I agree with this; this is not a nanny job. Keep your other child in daycare and then hire a private duty nurse/medical professional for the little one.


This. And I'm sorry I have no advice on how to find someone. We had a minor health issue and my newborn had to be given medication 3 times a day and we ended up with a nanny with prior nursing experience (from another country) and it was still nerve wrecking. We advertised for a nanny and I brought up the medication part during the interview and several candidates were visibly uncomfortable at the thought so we didn't hire them.
Anonymous
Post 06/27/2020 08:46     Subject: Handling daytime child care for newborn cancer patient
Anonymous wrote:
Anonymous wrote:Nurse or parent. Needs are too great for a nanny.


I agree with this; this is not a nanny job. Keep your other child in daycare and then hire a private duty nurse/medical professional for the little one.



+1