Anonymous wrote:Anonymous wrote:OP here. My private insurance already covers unlimited sessions of speech therapies for my 4 year old WITHOUT autism diagnosis. He has been doing 7 sessions/week for speech therapies through EI (public) & private for his speech delay (apraxia of speech).
The ADOS doctors say that the autism diagnosis is not solely based on his limited speech, but it is more about his social behaviors. He is self-centered, imitate people conservation without understanding the meaning, not aware of the other's people emotion/reaction etc., and he has been followed by different developmental pediatricians from children hospital since he was 15 months old suspicious of spectrum but cannot get the conclusion. It is just now that it is the first time he did the ADOS test from children hospital time (almost 18 months waiting list) that they give him an autism diagnosis.
I will continue to do speech therapies through ST, and they recommend ABA therapies & OT for his social communication behaviors. They recommend 25-30 hours/week of ABA therapies, is it too many hours or standard for 4 year old that is in private full time daycare? What ABB therapist do actually? As a social behavioral therapist to model correct behavior? And, they recommend me to pull him out from private full time daycare (even he is happy & learning at his own pace there), but put him in special need public preschool program (I bet autism diagnosis make him definitely eligible for the program)? I don't know about that.
There are lots of problems with ABA. Evidence from research shows it can help with developing life skills and rote language responses, but in practice it doesn't always work. It is a huge time commitment, 20 hours a week or more is common. 10 hours is the fewest I've heard of. It can be very taxing on both parent and child. Some autistic adults claim that the ABA they had as children did them more harm than good.
ASD kids often have a deficit in social learning. They don't learn basic skills spontaneously by watching parents and other kids. ABA therapy uses a reward system to teach these skills explicitly. So if you want the child to come when called, you show them what to do, and if they do it, give a reward. This can take many trials, and there are a lot of skills to learn, so that's why there are so many hours involved.
Here is some more on ABA.
https://www.autismspeaks.org/applied-behavior-analysis-aba-0
It's hard to say if your kid would do better in a special needs preschool. There is benefit to being with NT peers and there is also benefit to focused SN learning. I'd visit at the SN program and see if it is right for your child. Ask them lots of questions about what they do and how it will help your kid.
Every kid is different and you know your child best, so there is no one right way to go. I think most of us go on a combination of professional advice and parent instincts.
Hope this helps.
Anonymous wrote:ABA is based on a cruel premise — of trying to make people with autism ‘normal,’ a goal articulated in the 1960s by psychologist Ole Ivar Lovaas, who developed ABA for autism.
Adults with autism who were forced through childhoods with ABA advocate for, instead, acceptance of neurodiversity — the idea that people with autism or, say, attention deficit hyperactivity disorder or Tourette syndrome, should be respected as naturally different rather than abnormal and needing to be fixed.
Anonymous wrote:Anonymous wrote:OP here. My private insurance already covers unlimited sessions of speech therapies for my 4 year old WITHOUT autism diagnosis. He has been doing 7 sessions/week for speech therapies through EI (public) & private for his speech delay (apraxia of speech).
The ADOS doctors say that the autism diagnosis is not solely based on his limited speech, but it is more about his social behaviors. He is self-centered, imitate people conservation without understanding the meaning, not aware of the other's people emotion/reaction etc., and he has been followed by different developmental pediatricians from children hospital since he was 15 months old suspicious of spectrum but cannot get the conclusion. It is just now that it is the first time he did the ADOS test from children hospital time (almost 18 months waiting list) that they give him an autism diagnosis.
I will continue to do speech therapies through ST, and they recommend ABA therapies & OT for his social communication behaviors. They recommend 25-30 hours/week of ABA therapies, is it too many hours or standard for 4 year old that is in private full time daycare? What ABB therapist do actually? As a social behavioral therapist to model correct behavior? And, they recommend me to pull him out from private full time daycare (even he is happy & learning at his own pace there), but put him in special need public preschool program (I bet autism diagnosis make him definitely eligible for the program)? I don't know about that.
And, also I know that my private insurance covers unlimited OT therapies WITHOUT autism diagnosis as well, but just I don't have time to pull him out from daycare to take him to do it because of his some mild sensory behaviors. How can full-time working parents take their kids to do 25-30 hours of ABA therapies on top of other therapies? To me, it is impossible. And, I still have no ideas what ABA therapies are? Are they working like a shadow or something like that? I have not called the insurance because I am still waiting for the official ADOS report before I call the insurance to ask coverage. I wonder anyone has luck that insurance will pay for ABA therapist to come to daycare or home? Or I have to pay for their transportation.
Anonymous wrote:ABA is based on a cruel premise — of trying to make people with autism ‘normal,’ a goal articulated in the 1960s by psychologist Ole Ivar Lovaas, who developed ABA for autism.
Adults with autism who were forced through childhoods with ABA advocate for, instead, acceptance of neurodiversity — the idea that people with autism or, say, attention deficit hyperactivity disorder or Tourette syndrome, should be respected as naturally different rather than abnormal and needing to be fixed.
Anonymous wrote:OP here. My private insurance already covers unlimited sessions of speech therapies for my 4 year old WITHOUT autism diagnosis. He has been doing 7 sessions/week for speech therapies through EI (public) & private for his speech delay (apraxia of speech).
The ADOS doctors say that the autism diagnosis is not solely based on his limited speech, but it is more about his social behaviors. He is self-centered, imitate people conservation without understanding the meaning, not aware of the other's people emotion/reaction etc., and he has been followed by different developmental pediatricians from children hospital since he was 15 months old suspicious of spectrum but cannot get the conclusion. It is just now that it is the first time he did the ADOS test from children hospital time (almost 18 months waiting list) that they give him an autism diagnosis.
I will continue to do speech therapies through ST, and they recommend ABA therapies & OT for his social communication behaviors. They recommend 25-30 hours/week of ABA therapies, is it too many hours or standard for 4 year old that is in private full time daycare? What ABB therapist do actually? As a social behavioral therapist to model correct behavior? And, they recommend me to pull him out from private full time daycare (even he is happy & learning at his own pace there), but put him in special need public preschool program (I bet autism diagnosis make him definitely eligible for the program)? I don't know about that.
Anonymous wrote:OP here. My private insurance already covers unlimited sessions of speech therapies for my 4 year old WITHOUT autism diagnosis. He has been doing 7 sessions/week for speech therapies through EI (public) & private for his speech delay (apraxia of speech).
The ADOS doctors say that the autism diagnosis is not solely based on his limited speech, but it is more about his social behaviors. He is self-centered, imitate people conservation without understanding the meaning, not aware of the other's people emotion/reaction etc., and he has been followed by different developmental pediatricians from children hospital since he was 15 months old suspicious of spectrum but cannot get the conclusion. It is just now that it is the first time he did the ADOS test from children hospital time (almost 18 months waiting list) that they give him an autism diagnosis.
I will continue to do speech therapies through ST, and they recommend ABA therapies & OT for his social communication behaviors. They recommend 25-30 hours/week of ABA therapies, is it too many hours or standard for 4 year old that is in private full time daycare? What ABB therapist do actually? As a social behavioral therapist to model correct behavior? And, they recommend me to pull him out from private full time daycare (even he is happy & learning at his own pace there), but put him in special need public preschool program (I bet autism diagnosis make him definitely eligible for the program)? I don't know about that.
Anonymous wrote:OP here. My private insurance already covers unlimited sessions of speech therapies for my 4 year old WITHOUT autism diagnosis. He has been doing 7 sessions/week for speech therapies through EI (public) & private for his speech delay (apraxia of speech).
The ADOS doctors say that the autism diagnosis is not solely based on his limited speech, but it is more about his social behaviors. He is self-centered, imitate people conservation without understanding the meaning, not aware of the other's people emotion/reaction etc., and he has been followed by different developmental pediatricians from children hospital since he was 15 months old suspicious of spectrum but cannot get the conclusion. It is just now that it is the first time he did the ADOS test from children hospital time (almost 18 months waiting list) that they give him an autism diagnosis.
I will continue to do speech therapies through ST, and they recommend ABA therapies & OT for his social communication behaviors. They recommend 25-30 hours/week of ABA therapies, is it too many hours or standard for 4 year old that is in private full time daycare? What ABB therapist do actually? As a social behavioral therapist to model correct behavior? And, they recommend me to pull him out from private full time daycare (even he is happy & learning at his own pace there), but put him in special need public preschool program (I bet autism diagnosis make him definitely eligible for the program)? I don't know about that.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:
Depends on the ABA. It's discrete trial training typically and teaches a child skills.
It does not teach natural language.
ADOS overdiagnoses language delayed children with autism. Did you know that?
Not OP, what do you mean ADOS overdiagnoses ASD? We are taking it in a. Few weeks and they told me it’s supposed to be for nonverbal kids too. Is it not?
https://www.spectrumnews.org/news/autism-tests-struggle-to-balance-accuracy-and-speed/
Google "ADOS sensitivity and specificity." What you find is the ADOS is very good about correctly identifying that SOMETHING is wrong, but over-identifies ASD as the cause.
Based on the cutoff scores that yield the highest accuracy, or ability to identify autism, the SRS diagnosed children with autism with an accuracy of 94 percent, and the SCQ with an accuracy of 80 percent when compared with the clinical diagnoses. By contrast, the ADI-R accurately diagnosed 98 percent of the children, and the ADOS was 100 percent accurate, the study found.
All of the tests were less specific, however, meaning that they did less well at distinguishing autism from other developmental disorders. The SRS diagnosed 33 of 44 children with other developmental disabilities as having autism and the SCQ misdiagnosed 45 of 50 children. The ADI-R also wrongly diagnosed 33 of 48 children with other developmental disabilities as having autism. The ADOS fared best, misdiagnosing 16 of 57 children.
This is one of many, many articles on the ADOS. So many people here want to use it as a stand-alone test. It's not. Add to that this desire to label everything ASD, partly fueled by the money cycle -- want therapy?? Insurance will only pay for the ASD label -- and you quickly find out as a parent that you need to really focus on what your child needs and not get sucked into the ASD frenzy going on these days.
Your article is from 2011. Why don't you find some information for 2012 and later, since that is when the ADOS-2 came out. People still say "ADOS" but practitioners have been using the ADOS-2 for years.
Also, I don't know of any professional who wants to use it as a "stand alone test". "People here" are not the ones administering it. Professionals are. It's part of a comprehensive assessment. It is possible to receive a diagnosis of autism on the ADOS and yet not receive a final, clinical diagnosis from a professional. And vice-versa.
Finally, I also don't know anyone who recommends "autism interventions". Interventions should address symptoms, not labels. That is true no matter what the diagnosis is.
I'm sorry if you had a bad experience, but there is no ASD conspiracy going on. The ADOS is a good test and if autism is possibly part of the diagnostic picture it should be included in the assessment. The professionals will use their best judgment to interpret the results, and parents should use their best judgment when following the advice of professionals.
Knowledge is power, and we are trying to give the OP a heads up to do her research.
And you only need to look to this thread to see hiw parents are incentivized to take an ASD diagnosis.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:
Depends on the ABA. It's discrete trial training typically and teaches a child skills.
It does not teach natural language.
ADOS overdiagnoses language delayed children with autism. Did you know that?
Not OP, what do you mean ADOS overdiagnoses ASD? We are taking it in a. Few weeks and they told me it’s supposed to be for nonverbal kids too. Is it not?
https://www.spectrumnews.org/news/autism-tests-struggle-to-balance-accuracy-and-speed/
Google "ADOS sensitivity and specificity." What you find is the ADOS is very good about correctly identifying that SOMETHING is wrong, but over-identifies ASD as the cause.
Based on the cutoff scores that yield the highest accuracy, or ability to identify autism, the SRS diagnosed children with autism with an accuracy of 94 percent, and the SCQ with an accuracy of 80 percent when compared with the clinical diagnoses. By contrast, the ADI-R accurately diagnosed 98 percent of the children, and the ADOS was 100 percent accurate, the study found.
All of the tests were less specific, however, meaning that they did less well at distinguishing autism from other developmental disorders. The SRS diagnosed 33 of 44 children with other developmental disabilities as having autism and the SCQ misdiagnosed 45 of 50 children. The ADI-R also wrongly diagnosed 33 of 48 children with other developmental disabilities as having autism. The ADOS fared best, misdiagnosing 16 of 57 children.
This is one of many, many articles on the ADOS. So many people here want to use it as a stand-alone test. It's not. Add to that this desire to label everything ASD, partly fueled by the money cycle -- want therapy?? Insurance will only pay for the ASD label -- and you quickly find out as a parent that you need to really focus on what your child needs and not get sucked into the ASD frenzy going on these days.
Your article is from 2011. Why don't you find some information for 2012 and later, since that is when the ADOS-2 came out. People still say "ADOS" but practitioners have been using the ADOS-2 for years.
Also, I don't know of any professional who wants to use it as a "stand alone test". "People here" are not the ones administering it. Professionals are. It's part of a comprehensive assessment. It is possible to receive a diagnosis of autism on the ADOS and yet not receive a final, clinical diagnosis from a professional. And vice-versa.
Finally, I also don't know anyone who recommends "autism interventions". Interventions should address symptoms, not labels. That is true no matter what the diagnosis is.
I'm sorry if you had a bad experience, but there is no ASD conspiracy going on. The ADOS is a good test and if autism is possibly part of the diagnostic picture it should be included in the assessment. The professionals will use their best judgment to interpret the results, and parents should use their best judgment when following the advice of professionals.
Anonymous wrote:Anonymous wrote:Anonymous wrote:
Depends on the ABA. It's discrete trial training typically and teaches a child skills.
It does not teach natural language.
ADOS overdiagnoses language delayed children with autism. Did you know that?
Not OP, what do you mean ADOS overdiagnoses ASD? We are taking it in a. Few weeks and they told me it’s supposed to be for nonverbal kids too. Is it not?
https://www.spectrumnews.org/news/autism-tests-struggle-to-balance-accuracy-and-speed/
Google "ADOS sensitivity and specificity." What you find is the ADOS is very good about correctly identifying that SOMETHING is wrong, but over-identifies ASD as the cause.
Based on the cutoff scores that yield the highest accuracy, or ability to identify autism, the SRS diagnosed children with autism with an accuracy of 94 percent, and the SCQ with an accuracy of 80 percent when compared with the clinical diagnoses. By contrast, the ADI-R accurately diagnosed 98 percent of the children, and the ADOS was 100 percent accurate, the study found.
All of the tests were less specific, however, meaning that they did less well at distinguishing autism from other developmental disorders. The SRS diagnosed 33 of 44 children with other developmental disabilities as having autism and the SCQ misdiagnosed 45 of 50 children. The ADI-R also wrongly diagnosed 33 of 48 children with other developmental disabilities as having autism. The ADOS fared best, misdiagnosing 16 of 57 children.
This is one of many, many articles on the ADOS. So many people here want to use it as a stand-alone test. It's not. Add to that this desire to label everything ASD, partly fueled by the money cycle -- want therapy?? Insurance will only pay for the ASD label -- and you quickly find out as a parent that you need to really focus on what your child needs and not get sucked into the ASD frenzy going on these days.
Anonymous wrote:I have a 4 year old boy that has apraxia of speech, and a new autism diagnosis (by developmental pediatrician & also through ADOS test). He has been doing speech therapies through public & private to work on his speech, and the new autism diagnosis is kind of thrown me off. I always know that he has some social delay, but I thought that it is mainly due to his language delay. His pediatrician/daycare teachers(teach him for 1 year)/speech therapist through public & private/family members & friends are all surprised with his new diagnosis because he is so happy, social & interactive. Anyways, now I am confused if he truly has apraxia of speech or not, or his speech delay due to his autism spectrum. And, even the ADOS test doctors tell me that he has a lot of good qualities that hide his autism symptoms, and that is why a lot of people don't think that he is on the spectrum. They say it is difficult to say if he has mild or moderate autism, and he is recommended ABA therapies.
Please tell me something about ABA therapies since it is all new to me. And with autism diagnosis, anyone has experiences if insurance will cover it or not? And, I also want to understand what does that mean he has a lot of good qualities that hide his current autism symptoms, does that mean he will outgrow it or if I don't do anything, the symptoms will show up more obviously when he gets older?
Thank you!