Anonymous
Post 04/23/2016 17:04     Subject: Is this a stim? What is it?
Sorry, she, not he!
Anonymous
Post 04/23/2016 16:44     Subject: Is this a stim? What is it?
Anonymous wrote:Well I'm calling the dev ped Monday. We can see her next week I hope. This just has to get better. I can deal with any kind of delay but this behavior stuff, which of course I know is also a delay, I am having such a hard time with. Not the stim stuff, but all of the defiance etc. we used to think he had a receptive speech delay but just reevaluated and he does not. His speech is actually fine. So it's not a communication issue, which is what I had assumed for so long.


When mine had PANDAS it started out as repeating a phrase over and over but also began to include all kinds of crazy behavior. thank God we figured out what it was. Please consider PANDAS -- not many doctors are aware of it yet but no doubt it will be just like any other diagnosis in a few years, and many people will wish their DC had been diagnosed earlier.
Anonymous
Post 04/23/2016 16:41     Subject: Is this a stim? What is it?
Well I'm calling the dev ped Monday. We can see her next week I hope. This just has to get better. I can deal with any kind of delay but this behavior stuff, which of course I know is also a delay, I am having such a hard time with. Not the stim stuff, but all of the defiance etc. we used to think he had a receptive speech delay but just reevaluated and he does not. His speech is actually fine. So it's not a communication issue, which is what I had assumed for so long.
Anonymous
Post 04/23/2016 16:38     Subject: Is this a stim? What is it?
Anonymous wrote:He is such a huge sensory seeker - can this be a sensory seeking thing? He laughs after he does it. Argh. I just don't know.


I guarantee you it's PANDAS.
Anonymous
Post 04/23/2016 16:32     Subject: Is this a stim? What is it?
He is such a huge sensory seeker - can this be a sensory seeking thing? He laughs after he does it. Argh. I just don't know.
Anonymous
Post 04/23/2016 16:24     Subject: Is this a stim? What is it?
He has PANDAS. Mine did exactly the same things. Woke up one morning repeating a phrase over and over. It was the tip of the iceberg.

Try to find a ped who is open to PANDAS.