According to Shady Grove's website: "Taking advantage of Shared Risk was like taking a vacation at an all-inclusive resort for me."

So fun!

12:05 - How many fresh cycles did you do and bank? Was an exception made for you for similar reasons? Just curious.

I was told that I could have banked embryos for testing within Shared Risk.

They can and they do kick people out if they find you are not a good candidate after one cycle. Yes, we got our money back minus the HUGE out of pocket expenses, but we were shocked by how callous they were. We moved to another clinic and it has been so much better, but still no BFP yet

13:35 here with an update. Met with my RE yesterday and he not only confirmed that I was absolutely still in the program, but strongly supported my decision to terminate. Definitely made me feel better about things. He went so far as to say he would check to see if I could go straight to another fresh cycle and then do PGD on that cycle and include my one untested embryo from the last cycle for reassurance. It's definitely not standard Shared Risk protocol, so I won't hold my breath, but the fact that he's checking to see if an exception can be made really makes me feel great about being with SG in general.

Anonymous wrote:So sorry for the loss of your children. Glad Shady Grove behaved appropriately.

+10000...

So sorry for the loss of your children. Glad Shady Grove behaved appropriately.

Anonymous wrote:PP, I am sorry you had to make that hard decision. I was always curious how they would handle that issue. I know the contract states that you can terminate for genetic reasons but wasn't sure if there would be a lot of push back.

Also, we never had a frozen embryo while in the shared risk program. Do you have to use them before your next fresh or can you go straight to another fresh and leave the frosty for future kids since FETs are way cheaper out of pocket?

SG absolutely stands by their shared risk "bring home a baby" guarantee. I had a mid-late 2nd tri loss and our babies only lived a few hours. My SG doc was 100x more compassionate than my OB/MFM.

Anonymous wrote:

Anonymous wrote:PP, I am sorry you had to make that hard decision. I was always curious how they would handle that issue. I know the contract states that you can terminate for genetic reasons but wasn't sure if there would be a lot of push back.

Also, we never had a frozen embryo while in the shared risk program. Do you have to use them before your next fresh or can you go straight to another fresh and leave the frosty for future kids since FETs are way cheaper out of pocket?

Thanks for the message. I was told I would still be in the program, and my baby's diagnosis was T21 (Down syndrome), which isn't a fatal diagnosis like T18/T13, etc. I'd bet with any chromosomal abnormality, you wouldn't get any push back. My contract didn't specifically address any of it, if I recall, but I promptly emailed my nurse about it and she and my Dr both confirmed that I would still be in the program. I am meeting with him next week to discuss what our next steps are, so I'll report back if anything else comes up.

I hope all goes well and yes pls keep us updated. Good luck!

We did Shared Risk for DE. It took the first cycle. Sucks that if we had just paid for one cycle it would have been $20,000-$25,000 but Shared Risk 2:1 (which is what you pay for using Frozen eggs) was $40,000. Totally could have used that $15,000. But I'm so glad we did it! I essentially paid $15,000 for peace of mind.

I have a friend who could only afford 1 DE cycle (and 2 FET) and they all failed. Now she is without a baby and out her money and cant afford to move forward.

PS- Yes, you have to use you FE before moving on your next fresh cycle. But if during a cycle you get enough to transfer and freeze and get the BFP, all you have to do is pay the yearly fee on storing the FE.

Anonymous wrote:PP, I am sorry you had to make that hard decision. I was always curious how they would handle that issue. I know the contract states that you can terminate for genetic reasons but wasn't sure if there would be a lot of push back.

Also, we never had a frozen embryo while in the shared risk program. Do you have to use them before your next fresh or can you go straight to another fresh and leave the frosty for future kids since FETs are way cheaper out of pocket?

Thanks for the message. I was told I would still be in the program, and my baby's diagnosis was T21 (Down syndrome), which isn't a fatal diagnosis like T18/T13, etc. I'd bet with any chromosomal abnormality, you wouldn't get any push back. My contract didn't specifically address any of it, if I recall, but I promptly emailed my nurse about it and she and my Dr both confirmed that I would still be in the program. I am meeting with him next week to discuss what our next steps are, so I'll report back if anything else comes up.

As far as frozen embryos are concerned, yes, you do have to use any frozen embryos before moving onto a new fresh cycle. Otherwise, I would go to a straight fresh cycle and pay additional for PGD since I initially didn't sign up for that. I would love to bank embryos for future babies if I could! If this FET takes, I'm pretty sure I'd do Shared Risk all over again, if I was accepted a second time.

PP, I am sorry you had to make that hard decision. I was always curious how they would handle that issue. I know the contract states that you can terminate for genetic reasons but wasn't sure if there would be a lot of push back.

Also, we never had a frozen embryo while in the shared risk program. Do you have to use them before your next fresh or can you go straight to another fresh and leave the frosty for future kids since FETs are way cheaper out of pocket?

I'm currently in the Shared Risk program. My first cycle worked, but we had to end the pregnancy in the 2nd trimester since our baby had a trisomy. We are moving onto a FET as soon as we get the green light, and if that doesn't take, we'll have 5 fresh cycles (I don't think FETs count against your 6 cycles). Even if it had worked with the first try, it would have been completely worth it. The amount of stress that's relieved as a result of knowing you have those extra tries is immeasurable. I also feel that SG puts their money where their mouth is by taking their own risk, though it's true they can kick you out if you're not responding at all to treatment. Still, you'd get your money back. Nothing illegal about that, or unethical in my opinion.

Anonymous wrote:

Anonymous wrote:My understanding is that they also can ask you to leave the program and give you a full refund. I have heard of this anecdotally, and my doctor confirmed it with me, although I was successful after two tries and FETs.

WOW! what why would they ask? wouldn't that be illegal or unethical? If they approve you and then ask you to leave... hmm... interesting.

As long as they're giving you a full refund, I don't know why it would be illegal or unethical. I'm pretty sure it's in the stuff we signed at the beginning of the process, that either party can bail at any point with a full refund.