Get a referral to someone at either Johns Hopkins in Baltimore (at their medical school site) or UVa main medical center in C'ville.

Was there injury other than concussion? I know someone who had high blood pressure following an internal injury. Took months to get bad, raised BP over time. Don’t recall exact details.

This is what ChatGPT suggested:

Given that symptoms are still present months later and affecting function, it is reasonable to seek a second opinion, especially with a neurologist who specializes in:

Vestibular neurology
Post-concussion syndrome / TBI
Autonomic dysfunction / dysautonomia
Also consider:

Neuro-otologist (inner ear/vestibular specialist)
Physical therapist with vestibular or neuro rehab training

Thanks these are all very helpful ideas! Many of these things have been ruled out, but the idea for PT for the proprioception issue is a good tip, and we do think it could be post concussion syndrome, but it just seemed like it should have improved by now. But we will explore some of these suggestions!

There is a good POTS clinic at JHU. But not clear if this is POTS, but likely good at diagnosing what this is if not POTS. It is being seen more frequently since COVID. Has it had a holter monitor to look for arrhythmias? Wonder if you don’t have an accurate diagnosis of what caused the first (syncopal?) event and that is the reason? Did he get an echo to evaluate for a hole in his heart to evaluate for blood crossing between the chambers and having clots crossing and causing clots to his brain? If arrhythmia noted in holter monitor would want to a an electrophysiologist, Not clear if this is a post concussion syndrome. There are some people who have lingering symptoms and a very long recovery period.

OP: To use openai, you'll need to write out a prompt with all of his medical information included. Here's a tip sheet.

https://litfl.com/ai-prompting-techniques/

Anonymous wrote:

Anonymous wrote:It was high BP, and they fainted and we weren't even sure they hit their head but later the symptoms of concussion were present (dizziness, headache). That was in Septemebr. Lingering symptoms are feeling of head "fullness" and a sense that they cant feel where their legs are in space (not sure that makes sense). which makes them feel wobbly. All scans, etc are "normal. Not sure if we should try a new neuorologist or what!! Very frustrating and taking a toll on mental health for sure.

good god, use the proper pronouns!

Someone left their asinine grammatical quibble in the neurology thread.

Anonymous wrote:It was high BP, and they fainted and we weren't even sure they hit their head but later the symptoms of concussion were present (dizziness, headache). That was in Septemebr. Lingering symptoms are feeling of head "fullness" and a sense that they cant feel where their legs are in space (not sure that makes sense). which makes them feel wobbly. All scans, etc are "normal. Not sure if we should try a new neuorologist or what!! Very frustrating and taking a toll on mental health for sure.

good god, use the proper pronouns!

How many times has he had covid?

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:It was high BP, and they fainted and we weren't even sure they hit their head but later the symptoms of concussion were present (dizziness, headache). That was in Septemebr. Lingering symptoms are feeling of head "fullness" and a sense that they cant feel where their legs are in space (not sure that makes sense). which makes them feel wobbly. All scans, etc are "normal. Not sure if we should try a new neuorologist or what!! Very frustrating and taking a toll on mental health for sure.

The term for this is proprioception.

It is good news that the scans are clear, because some of the things that can disrupt proprioception are pretty bad.

If the neurologist has done a thorough exam and is not noting signs, these may be anxiety symptoms.

Oh, ffs.

If it is not a neurological issue then yes, anxiety can cause these symptoms. Different poster.
Anxiety is a diagnosis of exclusion. If OP is able to exclude physical causes (which she hasn’t fully yet, she should get a second neuro opinion for sure and possibly a cardiologist consult) then yes, anxiety is a legitimate possibility. Anxiety and depression can both manifest with somatic complaints even if the person having them doesn’t believe that.

Has cardio ruled out Afib?
DH had first know symptomatic episode and had same wobbly leg sensation. Less oxygen to brain bad fast pumping. Get a pulse oximeter abd see if correlation between pulse ox, heart rate, weird feelings.

Physical therapy can help with proprioception and active balance. I had TKR that changed me from severely knock kneed all my life to normal and I had NO IDEA where my feet were or body sense of leg position.

Anonymous wrote:

Anonymous wrote:It was high BP, and they fainted and we weren't even sure they hit their head but later the symptoms of concussion were present (dizziness, headache). That was in Septemebr. Lingering symptoms are feeling of head "fullness" and a sense that they cant feel where their legs are in space (not sure that makes sense). which makes them feel wobbly. All scans, etc are "normal. Not sure if we should try a new neuorologist or what!! Very frustrating and taking a toll on mental health for sure.

The term for this is proprioception.

It is good news that the scans are clear, because some of the things that can disrupt proprioception are pretty bad.

If the neurologist has done a thorough exam and is not noting signs, these may be anxiety symptoms.

Oh, ffs.

The leg thing is a propriorecption issue. Could be caused by a neuro problem, such as a spinal cord problem or post concussion syndrome, or a vascular problem, such as small vessel disease in the brain or stroke.

You need a second opinion from another neurologist.

Anonymous wrote:It was high BP, and they fainted and we weren't even sure they hit their head but later the symptoms of concussion were present (dizziness, headache). That was in Septemebr. Lingering symptoms are feeling of head "fullness" and a sense that they cant feel where their legs are in space (not sure that makes sense). which makes them feel wobbly. All scans, etc are "normal. Not sure if we should try a new neuorologist or what!! Very frustrating and taking a toll on mental health for sure.

The term for this is proprioception.

It is good news that the scans are clear, because some of the things that can disrupt proprioception are pretty bad.

If the neurologist has done a thorough exam and is not noting signs, these may be anxiety symptoms.

FYI, definitely was not covid in this case!