I’ve never heard of this until this week, but I found it fascinating. As a kid I was always verbally advanced (I could read at 18 months, perfect SAT verbal scores, was on spelling bees on tv, etc) and yet I could not tie my shoes, button/unbutton my pants in grade school. Did not truly learn left from right til late teens. Could only drive a few places that I knew the route very well. This made me wonder if there was an explanation for my deficits, although to be honest I don’t fit the full nvld profile, so maybe I’ll never know

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Typically NVLD is a gap of 40 or more points between verbal and visuo-spatial scores. People with NVLD are usually highly verbal. My DC also has Turner Syndrome. It’s estimated that 90+% of people with that diagnosis also have NVLD.

There is current research on it:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11001940/#:~:text=Furthermore%2C%20children%20with%20NVLD%20showed,abnormalities%20in%20white%20matters%20tracts

This does not seem like autism at all. Completely different diagnostic criteria and description

It’s a really common autism profile to have a verbal, high IQ, but physically clumsy kid. My kid is ASD + DCD and could easily fit the criteria for NVLD if someone tried to apply that label. I don’t really care, but given that the vast majority of kids with “anxiety, ADHD and social communication issues” will be dx as autism these days, it seems purposeful to get the NVLD label and not autism.

If you have a practitioner who is familiar with both, it’s actually quite easy to discern. And I’m not sure how it could be a “purposeful” diagnosis. I didn’t pick it.

NVLD isn’t a DSM diagnosis. I’d be pretty skeptical of people claiming they can distinguish it from autism since there are no fixed diagnostic criteria for NVLD.

People are confusing non verbal ASD and NVLD. completely different.

Anonymous wrote:I’m just irritated that I keep seeing people online saying his son is non-verbal. It’s a very confusing name for the diagnosis and people keep misunderstanding.

It’s not confusing. It’s a learning disorder that mostly spares language abilities. The fact that people who don’t know anything about anything think that NVLD means that the person who has it is “nonverbal” is—well, their problem. Maybe they don’t know much.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Typically NVLD is a gap of 40 or more points between verbal and visuo-spatial scores. People with NVLD are usually highly verbal. My DC also has Turner Syndrome. It’s estimated that 90+% of people with that diagnosis also have NVLD.

There is current research on it:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11001940/#:~:text=Furthermore%2C%20children%20with%20NVLD%20showed,abnormalities%20in%20white%20matters%20tracts

This does not seem like autism at all. Completely different diagnostic criteria and description

It’s a really common autism profile to have a verbal, high IQ, but physically clumsy kid. My kid is ASD + DCD and could easily fit the criteria for NVLD if someone tried to apply that label. I don’t really care, but given that the vast majority of kids with “anxiety, ADHD and social communication issues” will be dx as autism these days, it seems purposeful to get the NVLD label and not autism.

If you have a practitioner who is familiar with both, it’s actually quite easy to discern. And I’m not sure how it could be a “purposeful” diagnosis. I didn’t pick it.

Anonymous wrote:I’m just irritated that I keep seeing people online saying his son is non-verbal. It’s a very confusing name for the diagnosis and people keep misunderstanding.

Agree on the name. I also had that misconception when I first heard about his son.

Anonymous wrote:Typically NVLD is a gap of 40 or more points between verbal and visuo-spatial scores. People with NVLD are usually highly verbal. My DC also has Turner Syndrome. It’s estimated that 90+% of people with that diagnosis also have NVLD.

There is current research on it:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11001940/#:~:text=Furthermore%2C%20children%20with%20NVLD%20showed,abnormalities%20in%20white%20matters%20tracts

Interesting. I also have a kid with TS, but no NVLD.

Anonymous wrote:

Anonymous wrote:Typically NVLD is a gap of 40 or more points between verbal and visuo-spatial scores. People with NVLD are usually highly verbal. My DC also has Turner Syndrome. It’s estimated that 90+% of people with that diagnosis also have NVLD.

There is current research on it:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11001940/#:~:text=Furthermore%2C%20children%20with%20NVLD%20showed,abnormalities%20in%20white%20matters%20tracts

This does not seem like autism at all. Completely different diagnostic criteria and description

It’s a really common autism profile to have a verbal, high IQ, but physically clumsy kid. My kid is ASD + DCD and could easily fit the criteria for NVLD if someone tried to apply that label. I don’t really care, but given that the vast majority of kids with “anxiety, ADHD and social communication issues” will be dx as autism these days, it seems purposeful to get the NVLD label and not autism.

Anonymous wrote:Not new at all. Not a fancy diagnosis. Usually diagnosed in tandem with other disorders like ADHD or anxiety because it's a learning disorder, not a developmental disorder.

Anonymous wrote:Typically NVLD is a gap of 40 or more points between verbal and visuo-spatial scores. People with NVLD are usually highly verbal. My DC also has Turner Syndrome. It’s estimated that 90+% of people with that diagnosis also have NVLD.

There is current research on it:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11001940/#:~:text=Furthermore%2C%20children%20with%20NVLD%20showed,abnormalities%20in%20white%20matters%20tracts

Super interesting, thanks!

Anonymous wrote:

Anonymous wrote:My understanding is that it used to exist but went away in the last DSM revision -- is that correct?

I know kids my kid's age who have it from years ago. They have what is basically an autism/Aspergers profile, but it's a little more specific.

No, it is quite different and the issues with learning are different. It is not more specific. It is different.

It was described to me by an evaluator years ago as basically equivalent to Asperger’s. I always thought it sounded like a fit for my son, who has social communication difficulties, especially with pragmatically, but is highly gifted verbally. (He had a pdd dx, now ASD).

It’s a very confusing name though.

Anonymous wrote:My understanding is that it used to exist but went away in the last DSM revision -- is that correct?

I know kids my kid's age who have it from years ago. They have what is basically an autism/Aspergers profile, but it's a little more specific.

No, it is quite different and the issues with learning are different. It is not more specific. It is different.

Anonymous wrote:Fancy private diagnosis for politician’s kid. Poor kids will be diagnosed ASD or worse, ODD. Same social difficulties interpreting cues and spatial awareness.

You are full of it. What an ignorant, useless post that is just your attempting at sharing your hateful politics.

My kid was diagnosed with this a long time ago. It was a very accurate representation of my child and their issues. It is different from autism. I've heard they've stopped using this term but I think it is a mistake. It is not odd in any way.

I’m just irritated that I keep seeing people online saying his son is non-verbal. It’s a very confusing name for the diagnosis and people keep misunderstanding.

Anonymous wrote:Typically NVLD is a gap of 40 or more points between verbal and visuo-spatial scores. People with NVLD are usually highly verbal. My DC also has Turner Syndrome. It’s estimated that 90+% of people with that diagnosis also have NVLD.

There is current research on it:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11001940/#:~:text=Furthermore%2C%20children%20with%20NVLD%20showed,abnormalities%20in%20white%20matters%20tracts

This does not seem like autism at all. Completely different diagnostic criteria and description