Anonymous
02/27/2024 23:47
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Anonymous wrote:Ok, poster who finally got treated from an OB in Florida of all places. NAPRO are usually Catholic OBs helping women improve their fertility naturally, but they take all the hormone issues much more serious than regular OBs.
My treatment process started with over 60 blood tests, ultrasound, and more. I had 2 new genetic disorders that included a clotting disorder that also causes metabolic dysfunction and PCOS. I was extremely low in Vitamin D. I do not process folate. So I was put on metformin, ovasitol, Mtx (methyl folate), Vit E, Vit D, baby aspirin, and regular vitamins. I haven't felt so good in my life since I started treatment.
Would you be willing to share the doctor you saw in FL?
And for those who started having symptoms as teenagers- would you mind sharing a bit more about your symptoms?
My DD has complained of very painful periods, had an ovarian cyst which we found when we thought she had appendicitis. And she is routinely quite tired. We’ve put her on BC to help with severe cramps. Her iron levels are ok.
But I feel like there may be more going on. And the doctors just say she is a teenager and sleep deprived. So I haven’t been able to get anyone to authorize more tests.
Anonymous
02/27/2024 23:41
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Ok, poster who finally got treated from an OB in Florida of all places. NAPRO are usually Catholic OBs helping women improve their fertility naturally, but they take all the hormone issues much more serious than regular OBs.
My treatment process started with over 60 blood tests, ultrasound, and more. I had 2 new genetic disorders that included a clotting disorder that also causes metabolic dysfunction and PCOS. I was extremely low in Vitamin D. I do not process folate. So I was put on metformin, ovasitol, Mtx (methyl folate), Vit E, Vit D, baby aspirin, and regular vitamins. I haven't felt so good in my life since I started treatment.
My treatment process started with over 60 blood tests, ultrasound, and more. I had 2 new genetic disorders that included a clotting disorder that also causes metabolic dysfunction and PCOS. I was extremely low in Vitamin D. I do not process folate. So I was put on metformin, ovasitol, Mtx (methyl folate), Vit E, Vit D, baby aspirin, and regular vitamins. I haven't felt so good in my life since I started treatment.
Anonymous
02/27/2024 23:32
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
How would metformin, spironolactone or birth control pills improve your fatigue?
Anonymous
02/27/2024 22:12
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Anonymous wrote:Following. I also have PCOS and had 6 physicians from PC to OB to RE to Endocrinologist all decline to treat it.
Ditto, and mine were in VA, DC, MD and 3 out of 4 were women!
Anonymous
02/27/2024 21:26
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
OP, you mention thyroid was within normal range. I assume you mean TSH. Define what your PCP (or whoever ordered those labs) considers "normal".
My old PCP insisted I didn't need treatment for thyroid because, with a TSH of 4.5, I was "within normal limits". I finally got a referral to an endo who took one look at my bloodwork and put me on Levoxyl. I am diagnosed Hashimotos/hypothyroid, and I feel best when my TSH is between 1 and 2. A lot of physicians don't really know what they're talking about with thyroid. My endo insisted that a TSH over 2.0 was too high for me. And he was right.
I also have PCOS.
My old PCP insisted I didn't need treatment for thyroid because, with a TSH of 4.5, I was "within normal limits". I finally got a referral to an endo who took one look at my bloodwork and put me on Levoxyl. I am diagnosed Hashimotos/hypothyroid, and I feel best when my TSH is between 1 and 2. A lot of physicians don't really know what they're talking about with thyroid. My endo insisted that a TSH over 2.0 was too high for me. And he was right.
I also have PCOS.
Anonymous
02/27/2024 19:28
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Anonymous wrote:Can someone clarify for it means for PCOS to be treated? Are there medications people take? Routine tests that are out of the scope of what a PCP or gyno would usually do? I am diligent about getting an insulin resistance test yearly bc that's my biggest worry.
Common medications for PCOS include metformin, spironolactone, and birth control. Not all women need all of them.
Anonymous
02/27/2024 17:52
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Can someone clarify for it means for PCOS to be treated? Are there medications people take? Routine tests that are out of the scope of what a PCP or gyno would usually do? I am diligent about getting an insulin resistance test yearly bc that's my biggest worry.
Anonymous
02/27/2024 08:34
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Have you checked for a sleep disorder?
Other thing is maybe you're not absorbing vitamins that well, esp. the B12. Not unheard of with PCOS. Also check for insulin resistance.
Other thing is maybe you're not absorbing vitamins that well, esp. the B12. Not unheard of with PCOS. Also check for insulin resistance.
Anonymous
02/26/2024 23:08
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Dr. Valerie Lynn Baker.
Anonymous
02/26/2024 21:13
Subject: Re:Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Anonymous wrote:Anonymous wrote:Do you take B12 and iron supplements? Taking those gave my vegetarian DD her energy back.
Yes, I can’t vitamin my way out of this one. Believe me I have tried. My vitamin d levels are always good, as are my iron.
Ferrritin? Once my iron was fine but my ferritin was shot. So I took supplements a d back to normal energy levels? I’d also had loss of hair even ferritin low.
PCOs and thyroid
Anonymous
02/26/2024 20:51
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Jerold Share was super helpful to me, but it was like 15 years ago. (I moved.)
Anonymous
02/26/2024 14:48
Subject: Local (DMV) gynaecologist or endocrinologist who takes PCOS seriously
Good luck. I don't think any Drs will actually be all that interested, let alone able to help you.