Anonymous wrote:
I would like to add another "component" for many families across the United States understanding that it would be expensive. Having a community where most likely one parent remaining could move into IL with an adult son or daughter who has a disability and who has needed a supportive housing situation throughout the years. The reality is that these likely "middle aged adults" attend the same adult day programs that older seniors need in the community. And they, too, need an option to move seamlessly as support services are needed.
Again, I know this is for those who have the ability to pay and also that CCRCs would need to have the ability to screen and set criteria for such "a couple" becoming a part of the community. Still if parents have thought ahead and have LTC insurance as well as funds, it could be a realistic option for at least some for a period in their life. It would also provide a realistic framework for a family (including siblings) to plan for the decline of three. Due to federal guidelines CCRCs are structured to serve those age 62 and older. One benchmark on an adult son/daughter also entering might be an age of 40 or 45.
You're so on it. My siblings and I faced this, but with no money to handle it. Some months after our dad died, our sister with a DD ended up moving into an adult group home - she was still able to participate in activities, but our mom was not able to take her to them or even track her attending them. For her it was great as she was reunited with many friends from childhood and young adulthood. Our mom soon after moved into a memory care unit. What would have been was the ability for our sister to come occasionally stay with our mom, etc. But the US system is just not set up for this. Just not at all.