Anonymous wrote:
Anonymous wrote:I hadn't really thought about it, but i guess i had a nervous breakdown when DS had undiagnosed PANDAS and he morphed into a totally different, violent, angry, dissociated person who couldn't attend school. Dealing with his day to day severe adhd and social challenges is pretty easy compared to that, and probably doesn't take any more mental energy or time than parents who have kids deeply involved in extracurriculars. But yeah, OP it's remarkable what we get through.
Sorry, but this is just not true -- time, maybe. But mental lead and energy? Totally different story to shuttle your kid to continue thriving athletically versus worry he/she will not make it period.
I'm the PP you're responding to, and i'm not sure why you're challenging my experience based on my own son. My statement above was that dealing with HIS day to day SN is not more time consuming than parents dealing with NT kids with tons of activities. That's my experience, and it absolutely is true (and has been echoed by others on this forum over the years). When he had PANDAS, things were excruciating. Severe adhd and social challenges? He's properly medicated, we make sure no one in our household is overextended, and because he's socially really off from other kids, he's not doing much in the way of hanging with friends or extracurriculars. He requires some daily oversight to attend to his adhd, make sure his homework is done, etc, but he will definitely go to a good college (with supports from us), and the time i spend on him is less than my friend spends on her kid who is super into basketball but NT. And having gone through PANDAS, where i spent hours every day reading every article on brain tumors, late onset severe autism, epilepsy, mania, bipolar and every other thing i could possibly think of that might explain what was happening, yes, i can confirm that i'm not losing too much sleep over his severe adhd and social challenges, because this is nothing compared to what i went through before. Again, my original post made clear this was my experience with my son, and i never said anything about anyone else's experience.