Anonymous
03/24/2020 08:04
Subject: Hydroxychloroquine
I’m glad I switched from plaquenil to methotrexate a few months ago. Only somewhat glad, though. The MX isn’t working.
Anonymous
03/24/2020 08:01
Subject: Hydroxychloroquine
Anonymous wrote:Anonymous wrote:Anonymous wrote:Risk of side effect, plus there isn't a lot of it to begin with and patients with other conditions, proven to be helped by the medication, need it.
please stop inventing reasons you don't want this drug to work because we all know it's because trump advertised it.
Yep. Inventing reasons here. It’s all about the Donald.
Man dies after ingesting chloroquine to prevent coronavirus, Banner Health says
https://abcnews.go.com/Politics/man-dies-ingesting-chloroquine-prevent-coronavirus-banner-health/story?id=69759570
Trump can be blamed for a lot, but not this.
Anonymous
03/24/2020 03:00
Subject: Hydroxychloroquine
Anonymous wrote:Anonymous wrote:Risk of side effect, plus there isn't a lot of it to begin with and patients with other conditions, proven to be helped by the medication, need it.
please stop inventing reasons you don't want this drug to work because we all know it's because trump advertised it.
Yep. Inventing reasons here. It’s all about the Donald.
Man dies after ingesting chloroquine to prevent coronavirus, Banner Health says
https://abcnews.go.com/Politics/man-dies-ingesting-chloroquine-prevent-coronavirus-banner-health/story?id=69759570
Anonymous
03/24/2020 00:27
Subject: Hydroxychloroquine
Anonymous wrote:An overdose of hydroxychloroquine will kill you.
H2O too
Anonymous
03/24/2020 00:25
Subject: Hydroxychloroquine
Anonymous
03/24/2020 00:14
Subject: Hydroxychloroquine
Anonymous wrote:These drugs can cause permanent vision damage- and that is isn’t going to show up right away.
Plaquenil is known to be a slow acting drug for lupus. They may be using very high doses for Covid and no one knows the long term effects
Just wanted to second this warning. I tried Plaquenil for about 6-9 months for autoimmune reasons, and my eye doctor gave me VERY serious warnings and a thorough check every few months. If I remember right, the eye damage can be permanent. It doesn’t happen to everyone — I was totally fine — but the risk exists.
Anonymous
03/23/2020 23:22
Subject: Hydroxychloroquine
Anonymous wrote:Anonymous wrote:On a related note: Please stop trying to get an Rx for this to take "just in case." I have lupus and had to scramble all weekend to get another month's supply. After eight attempts, I found a pharmacy that was refusing to fill prescriptions for anyone who hadn't already been on it before last week. The pharmacist told me that a dentist had attempted to prescribe it for all of his friends and family. Lupus patients CANNOT suddenly discontinue their meds.
This is exactly what I was saying earlier in this thread. People taking it because it might work will be causing people who definitely need it to go without. People need to stop being so horribly selfish. I'm glad you got your meds.
Are you kidding? You live in America. This country was built on pure selfishness, and its the way of life here. If you want a selfless society, you’ll have to move elsewhere.
Anonymous
03/23/2020 22:55
Subject: Hydroxychloroquine
I have RA and took this drug- 200 mg per day. It was fine. Since Im high risk, my doc prescribed it for covid at 400mg twice a day for 1 day then 200 mg a day for 5 days
Anonymous
03/23/2020 22:38
Subject: Re:Hydroxychloroquine
Anonymous wrote:Anonymous wrote:Anonymous wrote:no, the answer to OP's question is that in fact a lot of people are getting it, both in the USA and abroad.
they’re getting it largely as part of a *clinical trial.* to the extent OP is thinking this is standard of care, he is
mistaken.
no they are getting as presumed treatment - not an official standard of care but something that a lot of doctors are using while waiting for better evidence. people are getting it through clinical trials, too, but that’s a minority. this is why there is a shortage, it’s not because of a couple of dentists.
I think you don’t have the faintest idea what you’re talking about.
Anonymous
03/23/2020 22:28
Subject: Hydroxychloroquine
Anonymous wrote:Anonymous wrote:A good friend of mine has Lupus and can’t get a refill because all of the pharmacies are out of it. She said one place told her that a dentist prescribed it for his entire family and all of his friends. They (the CVS) refused to fill those prescriptions. I really hope they report him. Now my poor friend won’t get her medicine in time just because our jackhole president gave misleading advice.
Oh please. This drug is the most promising treatment we have so far. I don’t begrudge medical personnel for doing what they need to do to protect their families. You would absolutely do the same if you could.
When they do that it also prevents hospitals from being able to get access to it.
It is hugely unethical - state pharmacy Boards are onto it, though
Lupus, etc is a rare disease diagnosed and treated by a rheum. Pharmacists have rightly flagged questionably scripts
Anonymous
03/23/2020 22:23
Subject: Re:Hydroxychloroquine
Anonymous wrote:Anonymous wrote:no, the answer to OP's question is that in fact a lot of people are getting it, both in the USA and abroad.
they’re getting it largely as part of a *clinical trial.* to the extent OP is thinking this is standard of care, he is
mistaken.
no they are getting as presumed treatment - not an official standard of care but something that a lot of doctors are using while waiting for better evidence. people are getting it through clinical trials, too, but that’s a minority. this is why there is a shortage, it’s not because of a couple of dentists.
Anonymous
03/23/2020 21:45
Subject: Hydroxychloroquine
Anonymous wrote:A good friend of mine has Lupus and can’t get a refill because all of the pharmacies are out of it. She said one place told her that a dentist prescribed it for his entire family and all of his friends. They (the CVS) refused to fill those prescriptions. I really hope they report him. Now my poor friend won’t get her medicine in time just because our jackhole president gave misleading advice.
Oh please. This drug is the most promising treatment we have so far. I don’t begrudge medical personnel for doing what they need to do to protect their families. You would absolutely do the same if you could.
Anonymous
03/23/2020 21:01
Subject: Re:Hydroxychloroquine
Anonymous wrote:no, the answer to OP's question is that in fact a lot of people are getting it, both in the USA and abroad.
they’re getting it largely as part of a *clinical trial.* to the extent OP is thinking this is standard of care, he is
mistaken.
Anonymous
03/23/2020 20:36
Subject: Re:Hydroxychloroquine
no, the answer to OP's question is that in fact a lot of people are getting it, both in the USA and abroad.
Anonymous
03/23/2020 20:32
Subject: Hydroxychloroquine
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:I'm listening to two doctors now. They said that for people starting down a bad path (those with co-morbidities for instance) it's being prescribed and ALL of their patients have gotten better within max two days.
For the lupus patient? Yes, it sucks that your drug of choice is now needed during a pandemic for other patients. But you don't get the right to live while they die.
My niece is hoarding the drug for her lupus patients (she's a pharmacist) and if she loses her license, she will get no pity from me. That's not her job.
Which doctors? Where? How have their "results" been vetted?
Are you just hearing something on the radio and taking it as if it had gone through peer review? Do you even know what peer review is?
The right to try it is between the sick patient/family and their doctor.
OP’s question was “why don’t all patients get this.” The answer is - it has no proven effectiveness, and now thanks to our terrible president, there’s a shortage, so even if you wanted to try it you could not.
right, which has zero to do with the scientific process needed to determine if it’s safe and effective.
Oncologists do this all the time - new therapies for terminal patients. It's easy to sit in a chair well and make your profound sounding statements. Try that from a hospital bed when you can't breathe.