Anonymous
Post 03/23/2020 20:31     Subject: Hydroxychloroquine
These drugs can cause permanent vision damage- and that is isn’t going to show up right away.
Plaquenil is known to be a slow acting drug for lupus. They may be using very high doses for Covid and no one knows the long term effects
Anonymous
Post 03/23/2020 20:25     Subject: Hydroxychloroquine
Although this is considered generally a "safe" drug, I personally had an extremely serious reaction to it that required hospitalization. I was prescribed it by my rheumatologist, and he did warn me that while serious reactions weren't common, they were possible. Boy, are they possible!

Like someone said earlier on, it's not like popping a couple of Advil.
Anonymous
Post 03/23/2020 20:19     Subject: Hydroxychloroquine
A good friend of mine has Lupus and can’t get a refill because all of the pharmacies are out of it. She said one place told her that a dentist prescribed it for his entire family and all of his friends. They (the CVS) refused to fill those prescriptions. I really hope they report him. Now my poor friend won’t get her medicine in time just because our jackhole president gave misleading advice.
Anonymous
Post 03/23/2020 20:19     Subject: Hydroxychloroquine
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I'm all for them using it, but unfortunately, like everything right now, there's not enough to go around. And that sucks for those of us with autoimmune disorders who now can't get our prescriptions filled, like me. So now I'm worried about weathering a flare-up while having the coronavirus.

Apparently, doctors are now ordering it for their friends and families and asking for it in larger quantities than anyone would need to fight Covid, which is something like 12 pills tops. The pharmacist ranted about this for about a half an hour this morning, and told me good luck getting it.

It's the new hand sanitizer.


No, it's not. There is a ton coming. It's not the pharmacist's job to pick and choose who gets to live and who gets to die. The pharmacist should call the prescribing doctor if they have an issue. Report them if they think it's being abused.


Yes, it is. People would need 12 pills to be treated for Covid, and doctors are requesting it in large doses. Why? To keep on hand for themselves and their friends and families and god knows who else? This is hoarding. Like hand sanitizer and toilet paper. If everyone took what they needed, we'd be okay.


NP here. So now you have a conspiracy against doctors hoarding it for their friends and family? You people are too much. DH could have hoarded sanitizer and face masks for his friends and family from the hospital but we have none. It's at the hospital to use when healthcare professionals see patients.


It’s being widely reported that it’s being hoarded inappropriately.


We have 3 confirmed covid cases in my zip code, and the one pharmacist I talked to said she received 800 scripts for it the day after trump tweeted, and there is no more in stock in our county. So who is writing the scripts, then? It’s the doctors. The pharmacists told me she thinks the doctors are writing it for themselves and their families. Is that a conspiracy theory? Who is getting this medicine?


why does it matter? it’s a totally unproven treatment and everyone knows trump is an idiot.


Because I use it for Sjogrens/RA and cant get any now.


it sounds like you don’t want it to work so that you have more for yourself.
Anonymous
Post 03/23/2020 20:17     Subject: Hydroxychloroquine
Anonymous wrote:
Anonymous wrote:I'm all for them using it, but unfortunately, like everything right now, there's not enough to go around. And that sucks for those of us with autoimmune disorders who now can't get our prescriptions filled, like me. So now I'm worried about weathering a flare-up while having the coronavirus.

Apparently, doctors are now ordering it for their friends and families and asking for it in larger quantities than anyone would need to fight Covid, which is something like 12 pills tops. The pharmacist ranted about this for about a half an hour this morning, and told me good luck getting it.

It's the new hand sanitizer.



Yep. I’m so happy I was able to get my RX filled for 6 months. As it happens, I had just gotten my regular 90 day Rx in mail. My rheumatologist office called me as insisted that I see if I could get additional supply. He said he was getting calls from pharmacies of shortages. I was able to get an additional 90 day supply by paying out of pocket. My regular pharmacist said that yes, dentists, dermatologists, plastic surgeons and the like were clearly calling in scripts for off label use.


My mom could not pay out of pocket. She has 60 days left. I hope those doctors who wrote hundreds of scripts for healthy Trumpsters get their licenses yanked.
Anonymous
Post 03/23/2020 19:42     Subject: Hydroxychloroquine
Anonymous wrote:An overdose of hydroxychloroquine will kill you.


So don't OD on it.
Anonymous
Post 03/23/2020 19:41     Subject: Hydroxychloroquine
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I'm listening to two doctors now. They said that for people starting down a bad path (those with co-morbidities for instance) it's being prescribed and ALL of their patients have gotten better within max two days.

For the lupus patient? Yes, it sucks that your drug of choice is now needed during a pandemic for other patients. But you don't get the right to live while they die.

My niece is hoarding the drug for her lupus patients (she's a pharmacist) and if she loses her license, she will get no pity from me. That's not her job.


Which doctors? Where? How have their "results" been vetted?

Are you just hearing something on the radio and taking it as if it had gone through peer review? Do you even know what peer review is?


The right to try it is between the sick patient/family and their doctor.


right, which has zero to do with the scientific process needed to determine if it’s safe and effective.


Oncologists do this all the time - new therapies for terminal patients. It's easy to sit in a chair well and make your profound sounding statements. Try that from a hospital bed when you can't breathe.
Anonymous
Post 03/23/2020 19:41     Subject: Hydroxychloroquine
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I'm all for them using it, but unfortunately, like everything right now, there's not enough to go around. And that sucks for those of us with autoimmune disorders who now can't get our prescriptions filled, like me. So now I'm worried about weathering a flare-up while having the coronavirus.

Apparently, doctors are now ordering it for their friends and families and asking for it in larger quantities than anyone would need to fight Covid, which is something like 12 pills tops. The pharmacist ranted about this for about a half an hour this morning, and told me good luck getting it.

It's the new hand sanitizer.


No, it's not. There is a ton coming. It's not the pharmacist's job to pick and choose who gets to live and who gets to die. The pharmacist should call the prescribing doctor if they have an issue. Report them if they think it's being abused.


Yes, it is. People would need 12 pills to be treated for Covid, and doctors are requesting it in large doses. Why? To keep on hand for themselves and their friends and families and god knows who else? This is hoarding. Like hand sanitizer and toilet paper. If everyone took what they needed, we'd be okay.


NP here. So now you have a conspiracy against doctors hoarding it for their friends and family? You people are too much. DH could have hoarded sanitizer and face masks for his friends and family from the hospital but we have none. It's at the hospital to use when healthcare professionals see patients.


It’s being widely reported that it’s being hoarded inappropriately.


We have 3 confirmed covid cases in my zip code, and the one pharmacist I talked to said she received 800 scripts for it the day after trump tweeted, and there is no more in stock in our county. So who is writing the scripts, then? It’s the doctors. The pharmacists told me she thinks the doctors are writing it for themselves and their families. Is that a conspiracy theory? Who is getting this medicine?


why does it matter? it’s a totally unproven treatment and everyone knows trump is an idiot.


Because I use it for Sjogrens/RA and cant get any now.
Anonymous
Post 03/23/2020 19:39     Subject: Re:Hydroxychloroquine
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I am listening to a radio interview about this now. A doctor in NY was saying that he has given it to 375+ patients in New York and and they have all recovered.

Dear God.

Are we on the verge of a breakthrough?


Short answer: no. Long answer: also no.


and you know this based on what?


DP.

Most people recover, so this drug may or may not have made a difference.


where is your study showing it makes no difference?


where is your study showing it doesn’t make things worse?


i am not waiting for studies. at this point plentiful “anecdata” is good enough.


do you understand that we don’t actually know if it works until we do chemical trial?


I have a statistics degree from Harvard, thanks. you make decisions with the info you have, not with info you wish you had.


Understand too, that there are people here who want it to fail and for more people to die, as they see it as a way to destroy Trump - impeachment 2.0


No - we are hopeful for any and all drug therapies that will work and don't want more to die. Unfortunately, the President chooses to spew lies, inaccuracies and misinformation, so it's difficult to ascertain the truth.


Ah, you are like my husband. I asked him if he wanted me to tell the docs to try it if he's very sick. He was all "well, I want to read about it, President lies, blah blah blah". I said "no problem, I'll tell them you don't want treatment"

I assume you would stick to your values as well - President lies so no therapy for you!
Anonymous
Post 03/23/2020 19:37     Subject: Hydroxychloroquine
Anonymous wrote:the positive Bachelor guy has been taking it, as well as the guy from Lost.

All these celebrities are getting meds to take once they are positive, and seems like the rest of us are just sent home with nothing


What part of the elite gets what they need first do people not understand? That's why so many of them love socialism - it puts them on the top of the heap.
Anonymous
Post 03/23/2020 19:19     Subject: Hydroxychloroquine
Anonymous wrote:https://twitter.com/axios/status/1242181578891157504?s=20


Anonymous
Post 03/23/2020 19:09     Subject: Hydroxychloroquine
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I'm all for them using it, but unfortunately, like everything right now, there's not enough to go around. And that sucks for those of us with autoimmune disorders who now can't get our prescriptions filled, like me. So now I'm worried about weathering a flare-up while having the coronavirus.

Apparently, doctors are now ordering it for their friends and families and asking for it in larger quantities than anyone would need to fight Covid, which is something like 12 pills tops. The pharmacist ranted about this for about a half an hour this morning, and told me good luck getting it.

It's the new hand sanitizer.


No, it's not. There is a ton coming. It's not the pharmacist's job to pick and choose who gets to live and who gets to die. The pharmacist should call the prescribing doctor if they have an issue. Report them if they think it's being abused.


Yes, it is. People would need 12 pills to be treated for Covid, and doctors are requesting it in large doses. Why? To keep on hand for themselves and their friends and families and god knows who else? This is hoarding. Like hand sanitizer and toilet paper. If everyone took what they needed, we'd be okay.


NP here. So now you have a conspiracy against doctors hoarding it for their friends and family? You people are too much. DH could have hoarded sanitizer and face masks for his friends and family from the hospital but we have none. It's at the hospital to use when healthcare professionals see patients.


It’s being widely reported that it’s being hoarded inappropriately.


We have 3 confirmed covid cases in my zip code, and the one pharmacist I talked to said she received 800 scripts for it the day after trump tweeted, and there is no more in stock in our county. So who is writing the scripts, then? It’s the doctors. The pharmacists told me she thinks the doctors are writing it for themselves and their families. Is that a conspiracy theory? Who is getting this medicine?


why does it matter? it’s a totally unproven treatment and everyone knows trump is an idiot.
Anonymous
Post 03/23/2020 18:56     Subject: Hydroxychloroquine
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I'm all for them using it, but unfortunately, like everything right now, there's not enough to go around. And that sucks for those of us with autoimmune disorders who now can't get our prescriptions filled, like me. So now I'm worried about weathering a flare-up while having the coronavirus.

Apparently, doctors are now ordering it for their friends and families and asking for it in larger quantities than anyone would need to fight Covid, which is something like 12 pills tops. The pharmacist ranted about this for about a half an hour this morning, and told me good luck getting it.

It's the new hand sanitizer.


No, it's not. There is a ton coming. It's not the pharmacist's job to pick and choose who gets to live and who gets to die. The pharmacist should call the prescribing doctor if they have an issue. Report them if they think it's being abused.


Yes, it is. People would need 12 pills to be treated for Covid, and doctors are requesting it in large doses. Why? To keep on hand for themselves and their friends and families and god knows who else? This is hoarding. Like hand sanitizer and toilet paper. If everyone took what they needed, we'd be okay.


NP here. So now you have a conspiracy against doctors hoarding it for their friends and family? You people are too much. DH could have hoarded sanitizer and face masks for his friends and family from the hospital but we have none. It's at the hospital to use when healthcare professionals see patients.


It’s being widely reported that it’s being hoarded inappropriately.


We have 3 confirmed covid cases in my zip code, and the one pharmacist I talked to said she received 800 scripts for it the day after trump tweeted, and there is no more in stock in our county. So who is writing the scripts, then? It’s the doctors. The pharmacists told me she thinks the doctors are writing it for themselves and their families. Is that a conspiracy theory? Who is getting this medicine?
Anonymous
Post 03/23/2020 18:55     Subject: Re:Hydroxychloroquine
so everyone is clamoring for a drug that is totally useless if not extremely dangerous. weird.
Anonymous
Post 03/23/2020 18:54     Subject: Hydroxychloroquine
the positive Bachelor guy has been taking it, as well as the guy from Lost.

All these celebrities are getting meds to take once they are positive, and seems like the rest of us are just sent home with nothing