Anonymous wrote:I’m 45 and have my dr order this for me yearly as ovarian and uterine cancer are so silent and quite common. However it’s not ‘recommended’ so I’m not sure if this is actually the best approach. My dr is extremely cautious so happy to order this but would love to hear others thoughts and experiences. I had a different cancer this year so am very anxious about prevention/ early detection

Are you doing anything to minimize your risk?

Anonymous wrote:There’s also removing the Fallopian tubes to reduce ovarian cancer risk. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/salpingectomy

I asked about this since I have PCOS and history of complex cysts, I worry about ovarian cancer. my OB was supportive about tubal removal, I asked to have it done during my last birth (planned C). Insurance wouldn’t pay for it at the same time as a C-section bc of unspecified risks but would pay if I went back separately. So that is kind of disappointing.

Anyone out here had a salpingectomy for preventative reasons?

Interesting. I had one (only one, not two tubes) because of an ectopic pregnancy and hadn't known it reduced risk.

My mom died of a rare and aggressive form of endometrial cancer. She had no bleeding which is generally the symptom to look for. It was stage 4 when it was discovered. I have seen multiple GYNs since and every single one has been on board with pelvic ultrasound because I am fearful that I will develop the same cancer. I know US isn’t foolproof but it’s all I’ve got and I feel like I have nothing to lose. My last one did turn up something suspicious so I will have a D&C to biopsy. I’m hoping if it’s cancer it was caught early.

Anonymous wrote:My gyn said not to bother. That ovarian cancer comes on so quickly than an ultrasound would not catch it well-- it could start the next day and grow fast. Or if the ultrasound did catch it, it's likely it would be too late.

jfc
ovarian cancer has a 50% 5 year survival rate. u/s is what tells you you have it. worth knowing you have.

Anonymous wrote:

Anonymous wrote:This thread is absolutely chock full of fake news.
TVS can absolutely spot ovarian cancer before it spreads to other organs. It just cannot distinguish between benign and malignant masses. Hence the need for a secondary blood test which is being developed. Sheesh
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3873201/

That article is from 2013. I’ve been waiting for thirty years for good screening for ovarian cancer. It doesn’t exist yet. I eventually had my ovaries out due to my poor family history.

I skipped from the first page to this page and may have overlooked someone mentioning this. But: try getttung the Grail test.

https://www.cancer.org/cancer/screening/multi-cancer-early-detection-tests.html

It’s maybe $1,500 all in if you pay for itself, but, if you might be full-pay for your kid’s college, why not splurge on this?

My gyn said not to bother. That ovarian cancer comes on so quickly than an ultrasound would not catch it well-- it could start the next day and grow fast. Or if the ultrasound did catch it, it's likely it would be too late.

Why screen CA125 if you have no ovaries?

Anonymous wrote:I thought that many ovarian/ uterine cancers did not reliably present on ultrasound in early stages anyways, hence the lack of recommendation for routine screening in this way.

Really? Would ovarian cancer that’s advanced enough to cause symptoms show up on ultrasound?

I was just thinking about this the other day. I have IBS (confirmed via two consecutive colonoscopies) and yet I am constantly worrying about ovarian cancer because of the GI issues, especially if things change or thing flare up and seem to have changed from previous flare-ups. I've requested ovarian scans from time to time to put my mind at ease, but now that I'm 45 and done having kids, I'd like to explore an oophorectomy. Does insurance cover this is if it is preventative?

Anonymous wrote:anyone have recs in the DMV for doctors who did your tubal salpingectomy?

Dr Lin at Sibley did my oophorectomy. I highly recommend him.

https://www.hopkinsmedicine.org/Profiles/details/jeffrey-lin

anyone have recs in the DMV for doctors who did your tubal salpingectomy?

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:There’s also removing the Fallopian tubes to reduce ovarian cancer risk. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/salpingectomy

I asked about this since I have PCOS and history of complex cysts, I worry about ovarian cancer. my OB was supportive about tubal removal, I asked to have it done during my last birth (planned C). Insurance wouldn’t pay for it at the same time as a C-section bc of unspecified risks but would pay if I went back separately. So that is kind of disappointing.

Anyone out here had a salpingectomy for preventative reasons?

I have BRCA1 and had my breasts, ovaries, tubes and uterus removed preventatively. For me its been a good decision for the peace of mind i have. I still screen CA125 annually.

What about cervix?

It’s attached to the uterus so I would assume it comes out. Why wouldn’t it. It serves no purpose alone

DP. When my mom had a hysterectomy 20 years ago for endometrial cancer, they left her cervix. No idea why, but I distinctly remember it, because I found it so odd that they removed the uterus, ovaries, fallopian tubes...but not the cervix.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:There’s also removing the Fallopian tubes to reduce ovarian cancer risk. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/salpingectomy

I asked about this since I have PCOS and history of complex cysts, I worry about ovarian cancer. my OB was supportive about tubal removal, I asked to have it done during my last birth (planned C). Insurance wouldn’t pay for it at the same time as a C-section bc of unspecified risks but would pay if I went back separately. So that is kind of disappointing.

Anyone out here had a salpingectomy for preventative reasons?

I have BRCA1 and had my breasts, ovaries, tubes and uterus removed preventatively. For me its been a good decision for the peace of mind i have. I still screen CA125 annually.

What about cervix?

It’s attached to the uterus so I would assume it comes out. Why wouldn’t it. It serves no purpose alone

Anonymous wrote:

Anonymous wrote:There’s also removing the Fallopian tubes to reduce ovarian cancer risk. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/salpingectomy

I asked about this since I have PCOS and history of complex cysts, I worry about ovarian cancer. my OB was supportive about tubal removal, I asked to have it done during my last birth (planned C). Insurance wouldn’t pay for it at the same time as a C-section bc of unspecified risks but would pay if I went back separately. So that is kind of disappointing.

Anyone out here had a salpingectomy for preventative reasons?

I have BRCA1 and had my breasts, ovaries, tubes and uterus removed preventatively. For me its been a good decision for the peace of mind i have. I still screen CA125 annually.

What about cervix?

Anonymous wrote:This thread is absolutely chock full of fake news.
TVS can absolutely spot ovarian cancer before it spreads to other organs. It just cannot distinguish between benign and malignant masses. Hence the need for a secondary blood test which is being developed. Sheesh
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3873201/

That article is from 2013. I’ve been waiting for thirty years for good screening for ovarian cancer. It doesn’t exist yet. I eventually had my ovaries out due to my poor family history.