Anonymous
12/18/2022 23:48
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
DCUM is truly amazing and I'm so grateful for all of this help.
There was a biopsy during the colonoscopy and it was negative for celiac.
Besides the dizziness, fatigue, pain, I shortly after developed yellow nail beds that resulted in a jaundice (that was tested and was a non-dangerous type). Now, I have developed "blue hands". So I get more and more symptoms but less and less answers.
My sister does have Crohn's so that is likely but the GI did not see Crohn's with the colonoscopy, either.
The GI, however, had also heard that AI disorders are triggered about 6 months post-Covid so my onset of symptoms in August was almost to-the-date of my Covid diagnosis in Feb.
If it is Crohn's but I am not diagnosed, how can I even treat it? Do I wait until it gets worse so that I can get diagnosed?
There was a biopsy during the colonoscopy and it was negative for celiac.
Besides the dizziness, fatigue, pain, I shortly after developed yellow nail beds that resulted in a jaundice (that was tested and was a non-dangerous type). Now, I have developed "blue hands". So I get more and more symptoms but less and less answers.
My sister does have Crohn's so that is likely but the GI did not see Crohn's with the colonoscopy, either.
The GI, however, had also heard that AI disorders are triggered about 6 months post-Covid so my onset of symptoms in August was almost to-the-date of my Covid diagnosis in Feb.
If it is Crohn's but I am not diagnosed, how can I even treat it? Do I wait until it gets worse so that I can get diagnosed?
Anonymous
11/06/2022 04:47
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:Anonymous wrote:Anonymous wrote:At this point I assume it’s autoimmune . Did you have CoVID this year ? It can trigger latent autoimmune disorders. Ask for a blood panel to check sedimentation rate, RF factor, ANA, titre, etc. Maybe Chrons or IBS.
Yes, I had Covid in Feb and was sick for an entire month. Please explain a little more.
I then had a booster shot -- Pfizer -- in May.
I'm trying to understand whether the autoimmune will be permanent or will recover naturally?
Many people who have autoimmune disease only find out later in life when something “triggers” it and start experiencing symptoms. Covid is such a shock to the system it is possible that it triggered a dormant autoimmune disease in your system. Your symptoms, including now the fecal blood test, are consistent with autoimmune diseases such as Crohn’s, possibly also IBS. You’ve ruled out so many other possibilities that I am nearly certain at this point that is what you’re dealing with. Since you’re Ashkenazi, you also have a more complex health profile and it would not surprise me at all if you discovered this is an autoimmune disease.
Oh and to add- no, you don’t “recover” as they’re lifelong BUT if you’re diagnosed they can put you on immunosuppressants and biologics that control your symptoms. I believe right now you’re untreated and experiencing an AI flare. Diagnosis will be key. Get the autoimmune blood panel to see your ANA, C-reactive protein, Rheumatoid factor, sedimentation rate. You can order these yourself on walk in labs dot com, go to your nearest Quest labs to get the blood drawn and they’ll send you a report that will allow you to at least see if you’re within or outside a normal range for these things. It is a start at knowing where to go next for diagnosis. I think you need a rheum who works closely with GI doctors.
Anonymous
11/06/2022 04:45
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:Anonymous wrote:At this point I assume it’s autoimmune . Did you have CoVID this year ? It can trigger latent autoimmune disorders. Ask for a blood panel to check sedimentation rate, RF factor, ANA, titre, etc. Maybe Chrons or IBS.
Yes, I had Covid in Feb and was sick for an entire month. Please explain a little more.
I then had a booster shot -- Pfizer -- in May.
I'm trying to understand whether the autoimmune will be permanent or will recover naturally?
Many people who have autoimmune disease only find out later in life when something “triggers” it and start experiencing symptoms. Covid is such a shock to the system it is possible that it triggered a dormant autoimmune disease in your system. Your symptoms, including now the fecal blood test, are consistent with autoimmune diseases such as Crohn’s, possibly also IBS. You’ve ruled out so many other possibilities that I am nearly certain at this point that is what you’re dealing with. Since you’re Ashkenazi, you also have a more complex health profile and it would not surprise me at all if you discovered this is an autoimmune disease.
Anonymous
11/06/2022 00:17
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:OP here. I think I replied to all the newest questions.
Only important update is that fecal blood test was positive and I will need a colonoscopy.
I'm more scared than ever which seems to make the pain worse than ever. I didn't sleep at all last night. I'll update if I get a diagnosis ever.
Please send advice on how to focus at work and home with these health issues and the pain. I cannot afford to lose job now more than ever.
I'd try some of the suggestions here and see if they help:
https://www.everydayhealth.com/hs/crohns-disease-treatment-management/crohns-gut-soothers-pictures/
Anonymous
11/06/2022 00:14
Subject: Re:Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
How soon is your colonoscopy, OP? If not very soon, I'd ask to get on their cancellation list.
This is sounding very suspicious to me for Crohn's disease. Developing inflammatory bowel disease after COVID is apparently a thing. It also happened to my brother-in-law.
https://academic.oup.com/ibdjournal/article/28/6/e76/6438338
FYI, Crohn's disease disproportionately affects the Ashkenazi Jewish population, so you may have already had a genetic susceptibility.
https://www.healthline.com/health/crohns-disease/jewish-ancestry#:~:text=Ashkenazi%20Jews%20(plural%3A%20Ashkenazim),of%20non%2DJewish%20European%20ancestry.
This is sounding very suspicious to me for Crohn's disease. Developing inflammatory bowel disease after COVID is apparently a thing. It also happened to my brother-in-law.
https://academic.oup.com/ibdjournal/article/28/6/e76/6438338
FYI, Crohn's disease disproportionately affects the Ashkenazi Jewish population, so you may have already had a genetic susceptibility.
https://www.healthline.com/health/crohns-disease/jewish-ancestry#:~:text=Ashkenazi%20Jews%20(plural%3A%20Ashkenazim),of%20non%2DJewish%20European%20ancestry.
Anonymous
11/05/2022 18:58
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Visceral manipulation may be helpful- sounds oooky but isn’t.
Try here http://www.dcrolfing.com/visceral-manipulation.html
Try here http://www.dcrolfing.com/visceral-manipulation.html
Anonymous
11/05/2022 18:30
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
This thread is long so I apologize if I missed this being mentioned already. But I have bad right side pain kind of in the area of my ovaries around my hip. It turned out to be sciatica. I had sciatica when I was pregnant and it went down my leg very traditional. I had no idea it could also could go around the groin and lower pelvis area. It’s quite painful.
Anonymous
11/05/2022 18:12
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
OP here. I think I replied to all the newest questions.
Only important update is that fecal blood test was positive and I will need a colonoscopy.
I'm more scared than ever which seems to make the pain worse than ever. I didn't sleep at all last night. I'll update if I get a diagnosis ever.
Please send advice on how to focus at work and home with these health issues and the pain. I cannot afford to lose job now more than ever.
Only important update is that fecal blood test was positive and I will need a colonoscopy.
I'm more scared than ever which seems to make the pain worse than ever. I didn't sleep at all last night. I'll update if I get a diagnosis ever.
Please send advice on how to focus at work and home with these health issues and the pain. I cannot afford to lose job now more than ever.
Anonymous
11/05/2022 18:10
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:Have you seen an acupuncturist?
Yes! I actually did! I went twice for 90 minutes each and nothing. It continued to get worse and the acupuncturist said that I just have a pulled muscle which made no sense.
Anonymous
11/05/2022 18:08
Subject: Re:Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:OP's 48? GI should be recommending a colonoscopy in any event.
I had one 2 years ago. Found polyps but nothing cancerous so they said that the next one is in 3 years (5 if no polyps).
Anonymous
11/05/2022 18:07
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Two months later and I'm still in pain.
Finally got a visit with the GI.
I got a fecal tests and yet more blood tests (because bilirubin is high) as a precaution but GI said that with a clear CT scan, it's not likely to be anything and doesn't want to do a colonoscopy.
Gi put me on 1800mg of Advil per day meanwhile to deal with the pain at least. I'm grateful for that -- I haven't been sleeping in months but didn't want to take anything before talking to the GI.
Gi thinks it's just an inflammation because CT scan was clear and Advil will resolve it if it is that simple so after 2 months of pain, bloating, nausea, constipation, diarrhea, and worrying, I should have just taken Advil. That's a lesson.
If Advil doesn't resolve it, GI is going to do a follow-up visit but said that I'm likely to end up with a colonoscopy.
This is total nonsense. Inflammation in the gut is not treated via Advil. The cause of the inflammation matters. You need a different GI and you need to be scoped.
Yeah, rare GI doctor who gives a person high dose NSAIDS which can cause ulcers, etc. Get the scopes. Have you been scoped before? if not, definitely get it, you are past due.
Also, any excuse you have to get a hysterectomy including ovaries, jump at it. I have a family history of ovarian and was advised if it's ever a treatment option for something, grab it and ask for ovaries to be included. They are nothing but trouble for people with our fmaily history once done with childbearing.
So because of history of ovarian cancer in my family, it's been offered multiple times -- every year since I turned 45. The issue is that it raises the risk of colon cancer which also has a family history. It's not black and white.
I did remove fallopian tubes which is the source of many cancers.
Anonymous
11/05/2022 18:05
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:At this point I assume it’s autoimmune . Did you have CoVID this year ? It can trigger latent autoimmune disorders. Ask for a blood panel to check sedimentation rate, RF factor, ANA, titre, etc. Maybe Chrons or IBS.
Yes, I had Covid in Feb and was sick for an entire month. Please explain a little more.
I then had a booster shot -- Pfizer -- in May.
I'm trying to understand whether the autoimmune will be permanent or will recover naturally?
Anonymous
11/05/2022 18:03
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Two months later and I'm still in pain.
Finally got a visit with the GI.
I got a fecal tests and yet more blood tests (because bilirubin is high) as a precaution but GI said that with a clear CT scan, it's not likely to be anything and doesn't want to do a colonoscopy.
Gi put me on 1800mg of Advil per day meanwhile to deal with the pain at least. I'm grateful for that -- I haven't been sleeping in months but didn't want to take anything before talking to the GI.
Gi thinks it's just an inflammation because CT scan was clear and Advil will resolve it if it is that simple so after 2 months of pain, bloating, nausea, constipation, diarrhea, and worrying, I should have just taken Advil. That's a lesson.
If Advil doesn't resolve it, GI is going to do a follow-up visit but said that I'm likely to end up with a colonoscopy.
This is total nonsense. Inflammation in the gut is not treated via Advil. The cause of the inflammation matters. You need a different GI and you need to be scoped.
Agree! I almost cannot believe what I read above! OP, please get a second opinion.
Gi thought it could be an inflamed bone etc. Not gut inflammation. It could be but the nausea and bloating and constipation is throwing her off. Plus my bilirubin is high and the blood test came back positive.
Anyway, it was worth a try because I just had a colonoscopy 2 years ago so GI didn't want to do it again so soon if it wasn't necessary.
Anonymous
11/05/2022 18:00
Subject: Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:Has stomach cancer been ruled out? Sorry to suggest it, but my mom had it. She was feeling full too and also vomited and burped often. It came on quite suddenly though bloating had been an issue for a long time.
So the pain is in my right lower quadrant. GI said that's not where my stomach is.
More likely colon issues, according to the GI.
Anonymous
11/05/2022 17:59
Subject: Re:Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.
Anonymous wrote:Can you pay for a Prenuvo scan? It might give you peace of mind while you figure this out.
https://www.prenuvo.com/locations/
Happy to pay but I got a CT scan and it's normal.