Anonymous wrote:Anonymous wrote:We knew DS’s medication, Focalin XR, was causing his anxiety within a week of getting off the med. He was on Focalin for about three yrs at that point from 7 yrs old to 10.
DS has ASD/ADHD and he is a tournament chess player since he was 8 in the top 100 list in the USA for his age.
The anxiety started last October because he started losing on time at chess tournaments which he never did prior and steadily got worse: by Dec, he was losing on time a lot afraid to make the wrong move.
We took DS off his medication in May and it was like pushing a switch. DS started playing chess way too fast making blunders/silly mistakes which he hasn’t done since he was a beginner. Literally like a different kid.
Within three days of being off the med, DS was having reciprocal conversations with his peers at his initiative without prompting. Stopped stimming - he would stare at his hand while moving them palm up, palm down and zoning out - everyone had thought these were stims from his ASD but apparently not because he no longer did this once off the Focalin. He stopped being fully independent in writing at school, needs a lot more assistance and prompts to stay on task academically including in math - which he never did before on the Focalin.
DS is not on any medication for the summer. DS is over his time issue in chess: it took a few months but he managed to slow down without medication. He is going to Auburn this fall and we are going to see if he needs go back on ADHD medication once School starts.
Try going off the ADHD med for the summer, you maybe surprised. We were.
Wanted to add that DS does not have anxiety according to his two neuropsych evaluations at 7 and 10 (he got tested not on any medication both times). Also, we took DS off his ADHD meds at his insistence. Everyone, his psychiatrist, neuropsych, teachers, etc and we his parents were against going off it, but now am glad to have listened to DS. DS has ADHD, combined type, and ASD and tests above grade level academically across the board. We are hoping that small class size will be enough but if not, DS will go back on medication just not Focalin.
Anonymous wrote:DS is 8 and has been on Adderall for a couple years with good results. At some point last year, he started having some greater irritability and defiance, and some other quirks, which are probably anxiety related. We know that stimulants can bring out underlying anxiety in predisposed kids so we're wondering if the Adderall is the trigger here, or if it's just plain old anxiety.
We've tried some other stimulants, but the anxiety was the same (and those other meds were less of a good fit for DS's adhd). I hate to have to spend 6 months trying all the stimulants at different dosages, potentially chasing a perfect med that doesn't exist (i.e., what if all stimulants cause the anxiety? Or what if the anxiety isn't stimulant-caused? In either case, no stimulant will do better for DS than Adderall). We could try intuniv, but it takes a while to kick in.
Instead of testing every other med, it seems like the easier solution is to take DS off Adderall for a period of time and see what happens. We've tried for a weekend, and think we still seen the anxiety. Maybe we need to try for longer? How long does he need to be off all stimulants before we can tell if the anxiety is triggered by them versus just regular anxiety?
Anonymous wrote:We knew DS’s medication, Focalin XR, was causing his anxiety within a week of getting off the med. He was on Focalin for about three yrs at that point from 7 yrs old to 10.
DS has ASD/ADHD and he is a tournament chess player since he was 8 in the top 100 list in the USA for his age.
The anxiety started last October because he started losing on time at chess tournaments which he never did prior and steadily got worse: by Dec, he was losing on time a lot afraid to make the wrong move.
We took DS off his medication in May and it was like pushing a switch. DS started playing chess way too fast making blunders/silly mistakes which he hasn’t done since he was a beginner. Literally like a different kid.
Within three days of being off the med, DS was having reciprocal conversations with his peers at his initiative without prompting. Stopped stimming - he would stare at his hand while moving them palm up, palm down and zoning out - everyone had thought these were stims from his ASD but apparently not because he no longer did this once off the Focalin. He stopped being fully independent in writing at school, needs a lot more assistance and prompts to stay on task academically including in math - which he never did before on the Focalin.
DS is not on any medication for the summer. DS is over his time issue in chess: it took a few months but he managed to slow down without medication. He is going to Auburn this fall and we are going to see if he needs go back on ADHD medication once School starts.
Try going off the ADHD med for the summer, you maybe surprised. We were.
Anonymous wrote:Anonymous wrote:Anonymous wrote:You need to talk to your psychiatrist and if you haven't already, take him to a psychologist for a differential diagnosis to tease out the anxiety and ADHD.
Many, many children have both, and their treatment needs to take both issues into account.
Honest question: how would the psychologist tease those out? And how would that help us understand if it's med related?
Going off meds all summer not an option because he needs them to attend morning camp![]()
Stimulants are not going to create anxiety where it doesn't already exist to a certain degree. They can exacerbate anxiety though.
Children change -- a child that doesn't have anxiety at 6 may well develop it by 8 or 12 or 13. And a child with ADHD is always at a higher risk.
Anonymous wrote:Anonymous wrote:You need to talk to your psychiatrist and if you haven't already, take him to a psychologist for a differential diagnosis to tease out the anxiety and ADHD.
Many, many children have both, and their treatment needs to take both issues into account.
Honest question: how would the psychologist tease those out? And how would that help us understand if it's med related?
Going off meds all summer not an option because he needs them to attend morning camp![]()
Anonymous wrote:Anonymous wrote:You need to talk to your psychiatrist and if you haven't already, take him to a psychologist for a differential diagnosis to tease out the anxiety and ADHD.
Many, many children have both, and their treatment needs to take both issues into account.
Honest question: how would the psychologist tease those out? And how would that help us understand if it's med related?
Going off meds all summer not an option because he needs them to attend morning camp![]()
Anonymous wrote:You need to talk to your psychiatrist and if you haven't already, take him to a psychologist for a differential diagnosis to tease out the anxiety and ADHD.
Many, many children have both, and their treatment needs to take both issues into account.
Anonymous wrote:DS is 8 and has been on Adderall for a couple years with good results. At some point last year, he started having some greater irritability and defiance, and some other quirks, which are probably anxiety related. We know that stimulants can bring out underlying anxiety in predisposed kids so we're wondering if the Adderall is the trigger here, or if it's just plain old anxiety.
We've tried some other stimulants, but the anxiety was the same (and those other meds were less of a good fit for DS's adhd). I hate to have to spend 6 months trying all the stimulants at different dosages, potentially chasing a perfect med that doesn't exist (i.e., what if all stimulants cause the anxiety? Or what if the anxiety isn't stimulant-caused? In either case, no stimulant will do better for DS than Adderall). We could try intuniv, but it takes a while to kick in.
Instead of testing every other med, it seems like the easier solution is to take DS off Adderall for a period of time and see what happens. We've tried for a weekend, and think we still seen the anxiety. Maybe we need to try for longer? How long does he need to be off all stimulants before we can tell if the anxiety is triggered by them versus just regular anxiety?