op: If we are approved into the program, her timesheet will go to an agency that will pay her. This would mean that her paycheck from us would go down. I think she would be resentful. Even though the total would be the same.

If you used the program, then would you use the CD PAP to pay the nanny? I'm not following why the nanny would expect to be paid more just because some of her pay was subsidized by Medicaid.

I know of a few families who get child care/aides paid for by Medicaid, but the rate of pay is quite low so they have trouble finding caring, qualified people to do this work. If you've found someone reliable to provide care for your son (i.e., the nanny) maybe it would be worth paying her a little more if you get a partial reimbursement of her cost from Medicaid.

Anonymous wrote:

Anonymous wrote:I'm in NY State. There's a program called CD PAP that will pay someone to watch my kid. I train the person. My son has a G tube and seizures. I pay a FT nanny, and I work FT. (I took off 4 months when his epilepsy was very severe). I am not sure if this program will be a good idea for my family. Kind of worried the nanny will start to expect more money, or she will go work for other families through the agency while my son is at school.

How do you pay a FT nanny if you're on Medicaid?

New poster. Many states provide medicaid do severely disabled children regardless of income.

Anonymous wrote:

Anonymous wrote:Medicaid is for my son's disability, unrelated to our income. We don't receive SSI or any disability payments, those would be based on our income.

So you do or don't receive Medicaid now? Because you must be receiving Medicaid to do CDPAP. http://cdpapny.org/

Not the OP, but every state has a waiver program where children with certain disabilities qualify for medicaid based on their own income (presumably 0) rather than their family''s income. Different states have different rules for eligibility; some states have a waiting list.

Anonymous wrote:op: I don't want to rock the boat with my nanny. She's been with us 7 years, has learned about the ketogenic diet, and is very good with my son. She gets him to eat by mouth better than we do, often.

PP here. That makes sense. I guess you could apply for it, see if you qualify, see how much they would even cover, and then decide if it's worth it. It sounds like she is a valuable asset.

op: I don't want to rock the boat with my nanny. She's been with us 7 years, has learned about the ketogenic diet, and is very good with my son. She gets him to eat by mouth better than we do, often.

Anonymous wrote:op: Sorry, some of our home care services (OT, speech/feeding therapy) are covered by Medicaid.

I'm PP that asked about Medicaid. I'm a social worker in NY. I would say give it a try and see if you qualify. You might not qualify for an MLTC, but that might not matter.

If it works out and the nanny does the things you're worried about, fire her and find a new one. I wouldn't let the nanny issue be the decision-maker for CDPAP.

op: Sorry, some of our home care services (OT, speech/feeding therapy) are covered by Medicaid.

We receive diapers (pull-ups) in the mail paid for by Medicaid. This is the only Medicaid benefit we currently receive.

Anonymous wrote:Medicaid is for my son's disability, unrelated to our income. We don't receive SSI or any disability payments, those would be based on our income.

So you do or don't receive Medicaid now? Because you must be receiving Medicaid to do CDPAP. http://cdpapny.org/

op: When our Home Care coordinator started telling me about the program, I said I wasn't interested. Now I'm wondering if I'm just being foolish. She seems to think so.

Medicaid is for my son's disability, unrelated to our income. We don't receive SSI or any disability payments, those would be based on our income.

You want childcare or nursing care? Why should the taxpayers cover childcare when you can clearly swing a nanny?

Anonymous wrote:I'm in NY State. There's a program called CD PAP that will pay someone to watch my kid. I train the person. My son has a G tube and seizures. I pay a FT nanny, and I work FT. (I took off 4 months when his epilepsy was very severe). I am not sure if this program will be a good idea for my family. Kind of worried the nanny will start to expect more money, or she will go work for other families through the agency while my son is at school.

How do you pay a FT nanny if you're on Medicaid?

I'm in NY State. There's a program called CD PAP that will pay someone to watch my kid. I train the person. My son has a G tube and seizures. I pay a FT nanny, and I work FT. (I took off 4 months when his epilepsy was very severe). I am not sure if this program will be a good idea for my family. Kind of worried the nanny will start to expect more money, or she will go work for other families through the agency while my son is at school.