Anonymous wrote:Anonymous wrote:
NP here. I hate to say it, but unfortunately even if this offers a more accurate diagnosis, there isn't much to be done about it. I've been to three orthopedists and found myself getting hooked on pain meds (finally off now, thankfully). My options seem to be: live with the pain or have surgery -- which no one who's had it recommends.
If you have what OP is complaining about, one of those orthopedists should have referred you to a rheumatologist.
Pain pills in general are not good for a chronic pain condition, though a very occasional pill to get you through a flare is okay. There are medications that I described earlier. In addition you can take steroids to help through a rough patch or get steroid shots. And if your case is very recalcitrant, there are the anti-TNF inhibitors. There is also exercise. Surgery is not really recommended except in some highly specialized circumstances.
Treatments are improving every year. PP--please do not give up. Please take yourself to a good rheumatologist.
Anonymous wrote:Just don't let anyone prescribe you opioids.
Anonymous wrote:Anonymous wrote:OP, have you considered that this could be inflammatory and not mechanical back pain?
A few questions:
How long has this been going on? More than three months? Yes.
Are you under 40? Yes
Are you stiff for a half hour or so in the morning and feel better as the day goes on (not including night time)? Painful in am and eases with meds.
In general does it feel better with movement? Sometimes walking for 30 minutes helps.
You mention buttocks pain--does it tend to alternate between the left and right side? Seems even to me. Alternates when sitting.
Yes answers to these questions would point to inflammatory back pain caused by spinal arthritis.
Other symptoms that can appear: pain from time to time in your ribs; pain in your heel, shoulder, neck; plantar fascitis; occasional unexplained low fevers. I have had costcochondritis and shoulder pain. Fevers? I dunno. I run warm.
You would see a rheumatologist for this. But, a note of caution. Some of them haven't kept up in this field and mistakenly believe this is not a women's disorder and that you must test positive on a certain genetic test. Many, many women with this get a wrong diagnosis of fibromyalgia.
To answer your questions, see above. Hmm... Can you recommend a doctor by name?
Anonymous wrote:Anonymous wrote:
NP here. I hate to say it, but unfortunately even if this offers a more accurate diagnosis, there isn't much to be done about it. I've been to three orthopedists and found myself getting hooked on pain meds (finally off now, thankfully). My options seem to be: live with the pain or have surgery -- which no one who's had it recommends.
If you have what OP is complaining about, one of those orthopedists should have referred you to a rheumatologist.
Pain pills in general are not good for a chronic pain condition, though a very occasional pill to get you through a flare is okay. There are medications that I described earlier. In addition you can take steroids to help through a rough patch or get steroid shots. And if your case is very recalcitrant, there are the anti-TNF inhibitors. There is also exercise. Surgery is not really recommended except in some highly specialized circumstances.
Treatments are improving every year. PP--please do not give up. Please take yourself to a good rheumatologist.
Anonymous wrote:Anonymous wrote:Wow - thank you for your thorough response. It does seem inflammatory because ibuprofen really does take the pain away almost completely, regardless of whether I stretch or not.
Is there anything that causes it? I used to exercise regularly and haven't been good about this. I have a relatively active lifestyle but have been more sedentary than ever the last 2 years or so and that has brought back pain.
So sorry to tell you that spinal arthritis (spondyloarthritis, axial in your case) is an inherited condition and there is no cure. However, there is treatment. A rheumatologist can put you on prescription NSAIDs that are kinder to your stomach. Some people do fine with that combined with exercise, but others go on to other drugs like methotrexate and anti-TNF inhibitors (treatments somewhat similar to what is done for rheumatoid arthritis).
Exercise is very, very important to managing the condition. Swimming is an especially good exercise. My child has this and manages entirely with exercise for now. I am going broke with personal trainer bills! But before when trying to touch toes, her fingertips a good six inches short of her knees--now she can touch down to her ankles.
It also is essential to get a good rheumatologist. Run, do not walk, from any rheumatologist who tells you that you have fibromyalgia.
Anonymous wrote:Wow - thank you for your thorough response. It does seem inflammatory because ibuprofen really does take the pain away almost completely, regardless of whether I stretch or not.
Is there anything that causes it? I used to exercise regularly and haven't been good about this. I have a relatively active lifestyle but have been more sedentary than ever the last 2 years or so and that has brought back pain.
Anonymous wrote:OP, have you considered that this could be inflammatory and not mechanical back pain?
A few questions:
How long has this been going on? More than three months?
Are you under 40?
Are you stiff for a half hour or so in the morning and feel better as the day goes on (not including night time)?
In general does it feel better with movement?
You mention buttocks pain--does it tend to alternate between the left and right side?
Yes answers to these questions would point to inflammatory back pain caused by spinal arthritis.
Other symptoms that can appear: pain from time to time in your ribs; pain in your heel, shoulder, neck; plantar fascitis; occasional unexplained low fevers.
You would see a rheumatologist for this. But, a note of caution. Some of them haven't kept up in this field and mistakenly believe this is not a women's disorder and that you must test positive on a certain genetic test. Many, many women with this get a wrong diagnosis of fibromyalgia.
Anonymous wrote:OP, have you considered that this could be inflammatory and not mechanical back pain?
A few questions:
How long has this been going on? More than three months? Yes.
Are you under 40? Yes
Are you stiff for a half hour or so in the morning and feel better as the day goes on (not including night time)? Painful in am and eases with meds.
In general does it feel better with movement? Sometimes walking for 30 minutes helps.
You mention buttocks pain--does it tend to alternate between the left and right side? Seems even to me. Alternates when sitting.
Yes answers to these questions would point to inflammatory back pain caused by spinal arthritis.
Other symptoms that can appear: pain from time to time in your ribs; pain in your heel, shoulder, neck; plantar fascitis; occasional unexplained low fevers. I have had costcochondritis and shoulder pain. Fevers? I dunno. I run warm.
You would see a rheumatologist for this. But, a note of caution. Some of them haven't kept up in this field and mistakenly believe this is not a women's disorder and that you must test positive on a certain genetic test. Many, many women with this get a wrong diagnosis of fibromyalgia.