Anonymous wrote:When my child received a concussion, I gave the school the doctor notes including an ACE (Acute Concussion Evaluation) Care Plan that described her need to stay home for now, then resume 1/2 days after she is symptom free. Many hours of instructional time has been lost but all the school cares about is the paperwork with the "Return to Play" protocol. Seriously? My child is not being educated nor is anyone helping to track and collect missing assignments but they are hounding me about the protocol of how to return to school sports?
It seems that our school is well educated on the dangers of returning kids to sports, but fall short on having a clear and concise protocol on how to help kids academically that are experiencing a long term medical condition that interferes with their ability to attend school. Does MCPS have a protocol on how to academically support kids with concussions? Are there services my child should be receiving?
Hi OP, my child had a serious concussion and was in and out of school for the better part of 6 months. Still, my DC was able to continue her studies and finished all her classes with good grades.
I agree completely with you that school systems only just now have a plan in place for dealing with concussions from a sports/PE perspective (i.e. return to physical activity) and still have NO system-wide guidance for the return of students to cognitive activity. I think school teachers know almost nothing about the cognitive problems concussed students may face. CDC has some good materials for teachers and school officials, which we gave to all DD's teachers. But, you know the drill, some teachers are great and read the material and adjusted. Others were terrible, and thought my DD was faking (even though she had been a straight A student and really had no reason to "fake") or thought that accommodating my DD was somehow unfair to others, or thought that our DD simply wasn't smart enough anymore to continue in accelerated classes, or just thought that DD was extra work they didn't want to do. Some teachers took the medical directive to "limit unnecessary work" as a personal insult. We had one teacher tell us in a 504 meeting that nothing she assigned was unnecessary and therefore she couldn't excuse DD from anything. Of course, we thought having to answer questions in writing at the end of a textbook chapter was unnecessary if DD read the chapter, but the teacher thought it "necessary". <insert eye roll here>
What we didn't get, that we should've asked for, is a clear case manager for DD's academics. That fell on me (DD wasn't able to do at all) -- to collect and track all her assignments. It would've been more effective if she had been provided a special education resource person to liaise with her and the teachers and track everything. A counselor was assigned as the 504 meeting chair, but she was totally ineffective as any kind of case manager, probably because she did not have the right background.
We are in MCPS, and TBH, our experience was a nightmare. We fought often with teachers and school administrators. We hired an educational advocate, then an attorney, then wrote letters to the head of special education and the countywide 504 supervisor. Here is a short version of what we learned:
1) On the concussion recovery -- For us, the serious concussion required careful management of cognitive activity. DD wasn't even able to attend a full day of school without getting headaches and feeling overwhelmed and exhausted. What worked for us was to pull her out of school entirely for a period of time. At first, she spent a solid week of absolutely no cognitive activity -- no friends to visit, no TV, no reading, no music, no trips outside the house. Then, we slowly returned her to academic work, having her work at home on material the teachers sent home. In this way, she could work for 20 mins and then rest, and we could expand the amount of time that she could work. Also, frankly, she could make up more work faster at home, than trying to go back to school. Then we returned her to school one class at a time. By the end of 6 months, she was back to school full time with accommodations such as extra-time, frequent breaks, ability to change seating in the classroom to manage sensory symptoms, etc. You should do some reading and talk with your doctor about managing cognitive activity. At the time our DD was concussed, the medical recommendation called for this kind of strict rest period as part of the recovery. But, more recent studies (by DeGioia from the Children's SCORE clinic) suggest that the strict cognitive rest might not be the most beneficial way to recover.
2) On the law -- We used the ACE plan (any medical note from a doctor will suffice) to ask for a 504 plan from the school. This is your right. Disabled students are entitled to accommodation under IDEA, Section 504 of the Rehabilitation Act. and the Americans with Disabilities Act. For reasons I still don't understand, our school fought us on accommodating DD. She was in a magnet program, and at first, they tried to convince us that she just had to go back to her homeschool. For many reasons, we didn't think that was appropriate. The school dragged feet on holding a 504 meeting. Teachers refused to implement the 504. Eventually, we gave up and asked for Interim Instructional Services for awhile, but the teacher often didn't show up and when she did, she wasn't qualified to teach some of the coursework (magnet classes and Algebra, particularly). I tutored DC on my own, I hired an Algebra tutor who was able to quickly get DD back on track in math. We also hired an educational advocate, and then an attorney. Finally, I wrote a letter to the Head of Special Education and the Section 504 Supervisor. These last two people were the most effective recourse. As supervisors, they understood that the principal had F'd up massively and that we could sue. Literally, the day after I wrote our letter, the principal came to me and reversed herself and anything we asked for was provided. In MCPS, I think the Director of Special Ed has changed, but the Section 504 supervisor is the same, Steve Neff, and you can find his email on the MCPS website. FWIW, our DD's concussion never got so bad that we thought she needed "specialized instruction," so we never asked for an IEP, but that was something we could've accessed if we thought it was necessary.
3) The specific kinds of accommodations DD got -- (in no particular order) -- Interim Instructional Services, cutting some of the workload, ability to reschedule work, frequent breaks, extra time, ability to change seating in the classroom, reduced testing (I pulled her from PARCC and MAP tests and other quizzes and tests were cut from class), ability to wear sunglasses or a baseball hat to manage sensory overload, flash pass to the nurse when DD was feeling bad, use of a computer for writing, deadline extensions, ability to get and turn in materials electronically, ability to return to school 1 class at a time while still maintaining IIS for the other classes, ability to dictate answers instead of writing, etc. Eventually, the school even offered to allow DD to finish work over the summer, but we really wanted to have a clear end to the whole fiasco and a clean summer to recuperate.
I think the main lesson I learned from all this was that I should have either gone over the principal's head more quickly or I should have filed a complaint or suit more quickly. FWIW, filing a state complaint is easy to do and forces MCPS to "examine" their system that you have complained about, meanwhile you are protected from retaliation (by law). Honestly, it would have been a service to the school system if I had filed a complaint.... this is something they really need to figure out.