Anonymous wrote:PP, with Ehlers Danlos. Have you ever suffered from incontinence? Any connective tissue issues?

PP here. Connective tissue and joint problems are a hallmark of ED. I have not yet had incontinence but as the poster below mentions, it could happen.

Typically, doctors who deal with dysautonomia are cardiologists. Some neurologists have expertise as well.

What specific problems are you seeing and what is the age group and gender of the person in question?

What kind of doctor/specialist diagnoses dysautomnia?

Anonymous wrote:PP, with Ehlers Danlos. Have you ever suffered from incontinence? Any connective tissue issues?

People with ED are susceptible to gstroparesis, which can cause various GI complaints like early fullness, nausea and vomiting. it can also cause consipation, which can lead to urinary incontinence.

Beyond that, stress incontinence can be a symptom of dysautonomia.

PP, with Ehlers Danlos. Have you ever suffered from incontinence? Any connective tissue issues?

Yes, I have a disorder - Ehlers-Danlos - that involves autonomic dysfunction. For me, it involves medication to stabilize my blood pressure, a tendency to faint or feel faint, a craving for salt, and abnormal kidney results that have not yet required intervention.

There is a wide range, though, from even milder to much more severe. Is there a particular diagnosis that is in play?

Anonymous wrote:Not autoimmune. Autonomic. This is the part of the nervous system that deals with automatic functions (sweating, urination, blood pressure)

My apologies -I mis-read the post.

I have a good friend who's DD has POTS.

POTS is perhaps the most common form of dysautonomia and I know there have been posters here and on the SN and older children boards that are dealing with this in their children.

Are you interested in an older age group?

Not autoimmune. Autonomic. This is the part of the nervous system that deals with automatic functions (sweating, urination, blood pressure)

Hi OP -

I posted on this form about this topic last week.

There are numerous Auto Immune disorders. Is there one in particular you're wondering about?

If so, please describe how it went. Thank you.