Anonymous wrote:Google Pulmonary Hypertension Association. If there's a possibility that you have PH, get checked out by a PH specialist soon. it's a really serious disease and you would need care from a doctor who really knows ph, which is key to preventing the disease from progressing. Ph is often misdiagnosed and sometimes other conditions are misdiagnosed as ph, so it's really important to see a ph specialist for an accurate diagnosis so you receive appropriate treatment asap. Pha also has support groups that can be really helpful. Hang in there, OP.
Yes agree with all this OP- Nargues Weir at INOVA is excellent. They have a PAH specialty group over there- would try to get in soon. You can also tryHopkins- blanking on names for their group.