OP, I feel for you. I have a FTT child who eventually gained enough weight to start ADHD medication when he was 8. The FTT years were tough, but adding medication was, in some ways, worse than having a baby in the house. My son would eat in the morning, but, I had to sit with him - and I actually had to sit with him and sometimes feed him all the time. Then he went all day until about 8 pm before he'd put a single other thing in his mouth. He either never felt hungry or didn't respond to the feeling of hunger. From 8 on, into the middle of the night, I'd be feeding him. On top of this, he hated the feeling of food in his mouth and there were few foods that he would eat. There was no joy in food in our house. At one point, his doctor told me that if my son would eat, I had to respond, no matter when it happened, day or night. So, when my son woke me during the night, I had to get up and make food. If my son had lost weight, he would have had to give up the medication, and he was seriously disfunctional without it. So, it was really a high pressure situation for me to keep weight on.
Good luck.