Anonymous
09/11/2014 22:00
Subject: Every specialist thinks my dd is fine.
21:40 again. If you have not done so, I would take your DD for ADOS testing. It is the gold standard for diagnosing ASD better than a full neuropsych eval and can tease out the kids who are at the border.
It's obvious your daughter needs an IEP and services/supports to help her social/communication issues. Also, if her previous evals did not include teacher input and/or observation at school it's possible that they did not fully weigh her social issues. ASD/Asperger's in girls are notoriously underdiagnosed.
It's obvious your daughter needs an IEP and services/supports to help her social/communication issues. Also, if her previous evals did not include teacher input and/or observation at school it's possible that they did not fully weigh her social issues. ASD/Asperger's in girls are notoriously underdiagnosed.
Anonymous
09/11/2014 21:40
Subject: Re:Every specialist thinks my dd is fine.
Anonymous wrote:Anonymous wrote:What kind of testing has she had? What kind of specialists have you taken her to?
She had a major major neuo-eval and they said she is not quite on the spectrum. The problem is that they don't see/experience what I do. For me it's like living with a robot. Everyf.......thing she does is without emotion. I really don't know what to do anymore.
She can have lots of autistic traits yet not have enough to make it on the spectrum. Has she had ADOS/ADR-I testing? Part of this also includes teachers input. But there has to be a bright line cut off somewhere. My kid made it on the spectrum by 1 point on ADOS/ADI-R.
You can still provide your child with pragmatic speech and social skills classes.
Anonymous
09/11/2014 21:34
Subject: Re:Every specialist thinks my dd is fine.
Anonymous wrote:Anonymous wrote:What kind of testing has she had? What kind of specialists have you taken her to?
She had a major major neuo-eval and they said she is not quite on the spectrum. The problem is that they don't see/experience what I do. For me it's like living with a robot. Everyf.......thing she does is without emotion. I really don't know what to do anymore.
Have they observed her in the classroom, done the teacher and parent questionnaires?
Anonymous
09/11/2014 21:34
Subject: Re:Every specialist thinks my dd is fine.
Anonymous wrote:The early reading is called hyperlexia. Not everyone who is hyperlexic is on the spectrum. Your DD may have Non-Verbal Learning Disorder. It's pretty rare, and some are hyperlexic:
http://www.ldonline.org/article/6114/
Whether or not she has NV LD or any LD, you may want to think about enrolling her in a social skills group. Social skills are exactly that skills that need practice. Some kids come to socializing naturally and others need a little help. One-on-one play dates will also help her practice her social skills.
There's a good checklist on how to have a successful play date in the back of this book:
http://www.amazon.com/Its-Much-Work-Your-Friend/dp/0743254651/ref=sr_1_1?s=books&ie=UTF8&qid=1410484534&sr=1-1&keywords=it%27s+so+much+work+to+be+your+friend
Not all early readers are hyperlexic - hyperlexia means they can "read" perfectly but not understand what they are reading. If they can comprehend what they read, it's not hyperlexia.
Anonymous
09/11/2014 21:24
Subject: Every specialist thinks my dd is fine.
Anonymous wrote:Is she a psychopath? My cousin is, although to everyone's best knowledge has not exhibited any dangerous traits. Just no emotion, no understanding others emotions, etc. Her parents were very serious about explaining right and wrong, even if she couldn't understand why doing something wrong to someone would hurt them. Her parents have been really invested in her which I think is a big reason why she is able to function so well in society
I really doubt this is the case.
OP's DD sounds more like a mix of autism phenotypes (aloof and rigid):
http://musingsofanaspie.com/2013/01/15/the-broad-autism-phenotype-questionnaire/
Anonymous
09/11/2014 21:19
Subject: Every specialist thinks my dd is fine.
Is she a psychopath? My cousin is, although to everyone's best knowledge has not exhibited any dangerous traits. Just no emotion, no understanding others emotions, etc. Her parents were very serious about explaining right and wrong, even if she couldn't understand why doing something wrong to someone would hurt them. Her parents have been really invested in her which I think is a big reason why she is able to function so well in society
Anonymous
09/11/2014 21:18
Subject: Every specialist thinks my dd is fine.
Can you get feedback from teachers, since they spend a lot of time observing her, and see plenty of kids? They could give you a feel for whether what you are seeing is well out of the ordinary or not. Is there a counsellor at the school who could observe?
Don't forget that all kids are quirky in their own way. They often grow into themselves. Maybe you're putting a lot of pressure on the emotional stuff - I know my mom did and I learned to avoid it as it made me feel uncomfortable.
Don't forget that all kids are quirky in their own way. They often grow into themselves. Maybe you're putting a lot of pressure on the emotional stuff - I know my mom did and I learned to avoid it as it made me feel uncomfortable.
Anonymous
09/11/2014 21:15
Subject: Re:Every specialist thinks my dd is fine.
The early reading is called hyperlexia. Not everyone who is hyperlexic is on the spectrum. Your DD may have Non-Verbal Learning Disorder. It's pretty rare, and some are hyperlexic:
http://www.ldonline.org/article/6114/
Whether or not she has NV LD or any LD, you may want to think about enrolling her in a social skills group. Social skills are exactly that skills that need practice. Some kids come to socializing naturally and others need a little help. One-on-one play dates will also help her practice her social skills.
There's a good checklist on how to have a successful play date in the back of this book:
http://www.amazon.com/Its-Much-Work-Your-Friend/dp/0743254651/ref=sr_1_1?s=books&ie=UTF8&qid=1410484534&sr=1-1&keywords=it%27s+so+much+work+to+be+your+friend
http://www.ldonline.org/article/6114/
Whether or not she has NV LD or any LD, you may want to think about enrolling her in a social skills group. Social skills are exactly that skills that need practice. Some kids come to socializing naturally and others need a little help. One-on-one play dates will also help her practice her social skills.
There's a good checklist on how to have a successful play date in the back of this book:
http://www.amazon.com/Its-Much-Work-Your-Friend/dp/0743254651/ref=sr_1_1?s=books&ie=UTF8&qid=1410484534&sr=1-1&keywords=it%27s+so+much+work+to+be+your+friend
Anonymous
09/11/2014 20:59
Subject: Every specialist thinks my dd is fine.
Anonymous wrote:Just accept that she's quirky. Does she have friends? How does she relate to her peers? If she doesn't then maybe get therapy for her- speech therapist, psych, social skills group, etc. you may have to pay for it out of pocket if she doesn't have a diagnosis but it does sound like she may have a pragmatic language disorder.[/quote
no she does not have any friends. She tries to control everything. Say they are playing "astronauts" then she has to pick rocks to represent the planets and draw the solar system, milky way and is very detailed. God forbid a kid does not follow HER rules. Everything she does has to represent the real world. No imagination what so ever is allowed on her part or the other kids part.
Anonymous
09/11/2014 20:57
Subject: Every specialist thinks my dd is fine.
Anonymous wrote:Um, see a therapist for yourself so you can learn to support and accept your daughter for who she is? And if you think she's has social skills to work on, I think there are groups and approaches to that that don't require any sort of diagnosis. Personalities are different. It's not always a disorder.
When everybody tells you that your kid is fine. But you as the mother know that something is wrong how do you get help. Even the groups you suggest will reject you because your kid looks normal, acts normal in public but is a total robot in private then what do you do.
Anonymous
09/11/2014 20:56
Subject: Every specialist thinks my dd is fine.
Just accept that she's quirky. Does she have friends? How does she relate to her peers? If she doesn't then maybe get therapy for her- speech therapist, psych, social skills group, etc. you may have to pay for it out of pocket if she doesn't have a diagnosis but it does sound like she may have a pragmatic language disorder.
Anonymous
09/11/2014 20:53
Subject: Re:Every specialist thinks my dd is fine.
Anonymous wrote:What kind of testing has she had? What kind of specialists have you taken her to?
She had a major major neuo-eval and they said she is not quite on the spectrum. The problem is that they don't see/experience what I do. For me it's like living with a robot. Everyf.......thing she does is without emotion. I really don't know what to do anymore.
Anonymous
09/11/2014 20:50
Subject: Every specialist thinks my dd is fine.
Um, see a therapist for yourself so you can learn to support and accept your daughter for who she is? And if you think she's has social skills to work on, I think there are groups and approaches to that that don't require any sort of diagnosis. Personalities are different. It's not always a disorder.
Anonymous
09/11/2014 20:46
Subject: Re:Every specialist thinks my dd is fine.
What kind of testing has she had? What kind of specialists have you taken her to?
Anonymous
09/11/2014 20:39
Subject: Every specialist thinks my dd is fine.
My dd started reading simple baby books at 18 months, by 2 1/2 she was reading early reader chapter books. Now almost 6 she can read books like pillars of the earth with different character voices. But I gotta tell you she is the most awkward kid in her class. Don't get me wrong she is very smart, advance vocabulary and you only have to explain something to her once and she gets it. She is off the charts in everything except anything that is social. Think Sheldon (the Big Bang theory). She cannot relate to other people at ALL. I give her a hug and she does not hug me back. She only recently learned to say I love you too after I've said it to her. Before that it was ok. She has no problem telling someone that they are (and I'm putting it lightly) not easy on the eyes. Without emotions. She rarely cries unless she is seriously hurt. She has been like this since birth. All the specialist say she is normal. Don't know what to do anymore. Please help