Anonymous
Post 11/30/2013 21:58     Subject: IV Antibiotics with Lyme
OP, great to know that you have a diagnosis. Do you also have lyme? Or just the MG?
Anonymous
Post 11/27/2013 09:42     Subject: IV Antibiotics with Lyme
OP here. Update: So, my LLMD put me on oral antibiotics for 2-3 months with minimal effects, so he decided to dig further and on the 3rd round of testing, I tested positive for Myasthenia Gravis. I'd seen two family MDs, a renowned neurologist, three rheumatologists for two years prior, none of them caught it. I will now present the findings to my neurologist to see how to proceed from here.
Anonymous
Post 08/14/2013 11:59     Subject: IV Antibiotics with Lyme
Another poster with TBDs, 4 years of treatment and better. I haven't had IVs, did ok with orals; now on herbs, supplements and homeopathics. TBDs are a clinical diagnosis as the tests are not sensitive enough, as you probably already know. Be prepared for IVs, whatever it takes. I'm experiencing some symptoms and will return to my LLMD if need be and probably looking at IVs too. OP, let us know.
Anonymous
Post 08/14/2013 09:15     Subject: IV Antibiotics with Lyme
Anonymous wrote:
Anonymous wrote:OP here. Thanks for the replies. Started having loads of odd joint/muscle/neuro issues all of a sudden approx 2yrs ago, tested up and down by various docs and tests, all docs stating that I'm "fine". Well, going from working out 2-3 times a week to having to use your arms to pull yourself up the stairs, not being able to lift a gallon of milk or open bottles lids, I believe I'm anything but fine. Just recently got in contact with a Lyme MD, pending test results, but IV-A has been hinted by the Lyme doc for now.....lets see what the labs show...


You need to go to a Rheumatologist. Proximal muscle weakness and joint aches does not always equal Lyme disease.


Thanks, I've seen a few, working with a good one right now, in parallell with a Lyme MD (who is also a Rheumatologist), just recently prescribed Plaquenil/hydroxychloroquine. It all started 2 weeks post a Cancun/resort trip with family. Had GI issues whilst there, came home, was fine for 2 weeks then within 2-3 days I was knocked out. Joint pain started to reduce after 1 year but numbness/weakness has persisted.
Anonymous
Post 08/14/2013 09:03     Subject: IV Antibiotics with Lyme
Anonymous wrote:OP here. Thanks for the replies. Started having loads of odd joint/muscle/neuro issues all of a sudden approx 2yrs ago, tested up and down by various docs and tests, all docs stating that I'm "fine". Well, going from working out 2-3 times a week to having to use your arms to pull yourself up the stairs, not being able to lift a gallon of milk or open bottles lids, I believe I'm anything but fine. Just recently got in contact with a Lyme MD, pending test results, but IV-A has been hinted by the Lyme doc for now.....lets see what the labs show...


You need to go to a Rheumatologist. Proximal muscle weakness and joint aches does not always equal Lyme disease.
Anonymous
Post 08/14/2013 08:45     Subject: IV Antibiotics with Lyme
If you have Lyme disease, there's about a 30% chance you'll test positive for it.

I took doxycycline orally, only 1 round. I was treated early on, even though I never tested positive. The symptoms persisted for another year.
Anonymous
Post 08/13/2013 20:02     Subject: IV Antibiotics with Lyme
OP here. Thanks for the replies. Started having loads of odd joint/muscle/neuro issues all of a sudden approx 2yrs ago, tested up and down by various docs and tests, all docs stating that I'm "fine". Well, going from working out 2-3 times a week to having to use your arms to pull yourself up the stairs, not being able to lift a gallon of milk or open bottles lids, I believe I'm anything but fine. Just recently got in contact with a Lyme MD, pending test results, but IV-A has been hinted by the Lyme doc for now.....lets see what the labs show...
Anonymous
Post 08/13/2013 18:10     Subject: IV Antibiotics with Lyme
I have - for 6 weeks, then again for 4 weeks. It REALLY helped. My Dr.'s office does not tend to treat for many months/years at a time.
Anonymous
Post 08/13/2013 17:58     Subject: IV Antibiotics with Lyme
I know one person who needed IV abx for several months. Otherwise, if you are that ill, you may need them for many months/several years.

Unfortunately, long-term Lyme is not a quick fix.
Anonymous
Post 08/13/2013 13:33     Subject: IV Antibiotics with Lyme
Anonymous wrote:Wondering if you or anyone you know with Lyme or suspected Lyme has ever been treated with intravenous antibiotics? If so, 1) how many months or years post initial symptoms was the IV-A treatment started and 2) for many weeks was IV-A needed?


...meant "for how many weeks"....
Anonymous
Post 08/13/2013 13:31     Subject: IV Antibiotics with Lyme
Wondering if you or anyone you know with Lyme or suspected Lyme has ever been treated with intravenous antibiotics? If so, 1) how many months or years post initial symptoms was the IV-A treatment started and 2) for many weeks was IV-A needed?