http://www.hopkinsvasculitis.org/types-vasculitis/takayasus-arteritis/
Johns Hopkins has a vasculitis center, which I highly recommend. (I am a physician, and did my residency training there.) They are national leaders in the field, and they are some of the kindest people that I have met. They will collaborate with a physician closer to home, if this is what you need. Wishing you all the best, OP.