OP, sending you a virtual hug. Hope you are doing ok. I am s very sorry for what you have been through and what you are grieving.

OP I am so very sorry.

OP I am so, so so so so so sorry.

Anonymous wrote:OP here. My beta was negative. We're done with this roller coaster.

I am so, so, so terribly sorry

OP, I'm so sorry to hear the news. I hope you are doing ok. I know the first few days after a negative beta result suck. Whatever you decide to do next, I hope you find peace with your decision.

OP here. My beta was negative. We're done with this roller coaster.

Anonymous wrote:OP here. I am seeing Dr. Braverman in NY. I first consulted with Sher and they wouldn't treat the immunology issues without me becoming a patient for IVF. I am in the shared risk at SG so that wasn't possible. When I consulted Dr. Braveman in NY I handed him the report from Sher and he told me that the report of elevated NK cells was meaningless without more testing. My husband and I did a whole battery of tests which showed the elevated cytokines and the elevated NK cells. Braverman put me on some supplements and when I was retested recently my cytokines were "perfect" according to Braverman. My NKcells were still elevated so I got the intralipids 5 days before my transfer.

Braverman offered me the IVIG but we couldn't afford another 15 grand out of pocket. Intralipids are $25, plus getting up to NY and the treatment cost $300. Still way cheaper than 15 grand.

That's great news! Here's hoping you have some good embryos in this batch now that the immune stuff has been addressed. Please keep us posted!

You might want to stop. There are health effects later down the road.

OP here. I am seeing Dr. Braverman in NY. I first consulted with Sher and they wouldn't treat the immunology issues without me becoming a patient for IVF. I am in the shared risk at SG so that wasn't possible. When I consulted Dr. Braveman in NY I handed him the report from Sher and he told me that the report of elevated NK cells was meaningless without more testing. My husband and I did a whole battery of tests which showed the elevated cytokines and the elevated NK cells. Braverman put me on some supplements and when I was retested recently my cytokines were "perfect" according to Braverman. My NKcells were still elevated so I got the intralipids 5 days before my transfer.

Braverman offered me the IVIG but we couldn't afford another 15 grand out of pocket. Intralipids are $25, plus getting up to NY and the treatment cost $300. Still way cheaper than 15 grand.

Anonymous wrote:On 2/6 I had my 9th transfer. I did 4 IVFs with my own eggs and I have had 2 fresh DE cycles plus 3 FET. I had one early m/c from a FET. Before this last transfer I sought out a reproductive immunologist and found out that I had elevated levels of cytokines and Natural Killer Cells. I went to NY to get treatment for the NKcells. (intralipids)

I am on Lovenox, prednisone, progesterone and estrogen as well as Folgard and prenatals. I get or give myself no fewer than two shots a day, some days I get three. I am constipated and flatulant. I'm drinking a ton of water and eating a ton of vegetables to take care of the first issue, hence the second issue.

Every second I am thinking "is this a symptom or just the drugs?" "Are my boobs sore and tender or is it my imagination?" I have night sweats and wake up a couple of times a night to pee. I am also so horny I want to jump my husband every second but I am scared that doing anything will mess everything up, so I am just in a constant state of arousal. No sex dreams this time around that I remember, but I do wake up horny so who knows?

I am eating pineapple every day and I've regularly been doing acupuncture. I'm sleepy but I can't tell if I'm tired because it worked or tired because I'm up peeing a couple of times a night.

We decided that this is our last time doing this. We may look into adoption if we have the energy or we may decide to remain childless if this doesn't work.

Is it any wonder that all of us are crazy by the end of this process? Thanks for listening. (reading)

OP, I'm so sorry you've been through this. I hope and pray this cycle works for you. Are you working with Dr. Braverman? Is he doing anything else besides Intralipids to address your elevated cytokines? There isn't complete agreement in the field but some RIs believe you need IVIG for cytokine elevations. I'm linking a blog below for someone who had similar issues. She worked with CCRM and consulted with (I believe) Dr. Scher in NY. All in all she had 6 miscarriages before finally treating her cytokine problem. She now has a 3 month old. I know it's been a long road but I think you're finally on the right path. Good luck!!

http://lifeandloveinthepetridish.blogspot.com

I hope this is it for you, OP!

It is heartbreaking that so many of us have to endure so much to have a very, very wanted baby. I've been doing treatments for 2.5 years now and I feel a little crazy, myself. I have a lot of friends, but yet I feel very alone in this infertility journey. I have definitely distanced myself from them and am pretty much obsessed with trying to get pregnant. (I'm 39, so I'm working against the clock!)

Hope you will update with good news in a few days--best wishes!

Good luck OP! I am really pulling for you and I hope this is the one. Let us know how it goes.

You have been through so much. Too much. I hope this is it and if not that you find peace moving forward.

I am very sorry. I hope this is the cycle for you.

On 2/6 I had my 9th transfer. I did 4 IVFs with my own eggs and I have had 2 fresh DE cycles plus 3 FET. I had one early m/c from a FET. Before this last transfer I sought out a reproductive immunologist and found out that I had elevated levels of cytokines and Natural Killer Cells. I went to NY to get treatment for the NKcells. (intralipids)

I am on Lovenox, prednisone, progesterone and estrogen as well as Folgard and prenatals. I get or give myself no fewer than two shots a day, some days I get three. I am constipated and flatulant. I'm drinking a ton of water and eating a ton of vegetables to take care of the first issue, hence the second issue.

Every second I am thinking "is this a symptom or just the drugs?" "Are my boobs sore and tender or is it my imagination?" I have night sweats and wake up a couple of times a night to pee. I am also so horny I want to jump my husband every second but I am scared that doing anything will mess everything up, so I am just in a constant state of arousal. No sex dreams this time around that I remember, but I do wake up horny so who knows?

I am eating pineapple every day and I've regularly been doing acupuncture. I'm sleepy but I can't tell if I'm tired because it worked or tired because I'm up peeing a couple of times a night.

We decided that this is our last time doing this. We may look into adoption if we have the energy or we may decide to remain childless if this doesn't work.

Is it any wonder that all of us are crazy by the end of this process? Thanks for listening. (reading)