Anonymous wrote:OP here. Thanks so much for the explanation. PP, do you know any good ABA therapists? I don't yet know much about it and will research it, but in the interim, I'd greatly appreciate any advice. FWIW, dev ped is not 100% sure she has PDD and wants to reevaluate her in 3-6 months. Somedays I don't think she does - she will walk up to people, make eye contact, wave, smile, etc. She carries around a cellphone and pretends to talk and she's got a cribful of stuffed toys she calls her friends. She's always been very outgoing in our family. Other days, she turns away when someone looks at her (as she did when she was with the doctor who we saw for other issues). I'm very confused, but I also know that the earlier the therapy begins the better (she's already doing OT and language).
I would think before I automatically did ABA. Read up about it, especially parents' experiences. It's not for every kid.
Also, since NOT EVEN your Developmental Ped is sure about PDD-NOS, I'd just focus on the areas she needs help. There's no "magic window" that snaps shut when a child hits 3, 4, 5 or even 10. My son has severe MERLD, and his greatest gains have come at around 8 or 9 years old (most kids with MERLD are caught up by 3rd grade.) I have another good friend who was told her language delayed child was "on the spectrum" -- and by 5, no one could tell he even had a language delay.
So do your homework, and know that the PDD-NOS label is only as good at the person doing the Dxing. It's basically their best guess when a child is very young like yours is. A lack of desire for social communication is SUPPOSED to be at the heart of autism, but now that it's morphed into a "spectrum" disorder, the standards and the DXing have gotten to be just all over the place.