Has anyone tried risperdone and if so, has it been effective? I'm worried about the side effects but I feel like he probably needs something more powerful than Clonodine which he hasn't tried yet

Anonymous wrote:

Anonymous wrote:Hey DD has tourettes and is 12. Started when she was 5 and were so severe it looked like she was having seizures. Did research and other countries use magnesium and B6 as a first line of treatment. We like natural calm - a high quality supplement from Amazon. We also did a Paleo diet with no artificial ingredients-- her tics cleared up--We loosened up on the diet over time but she still does gluten free. The natural approach did not help her ADHD at all-- she takes Ritalin for this. There is a lot of good info out there on people tryong out natural approaches for ourettes.

OP this is garbage ignore the anti science shits.

Read the research dipshit--magnesium and B6 has lots of scientific evidence. Our country prefers pharmaceutical first--much more profitable

My 16 year old has tourette's as well. He is currently on Clonodine (Gianfacine didn't work for him), Sitraline and Buspar. It seems to help some. He still has tics but sort of manages them.

Every professional I've talked to says that the next step would be putting him on anti-psychotics, but there is a real risk of him developing breasts and even lactating in some cases so I decided to hold off on those. If others have had their children on these medications with a reduction of tics and no severe side effects, I'd love to hear that.

Anonymous wrote:Hey DD has tourettes and is 12. Started when she was 5 and were so severe it looked like she was having seizures. Did research and other countries use magnesium and B6 as a first line of treatment. We like natural calm - a high quality supplement from Amazon. We also did a Paleo diet with no artificial ingredients-- her tics cleared up--We loosened up on the diet over time but she still does gluten free. The natural approach did not help her ADHD at all-- she takes Ritalin for this. There is a lot of good info out there on people tryong out natural approaches for ourettes.

OP this is garbage ignore the anti science shits.

Our DD's get much worse when she's getting sick or getting over being sick, so we do a lot to try to support her immune system like supplementing vitamin D, B6, magnesium, and zinc. She's also on guanfacine and buspar plus does OT and CBT-based therapy (though not specifically CBIT). She had a complex tic for a while where she would grab her foot behind her back and stretch her leg up (like a dance pose) and that one was particularly miserable. We haven't been able to reduce the simple tics much, she's constantly throat clearing and scrunching her face, but the complex ones are greatly reduced.

It's interesting to hear a PP mention aripiprazole. She was on a very low dose of it when she was much younger, for aggressive behavior (she has ASD), and come to think of it she did not tic nearly as much then. It was never mentioned to us a treatment for ticcing.

Hey DD has tourettes and is 12. Started when she was 5 and were so severe it looked like she was having seizures. Did research and other countries use magnesium and B6 as a first line of treatment. We like natural calm - a high quality supplement from Amazon. We also did a Paleo diet with no artificial ingredients-- her tics cleared up--We loosened up on the diet over time but she still does gluten free. The natural approach did not help her ADHD at all-- she takes Ritalin for this. There is a lot of good info out there on people tryong out natural approaches for ourettes.

Anonymous wrote:

Anonymous wrote:Have you watched Baylen Out Loud? She has OCD/anxiety too
It was kinda eye opening for me, it might be nice for your kid to see how someone else manages and feel not so alone.

OP please ignore this stupid comment.

Baylen Out Loud is not a medical professional.

I looked it up and agree it’s not thr right move but I did order Tim Howard’s book “The Keeper” which is aimed at kids

Anonymous wrote:Have you watched Baylen Out Loud? She has OCD/anxiety too
It was kinda eye opening for me, it might be nice for your kid to see how someone else manages and feel not so alone.

OP please ignore this stupid comment.

Baylen Out Loud is not a medical professional.

I'm the above poster with the DS who has Tourette and ADHD. We did medicate for ADHD - his ADHD is severe and stimulants controlled his ADHD well - but we did have to try a few different stimulant meds to figure out which one didn't exacerbate his tics (he's on Concerta right now).

Have you tried the supplement NAC?

Op here - thank you so much for sharing your experience. It’s really helpful to hear from someone who’s also experienced this. What did you end up doing for his ADHD? Because stimulants can worsen tics, we ended up taking him off the Ritalin, which wasn’t really helping him anyway and now he’s only on guanfacine but I don’t think it’s quite the right medication for him as his tics have become severe. We need to look into something that will actually have an impact. Did you all medicate for the ADHD as well?

The downfall Soviet Union, in the absence of another form of a genu

Anonymous wrote:When DS with Tourette (and ADHD) was 14 he also had complex tics that were getting more severe - he was almost constantly ticcing (he even ended up with a stress fracture because of a hopping tic). He was also on guanfacine and tried several rounds of CBIT. The CBIT helped with some tics but not the most severe ones. He ended up going on a low dose of aripiprazole - it didn’t make his tics completely go away, but they became much less intense and frequent, and he was so much more comfortable and able to function in daily life.

He’s now 18 and his tics have gotten more mild overall, so we’re gradually taking him off the aripiprazole. I didn’t like having him on such a strong medication, but luckily the only side effect he experienced was fatigue.

When DS with Tourette (and ADHD) was 14 he also had complex tics that were getting more severe - he was almost constantly ticcing (he even ended up with a stress fracture because of a hopping tic). He was also on guanfacine and tried several rounds of CBIT. The CBIT helped with some tics but not the most severe ones. He ended up going on a low dose of aripiprazole - it didn’t make his tics completely go away, but they became much less intense and frequent, and he was so much more comfortable and able to function in daily life.

He’s now 18 and his tics have gotten more mild overall, so we’re gradually taking him off the aripiprazole. I didn’t like having him on such a strong medication, but luckily the only side effect he experienced was fatigue.

Anonymous wrote:DS 13 has Tourette’s with complex tics that have been getting more severe and exhausting for him. He is on Guanfacine but it hasn’t been effective even at a higher dose. He started CBIT but it is slow going. He also has adhd and likely OCD. Any parents who’ve been there please let me know what’s worked for your DC.

Is he on stimulants for the ADHD? Some of them can worsen tics.

Have you watched Baylen Out Loud? She has OCD/anxiety too
It was kinda eye opening for me, it might be nice for your kid to see how someone else manages and feel not so alone.

DS 13 has Tourette’s with complex tics that have been getting more severe and exhausting for him. He is on Guanfacine but it hasn’t been effective even at a higher dose. He started CBIT but it is slow going. He also has adhd and likely OCD. Any parents who’ve been there please let me know what’s worked for your DC.