Anonymous
Post 01/26/2025 10:45     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

Once you have the diagnosis, I really don't think it's worth shopping around unless as others mentioned you want to join a trial or perhaps you want more guidance on medication. I would suggest reading some of Dean Ornish's amazing research and just focus on lifestyle and diet.

That said, for those of us who have it in the family, the time to act is now-with diet and lifestyle and doing everything research suggests to stay mentally fit. Mental health is also a huge component. My parents did all the right things, but my mother especially always refused to stick with psychological intervention and the woman lived in a constant state of hysteria, extreme anxiety or anger with some periods of happiness here and there. She ate healthy and exercised her mind and body, but she definitely had the personality type I read is more prone.
Anonymous
Post 01/25/2025 18:26     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

Sorry to echo what others have said but we had no idea what a waste of time these appointments are. There’s nothing to be done to help so you basically are paying for a Dr to confirm what you know with nothing helpful being provided. We’re done
Anonymous
Post 01/25/2025 18:15     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

Neurologist diagnosed my mother with likely Alzheimer's type dementia following looking at a CT scan from a fall she had that was well done. We had neuropsych testing through INOVA at Mt Vernon Hospital that confirmed Alzheimer's about 9 months later. It took a while to get that appt but was covered by insurance. She also has some vascular impact as well. She's very bright and masked a lot for a long time. Where her deficits were that popped up in the testing clearly were indicative of Alzheimer's and was very helpful to understand more about what we were seeing.
Anonymous
Post 01/25/2025 15:37     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

What do you hope to get out of the evaluation? Does he want to enter into a clinical trial or take one of the new drugs? Honestly as someone who had a parent with Alzheimer’s, we switched from a fancy academic medical center neurologist to a private practice neurologist. What you need is someone who will call you back.

Sorry about your dad!
Anonymous
Post 01/25/2025 12:59     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

I thought they can only truly diagnose Alzheimer’s after death, on autopsy?
Anonymous
Post 01/24/2025 09:52     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

Once my mom got the dementia diagnosis from the neurologist we stopped going. Nothing you can really do to stop the train.
Anonymous
Post 01/23/2025 21:07     Subject: Re:Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

I never felt like doctors helped with this condition.

Anonymous
Post 01/22/2025 23:26     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

Yes, years ago and waste of time. The doctor only cared about patients for his trials.
Anonymous
Post 01/22/2025 23:12     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

I wouldn't. Instead I would focus on brain health assuming he is early stage. There is some great research about slowing progression with diet and lifestyle change.

Anonymous
Post 01/22/2025 20:36     Subject: Has any taken a parent to Hopkins for Alzheimer’s? How long to get appt?

My dad’s neurologist has diagnosed him with Alzheimer’s based on a pet scan. I’d like to get a more thorough evaluation at Hopkins. Has anyone done this? And do you recall how long it took you to get an appointment?