Anonymous
Post 06/04/2024 13:39     Subject: Kicked out of every activity and summer camp we’ve ever tried

Anonymous wrote:Yes, you should stop signing your kid up for activities that clearly aren't working for him. It's a headache that you and he do not need, and you're not going to find a "magic" activity that helps prepare for school. Give your kid a break, take it easy this summer.

I'd laser focus on fall and school - if he got kicked out of the kindergarten prep program, does that mean that his IEP does not have what it should, etc.


Op here. I am worried about his IEP-but do you know if those concerns can be meaningfully addressed in the summer? I think most of his IEP team is gone.
Anonymous
Post 06/04/2024 13:38     Subject: Kicked out of every activity and summer camp we’ve ever tried

Yes, you should stop signing your kid up for activities that clearly aren't working for him. It's a headache that you and he do not need, and you're not going to find a "magic" activity that helps prepare for school. Give your kid a break, take it easy this summer.

I'd laser focus on fall and school - if he got kicked out of the kindergarten prep program, does that mean that his IEP does not have what it should, etc.
Anonymous
Post 06/04/2024 13:38     Subject: Re:Kicked out of every activity and summer camp we’ve ever tried

Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Is he on medication?


Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.


It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.


Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?
Anonymous
Post 06/04/2024 13:37     Subject: Re:Kicked out of every activity and summer camp we’ve ever tried

Is he medicated?
Anonymous
Post 06/04/2024 13:35     Subject: Re:Kicked out of every activity and summer camp we’ve ever tried

Anonymous wrote:
Anonymous wrote:Is he on medication?


Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.


It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.
Anonymous
Post 06/04/2024 13:33     Subject: Kicked out of every activity and summer camp we’ve ever tried

Anonymous wrote:I think it's fine if he's with therapists and a nanny for now. I will say, though, that a lot of people in this situation would medicate so that their child can benefit from participating in things.

I'm unclear on how he got kicked out of a public school program. Are you aware of your rights under IDEA?

It's hard to accept that your child has a significant disability. It's ok to let yourself feel sad about it.


Op here. He’s been on medication since he was 3, started on stimulants on his 4th birthday.

I know about IDEA. The public school program he was in did not have to follow IDEA and IEPS don’t apply because of it being a supplemental summer program. He’s had an IEP since he was 3.
Anonymous
Post 06/04/2024 13:32     Subject: Kicked out of every activity and summer camp we’ve ever tried

NT kid but I had to stop enrolling him for a while when he was a bit older than your kid because he wasn’t interested and would just quietly sabotage just about everything. There’s nothing wrong with taking a break from activities. Yes I would stop enrolling him until he is ready, be it medication or maturity. And yes delay kinder if possible (it’s not age appropriate for most kids anyway so no harm in that).
Anonymous
Post 06/04/2024 13:32     Subject: Kicked out of every activity and summer camp we’ve ever tried

I don’t have any experience with this but just wanted to send you a hug. I hope you find a solution that works for you and your wonderful child.
Anonymous
Post 06/04/2024 13:31     Subject: Kicked out of every activity and summer camp we’ve ever tried

I think it's fine if he's with therapists and a nanny for now. I will say, though, that a lot of people in this situation would medicate so that their child can benefit from participating in things.

I'm unclear on how he got kicked out of a public school program. Are you aware of your rights under IDEA?

It's hard to accept that your child has a significant disability. It's ok to let yourself feel sad about it.
Anonymous
Post 06/04/2024 13:29     Subject: Kicked out of every activity and summer camp we’ve ever tried

Have you tried a home based ABA program that can address attending and other basic skills? If you’ve never taught these skills at home you can’t expect him to spontaneously do them in a new environment.
Anonymous
Post 06/04/2024 13:29     Subject: Re:Kicked out of every activity and summer camp we’ve ever tried

Anonymous wrote:Is he on medication?


Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.
Anonymous
Post 06/04/2024 13:29     Subject: Kicked out of every activity and summer camp we’ve ever tried

^ there is a ramp-up period for ADHD medication that should last a number of months if the psychiatrist is careful and takes things slowly (as they should). So the time to start is now.
Anonymous
Post 06/04/2024 13:28     Subject: Kicked out of every activity and summer camp we’ve ever tried

Medication? A little boy in my child's K class had to start meds because he was just entirely out of control. It's on the early side, but in rare cases, some patients do actually need medication.

I wouldn't medicate for summer camps, mind you. But if he's like this now, he'll be a holy terror in school. He needs medication for school. Most ADHD simulants are habit-forming, so he needs medication breaks regularly (on weekends and holidays). My son was medicated from 5th to 12th grade and now in college doesn't need regular meds anymore.
Anonymous
Post 06/04/2024 13:24     Subject: Re:Kicked out of every activity and summer camp we’ve ever tried

Is he on medication?
Anonymous
Post 06/04/2024 13:23     Subject: Kicked out of every activity and summer camp we’ve ever tried

My DS is 5, almost 6. He’s been kicked out of everything I’ve ever enrolled him in. Including programs advertised as inclusive/adaptive. Camps, adaptive theater, parkour, martial arts, soccer, speech therapy camp, Montessori preschool, SN playgroup, etc.

He is not violent, but his hyperactivity is extreme. He doesn’t really sit or stop moving. His attention span is extremely short. Every program just says he’s not that engaged anyway and that they don’t have the resourcing to keep him.

The rejection is really wearing on me psychologically. At what point do you just decide that your kid won’t be in anything and stop trying? I don’t mean forever, but until he’s older.

I keep thinking that if he could be in something that it might help him learn some skills for socializing and to prepare him for kindergarten (the most recent rejection was getting kicked out of the kindergarten prep program at our public school).

Every time he’s kicked out, I start searching for another program for him. But I am at the point of just letting him spend the summer with his respite worker, therapists, myself, and nanny.

Has anyone else just given up? I don’t know why this hurts so much.