Anonymous wrote:My husband has had it since his “mild” case of COVID in June 2022. The usual lineup of symptoms.

MedStar’s clinic is good but there are no specific treatments for long COVID so they throw what they can at various symptoms.

He’s fully disabled—has not been able to work or drive since. Can’t be upright longer than about 45 minutes without issues. I’m standing on a CVS line for his meds now, actually.

Anonymous wrote:Honestly, just time and pushing forward. I had a long slog for about 9 months. Two years out the only remaining symptom is tinnitus 24/7. I try not to focus on it because if I do I will go insane.

Anonymous wrote:

Anonymous wrote:We’ve struggled to get back to normal after long COVID.

I’d love to hear what’s worked to get better.

Ugh, I'm sorry. I struggled for quite a while with long Covid but I'm better now.

I got Covid in October of 2022, most likely on a long flight to Africa. I got very sick while visiting the Ngorongoro Crater, and the doctor I saw a few days later when I got to Zanzibar told me I'd had HAPE (high altitude pulmonary edema) while staying at Ngorongoro (we stayed at very high altitude). I probably did have HAPE (very, deadly, btw), but probably was predisposed to it because I had Covid, which I didn't know. I saw that doctor, a Tanzanian doctor, via telehealth while staying at a resort and it didn't occur to her or to me that I had Covid. So I didn't get treated or even tested even though I was having pretty extreme shortness of breath (at one point I tried to walk to the restaurant at our resort and literally collapsed to the ground) and fatigue that kept me in bed even though I was on vacation. I had zero appetite and only ate to be polite to the resort chef who made me special stuff. With HAPE, that shouldn't have continued after I got down to sea level; but it did. Didn't figure out it was Covid until my DH turned up sick on the flight home (yes, I'm pretty sure we gave at least some of the people in that business class cabin Covid, and yes I feel badly about it) and we tested positive when we got home. I was coughing like crazy.

I didn't stop coughing and wheezing for almost a year and half. Had terrible fatigue and brain fog. I was seen in the Medstar Long Covid clinic at about the 8-month mark. The neurologist I saw got me a sleep study and it turned out the brain fog was sleep apnea. She said that although the reason why isn't apparent, there has been a big increase in diagnosis of sleep apnea in long covid sufferers. Once I got the sleep apnea treated with cpap not only did my brain fog get fixed, my coughing stopped as well. My appetite has never come back, but I'm overweight so that is probably a good thing.

I struggled hard, and cried a lot thinking I'd spend the rest of my life sick and exhausted. But when I heard that long covid lasts for up to 18 months in some people that gave me hope because it meant some people suffered as long as I did and then did get better. Fortunately I did too.

I hope you get better, too. The odds are that you will.

Anonymous wrote:

Anonymous wrote:We’ve struggled to get back to normal after long COVID.

I’d love to hear what’s worked to get better.

Ugh, I'm sorry. I struggled for quite a while with long Covid but I'm better now.

I got Covid in October of 2022, most likely on a long flight to Africa. I got very sick while visiting the Ngorongoro Crater, and the doctor I saw a few days later when I got to Zanzibar told me I'd had HAPE (high altitude pulmonary edema) while staying at Ngorongoro (we stayed at very high altitude). I probably did have HAPE (very, deadly, btw), but probably was predisposed to it because I had Covid, which I didn't know. I saw that doctor, a Tanzanian doctor, via telehealth while staying at a resort and it didn't occur to her or to me that I had Covid. So I didn't get treated or even tested even though I was having pretty extreme shortness of breath (at one point I tried to walk to the restaurant at our resort and literally collapsed to the ground) and fatigue that kept me in bed even though I was on vacation. I had zero appetite and only ate to be polite to the resort chef who made me special stuff. With HAPE, that shouldn't have continued after I got down to sea level; but it did. Didn't figure out it was Covid until my DH turned up sick on the flight home (yes, I'm pretty sure we gave at least some of the people in that business class cabin Covid, and yes I feel badly about it) and we tested positive when we got home. I was coughing like crazy.

I didn't stop coughing and wheezing for almost a year and half. Had terrible fatigue and brain fog. I was seen in the Medstar Long Covid clinic at about the 8-month mark. The neurologist I saw got me a sleep study and it turned out the brain fog was sleep apnea. She said that although the reason why isn't apparent, there has been a big increase in diagnosis of sleep apnea in long covid sufferers. Once I got the sleep apnea treated with cpap not only did my brain fog get fixed, my coughing stopped as well. My appetite has never come back, but I'm overweight so that is probably a good thing.

I struggled hard, and cried a lot thinking I'd spend the rest of my life sick and exhausted. But when I heard that long covid lasts for up to 18 months in some people that gave me hope because it meant some people suffered as long as I did and then did get better. Fortunately I did too.

I hope you get better, too. The odds are that you will.

Anonymous wrote:We’ve struggled to get back to normal after long COVID.

I’d love to hear what’s worked to get better.