Anonymous
Post 10/11/2023 14:34     Subject: Re:how will school react to epilepsy?
How was epilepsy diagnosed if she's never had a seizure before?


+1

"You may have a seizure without having epilepsy, but you can’t have epilepsy without seizures — even if they don’t cause obvious effects."
Source: https://www.healthline.com/health/epilepsy/epilepsy-vs-seizure#:~:text=When%20seizures%20become%20a%20consistent,do%20to%20manage%20these%20conditions

Anonymous
Post 10/10/2023 23:33     Subject: Re:how will school react to epilepsy?
Anonymous wrote:How was epilepsy diagnosed if she's never had a seizure before?


I’m curious about this too, my child has a rare form of epilepsy too, and we discovered it because of some weird disturbances during sleep.
Anonymous
Post 10/10/2023 23:32     Subject: how will school react to epilepsy?
Anonymous wrote:
Anonymous wrote:We have had no issues. There’s a health plan in place so teachers are aware and know what to do in the event of a seizure. That’s it. Teachers have never treated DC differently. The experienced teachers have all had kids with seizure disorders before.


+1

All they do is have a plan in case the kid has a seizure.


+2
Anonymous
Post 10/10/2023 23:27     Subject: Re:how will school react to epilepsy?
How was epilepsy diagnosed if she's never had a seizure before?
Anonymous
Post 10/06/2023 14:08     Subject: how will school react to epilepsy?
Anonymous wrote:
Anonymous wrote:My ES kid has IEP, and we recently learn that she has epilepsy. From tests/labs findings, she has experienced zero seizures, and she looks like a normal kid. She is not medicated or under treatment as this moment for now, and we are not sure about next step next. Anyone has experiences what may happen if I let school know about this diagnosis? There is a chance that she may not have experienced seizure in her life with the type of rare epilepsy she has. I am a bit worried about school & homeroom teacher's reaction to this diagnosis, and I want them to treat her as a normal kid. With the diagnosis, she can still do anything freely without any restriction.


As an adult with a disability this is really offensive and ablest, as if to suggest anyone with a disability might indicate it through some freaky outer appearance - you should watch how you describe your disabled child from here on.


Ignore this person. I have epilepsy and understood what OP meant for goodness sakes. And it doesn’t sound like her child is very disabled. As someone with epilepsy, I don’t consider myself disabled. It would really depend on how epilepsy interferes with your daily life. If it prevents you from doing “normal” things then it’s a disability, but for many people it’s well controlled with medication and life goes on as normal. Others have more intrusive seizure activity.
Anonymous
Post 10/06/2023 14:02     Subject: how will school react to epilepsy?
I have a kid with a different rare issue. The school staff was very accommodating at our meetings for 504 and the school Nurse checks in with us if there is any concern or question. We feel well cared for.
Anonymous
Post 10/04/2023 07:19     Subject: how will school react to epilepsy?
Anonymous wrote:My ES kid has IEP, and we recently learn that she has epilepsy. From tests/labs findings, she has experienced zero seizures, and she looks like a normal kid. She is not medicated or under treatment as this moment for now, and we are not sure about next step next. Anyone has experiences what may happen if I let school know about this diagnosis? There is a chance that she may not have experienced seizure in her life with the type of rare epilepsy she has. I am a bit worried about school & homeroom teacher's reaction to this diagnosis, and I want them to treat her as a normal kid. With the diagnosis, she can still do anything freely without any restriction.


Gen Educator here. I have three students with seizure disorders currently. All MCPS teachers must complete a training about seizures this fall. We’re not going to treat her differently than her IEP or 504 says to.
Anonymous
Post 10/03/2023 11:28     Subject: how will school react to epilepsy?
The school nurse will call you to discuss a plan in case she has a seizure.

Be sure to tell your kid not to hide if they feel a seizure coming on. My kid had small seizures that she could feel coming on and she remained conscious throughout. Only one time did she have a large seizure (this is what motivated us to get care/diagnosis). At some point I found out that she was embarrassed that kids might see so she would go to the bathroom if she thought one might start. Obviously not a good idea.
Anonymous
Post 10/03/2023 11:12     Subject: Re:how will school react to epilepsy?
Send them all the relevant information and have doctor's write "RESTRICTIONS: NONE" if this is the case. It is important to let the school know because they have eyes on her 6+ hours a day and while she truly may never have had a seizure based on what you say, she may have at school (obviously not a grand mal) and they didn't think of it as anything specific especially if it never happened again. In other words, having more people be aware means you have more observers if something ever does happen. AND, if it does happen, they need to know the protocol.
Anonymous
Post 10/03/2023 09:51     Subject: how will school react to epilepsy?
Anonymous wrote:My ES kid has IEP, and we recently learn that she has epilepsy. From tests/labs findings, she has experienced zero seizures, and she looks like a normal kid. She is not medicated or under treatment as this moment for now, and we are not sure about next step next. Anyone has experiences what may happen if I let school know about this diagnosis? There is a chance that she may not have experienced seizure in her life with the type of rare epilepsy she has. I am a bit worried about school & homeroom teacher's reaction to this diagnosis, and I want them to treat her as a normal kid. With the diagnosis, she can still do anything freely without any restriction.


You need to let them know for your child's safety.
Anonymous
Post 10/03/2023 08:34     Subject: how will school react to epilepsy?
Anonymous wrote:My ES kid has IEP, and we recently learn that she has epilepsy. From tests/labs findings, she has experienced zero seizures, and she looks like a normal kid. She is not medicated or under treatment as this moment for now, and we are not sure about next step next. Anyone has experiences what may happen if I let school know about this diagnosis? There is a chance that she may not have experienced seizure in her life with the type of rare epilepsy she has. I am a bit worried about school & homeroom teacher's reaction to this diagnosis, and I want them to treat her as a normal kid. With the diagnosis, she can still do anything freely without any restriction.


As an adult with a disability this is really offensive and ablest, as if to suggest anyone with a disability might indicate it through some freaky outer appearance - you should watch how you describe your disabled child from here on.
Anonymous
Post 10/03/2023 07:16     Subject: how will school react to epilepsy?
Anonymous wrote:We have had no issues. There’s a health plan in place so teachers are aware and know what to do in the event of a seizure. That’s it. Teachers have never treated DC differently. The experienced teachers have all had kids with seizure disorders before.


+1

All they do is have a plan in case the kid has a seizure.
Anonymous
Post 10/03/2023 07:08     Subject: how will school react to epilepsy?
We have had no issues. There’s a health plan in place so teachers are aware and know what to do in the event of a seizure. That’s it. Teachers have never treated DC differently. The experienced teachers have all had kids with seizure disorders before.
Anonymous
Post 10/03/2023 06:52     Subject: how will school react to epilepsy?
My ES kid has IEP, and we recently learn that she has epilepsy. From tests/labs findings, she has experienced zero seizures, and she looks like a normal kid. She is not medicated or under treatment as this moment for now, and we are not sure about next step next. Anyone has experiences what may happen if I let school know about this diagnosis? There is a chance that she may not have experienced seizure in her life with the type of rare epilepsy she has. I am a bit worried about school & homeroom teacher's reaction to this diagnosis, and I want them to treat her as a normal kid. With the diagnosis, she can still do anything freely without any restriction.