Anonymous wrote:My mother was diagnosed with MS before I was born, and I NEVER had a similar thought, OP! She was deeply ashamed of her disability, and I was the one encouraging her to get out more, in fact. She had been accused of being a drug addict, or faking a disease, by a number of her older sisters, and I think that did a number on her self-confidence.
Your husband and yourself must sit your daughter down and explain that it’s already hard enough living with a chronic neuro degenerative disease and that being shamed for it is not something you can ever accept. That this is what your child has just done, and you are disappointed in her reaction. That you hope she can be proud that you are surviving every day and managing your disease. And that if she can’t muster up any feelings of sympathy or respect for you, the least she can do is not complain about your medical condition and not ask that you stop coming to school.
I have an emotional 7th grade daughter and this is how I would talk to her.
Separately, I would also ask whether she’s been teased or bullied at school, or whether she has teased or bullied anyone else (for being fat, for example - usually bullies are terrified of reprisal). I would address any concerns on that front but not budge from my stand regarding MS and showing up at school.
This is good advice. You need to tell it to your daughter straight. My mother had MS and for most of my childhood I didn't really "get it" and surely did not give it the level of consideration I should have. Hopefully the PPs wording will help knock some sense into her.