Reply to The ethics of price gauging special needs families

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Reply to "The ethics of price gauging special needs families"

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[quote=Anonymous][quote=Anonymous]I have to say - I see both sides here. Our DS is now in his 20s so I have the benefit of hindsight. For years we spent all our money on speech and OT (2-3 times per week, and I did all the "homework" with him as well so was fully compliant) with very little demonstrable progress. The only thing that helped was ABA. We spent money we didn't have (we were fortunate enough to get help from my parents) because we were desperate to try everything that could possibly help him. In hindsight, speech and OT were wastes of money. We have seen over five SLPs, all of whom came highly recommended, and none was even remotely helpful. SN parents often operate out of fear -- the fear of inaction. So we spend and spend and spend with no guarantee whatsoever that any of it is going to make a difference. It can become extremely demoralizing. So it isn't that we don't value professionals' time, but there often isn't a clear roadmap of the benefits. When you pay for a vacation, you get the vacation. When you pay to get your nails done, you get your nails done. When you pay for endless therapies, you don't really know what the payoff will be. So you keep doing it out of desperation and it begins to feel like gaugery after years on end.[/quote]

I totally understand and agree. There are absolutely times where a vacation will do a kid and family 10x more good than therapies. There are times that therapy is a waste of money.

Price gouging, though, is an unethical overcharging of people with no choice but to pay inflated prices. It is a really hurtful thing to charge professionals of doing. The lack of clarity and exhaustion and relentless cost is real and terrible. But let’s identify that as the problem, rather than calling the providers price gougers (unless they truly are - I’m sure they exist - I just haven’t seen anyone mention true price gauging).[/quote]

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