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[quote=Anonymous][quote=Anonymous]We have been totally fine with tons of childcare for our kids. We have a child with profound special needs so we have someone every weekday from 2-9, Saturday 9-9 and Sunday 12-9. We are around too a lot of this time, but this gives us flexibility to do stuff with our other child, run errands, get stuff done, etc.

We have never really eaten family meals together because our oldest has such profound needs that it just never worked out that way.

We are totally fine with routine doctor stuff being handled by a nanny including typical sick appointments. But we have regular ped,
developmental ped and neurologist for the SN kid. My hsuband attends her specialist appointments. Our other kid had brain cancer when she was little. We did the once a month all day chemo and the two week blood work when her WBC count was most likely to dip. Nanny did week 1 and week 3 bloodwork. Brain cancer treatment took 2.5 years and included two brain surgeries, a week or so in PICU with meningitis and 16 months of chemo. We split up the quarterly MRIs for several years post chemo. Now, I usually do the once a year neurooncologist. All that to say, once you have two kids with really serious medical stuff, it simply doesn’t seem to matter much about the yearly pediatrician visit or the strep throat test. The nanny can handle that nonsense. We also handle all the IEP meetings together.

We usually have one of us at the kid stuff for school. But honestly, if we have to miss it with have to miss it. We only have one kid with school stuff really since the other one has such profound needs, there is nothing like that happening for her class.

My non-SN kid still wants both of us at bedtime for about 45 minutes every night. We try to trade off so one does the full thing and the other one pops in. That is very special time for us, but I think trading off is fine.[/quote]

Wow you guys are juggling a lot. Hats off to your family[/quote]

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