Reply to Should a child with an intellectual disability be denied an organ transplant?

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[quote=Anonymous][quote=Anonymous]Can we just let this thread die? I think its clear that there are a few Moms with chips on their shoulders about disabled kids that have a deep distrust in doctors.

No amount of reasoning will convince them that 1) a panel of doctors decided this for many reasons 2) the parents probably are oversimplifying or at worse lying and 3) this is a one-sided story in the media so there isn't much to discuss.[/quote]

This is part of what is so offensive.  I hope you are humbled one day in life, because you could stand to be.  Mother's trying to save their children and have them treated with dignity and respect do not deserve to be described as having "chips" on their shoulders.  What a misogynistic way to view the whole thing.  The little girl's father is outraged too.  And guess what!?  Whether or not you want to believe it, or have ever had reason to encounter it, not only do doctors have unfair biases about disabled children (some of the time, of course not all of the time) but lots of other people do too...like you.

We don't know all the sides to this story.  But parents have to advocate for their children.  And one way or another CHOP handled this poorly.  If this little girl is too medically fragile to receive a kidney, why did her "mental retardation" even get brought into the discussion.  I understand it is easier for you to believe that the parents are lying than that an institution such as CHOP would discriminate, but I believe that it's possible.

A poster above compared trying to get a kidney for you three year old daughter to someone trying to prolong the life of a cat or dog.  The truth is a lot of disabled people have people devalue their lives all the time, and just because you don't want to hear about it or don't have patience for it doesn't mean it isn't so.    [/quote]

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