Reply to I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]OP here, still has a fever. But walking better today, much less pain. They unhooked the IV for the afternoon so he could shower and get a break from it so he's very happy about that!! Lyme test came back negative. Thats all I have right now. Labs tomorrow am to see what the trend was over 48 hours with the antibiotics so we shall see. Thanks for all your kind words![/quote]

I’m so glad he’s feeling better. I would really push for Children’s though. As a PSA to anyone in this position in the future: if you have a choice in this area and there is *any* chance it might be serious, go to Children’s. [/quote]

I agree that a Children’s specialty hospital is a great idea, but wanted to add the Hopkins Children’s is another good choice.

OP, as the parent of a child with a rare autoinflammotory syndrome, I would want a pediatric rheumatologist consulting, either remotely or in person. If you aren’t mentioning a rash or fevers that come and go, your kid probably doesn’t have my kid’s exact diagnosis but it does sound like the bigger family of auto immune or auto inflammatory disorders.[/quote]

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