Reply to I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong

Forum Index » Health and Medicine

Reply to "I’ve been in the hospital for 2 nights with my 12 year old and they don’t know what’s wrong "

Subject:

Emoticons





More smilies

Text Color: Font: Close Marks

[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]I’ve been pretty calm but I’m starting to worry. He has a very high fever breaking through Advil and Tylenol, and ankle and knee pain making it hard for him to walk. We are in AA county in MD and they are transferring us to children’s in the am. Everything is coming up negative, covid/panels of respiratory viruses, MRI, chest X-ray, WBC count is normal but inflammatory markers are high. Awaiting Lyme and blood culture results in the am.

I’m not looking for a website diagnosis, I’m just worried and sleep deprived and never thought it would take this long to figure it out. [/quote]

Kawasaki is likely. DEMAND an infectious disease specialist. Have them do a daily check of both inflammatory markers and platelets. Steadily rising platelets is a key. You have ten days to diagnose and treat with immunoglobulin and avoid damage to blood vessels. PLEASE DEMAND TESTING FOR KAWASAKI through an infectious disease specialist.

My son had it at 5, he's now 19 and in perfect health. [/quote]

What the heck kind of testing do you want for Kawasaki? It's a clinical diagnosis.
[/quote]

In addition to platelets, a high white blood cell count and the presence of anemia and inflammation are signs of Kawasaki. Testing for a substance called B-type natriuretic peptide (BNP) that's released when the heart is under stress may be helpful in diagnosing Kawasaki. (Source: Mayo, and also having a kid hospitalized for a related condition a few years ago, at Children's.)

But Kawasaki and a "Kawasaki like" disease are not the same. And I am not sure ankle and knee pain are typical of Kawasaki in any case...[/quote]

Are youjust, like, googling "labs" and Kawasaki"?

"May be helpful" and "signs" are not the [i]diagnostic criteria[/i]. Did you not know that? The diagnostic criteria are what you use to make the diagnosis, and they are clinical assessments. The labwork is not specific -- it is what shows up in any inflammatory process, which it looks broadly clear to everyone what is going on. But inflammation has a thousand other causes than Kawasaki Disease.

Please don't all-caps multiple times at a woman with a child in the hospital because she is not insisting on something which is not necessary or appropriate. She would make it worse by focusing on unhelpful suggestions and "demanding"/"DEMANDING" things which are going to make it harder for them to work with her. Well-trained pediatricians are more likely to make the diagnosis of Kawasaki, not infectious disease experts. I mean, it's good that the providers are consulting with a Peds ID doc, but honestly most KD is diagnosed and taken care of perfectly appropiately without an ID laying hands on the patient.

Why not encourage her to ask if Kawasaki has been considered, and if it has, whether it is still on the differential (or how it was ruled out)? That's a much more productive suggestion.

Glad your child is doing well. I know it is scary. [/quote]

Hi again, you're responding to two different posters. I'm the second one. You may want to look up "clinical diagnostic tests." Take care.[/quote]

Options

	Disable HTML in this message
	Disable BB Code in this message
	Disable smilies in this message

Review message

Search Recent Topics Hottest Topics