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Kids With Special Needs and Disabilities
Reply to "I HATE AUTISM"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]OP here. This morning is a little better. I want schools to reopen. My son is in counseling but just regular old therapy with someone who thinks he has autism - she’s the first person to raise the possibility of it with us, everyone else has just attributed his behavior issues to poor parenting, but interventions that work with typical kids do NOT work with my child. We’re working on getting an evaluation, but it’s hard because he’s a tween and the waitlists are long. Last week we had to call 911 because of a violent episode. We have tried limiting video games and screens. God knows we’ve tried. It doesn’t work. We’ve tried everything. He’s incredibly rigid and has ONE preferred activity. Screens. Only screens. He will sometimes read, but I can’t afford new books every other day and he goes through them in a day or two. He’s definitely got anxiety on top of the HFASD, but we don’t think it’s ODD or ADHD (though I wouldn’t be surprised if he got both an ASD and an ADHD diagnosis). I don’t think it’s OCD either, and neither does his counselor (or the team of people she works with - he’s rigid and repetitive, and becomes overstimulated easily and definitely has some sensory issues). It hasn’t been caught till now because he’s bright, and his school serves him very well. But now with expectations getting higher, after school activities taking up time, at least before corona, it’s clear there’s something going on and his executive functioning skills can’t keep up. But we can’t get a diagnosis, despite the violence and difficulties, because the waitlists for evaluations are super long. So we can’t get any ASD specific help, and it’s going to take a LONG time to get it. It’s hell. And I hate autism. I hate parenting a kid with autism, I hate dealing with our shitty and broken medical system, I hate insurance companies, I hate everything about being cooped up and unable to go places. [/quote] I have two high functioning ASD children. The parenting journey started off miserable but my children are both very happy now and the family gets along wonderfully. What changed? Our parenting. We learned not to be so rigid and meet them where they were and where they wanted to go. You seem extremely inflexible and immature. Of course every library now has free ebooks that your son can check out. Schools also have subscriptions to multiple free ebook libraries but you're wailing that you can't afford books for him? Thats queer. It sounds like you have executive functioning issues that you need to work on. You should start there. Remember ASD is inherited. The melt down tantrum that you're having on this message board "i hate it! I wish he was never born! I can't afford books! Is typical of a very immature person or someone with a disorder like ASD. Try working on yourself. Hopefully your therapist is able to get you to get over yourself so you can stop making your child miserable and parent him effectively. [/quote] Pot, kettle? OP sounds stressed, upset, angry, and frightened. That's not immaturity, it's a human reaction to a very difficult situation. [/quote] I'm not her mother. She is her son's mother. See the difference?[/quote] And you are not in the middle of family crisis during a global pandemic. Might you have said some awkward things before you learned how to be a better parent?[/quote] Right and its wonderful that she got to vent. Now on to actually helping with the problem. [/quote]
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