Reply to Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?

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Reply to "Is ASD a useful label or is it we don’t know we will lump it under an umbrella term?"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]
It's entirely possible that your kid's case was so mild that the work around were successful enough to allow your kid to "pass" for normal.  This doesn't mean a "cure," he's just learned the workarounds successfully.  This does happen sometimes.[/quote]

My kid is normal and not passing for anything (but I think all kids are normal).  We very clearly had a misdiagnosis but I think it was more for the services/money than anything.  ASD is way to broad, as are other disorders, including language.  (there are also huge issues with language disorder diagnosis, especially at the school levels).[/quote]

I find this argument of "he's just learned the workarounds successfully" really strange. If he can adapt and all kids adapt in different ways how does he have a condition? What defines the condition then? There's no blood test or obvious brain difference. It's a set of symptoms and if he has no symptoms how is her child any different from the NT classmate who has no symptoms?[/quote]
The idea of learning the workarounds is not generally accepted, it's just one explanation for why kids lose their diagnosis and if true  probably not the most common reason.  One of the key problems in ASD is the inability to pick up social cues.  NT's learn how spontaneously,  autistics have to be explicitly taught.  If they learn it, they are doing it through mental scripts or problem solving  rather than social instincts.  Such people will always seem a bit "off" and it is hard work for them, but if they are very good at it, they can function effectively in social situations.

David Byrne of the Talking Heads says he is autistic.  I don't think he was diagnosed as a child.  He is successful and apparently has a social life, but his personality is definitely offbeat.[/quote]

Some of our kids do naturally pick up things like social cues, especially if it was a language disorder where the receptive language was impacted.  People underestimate how much receptive language impacts a child and when the receptive language finally comes in how different some of these kids are.  [/quote]
I was talking about ASD not a language disorder.  They are not the same thing, and I am sure you know that.[/quote]

Agree, except my child got an very early ASD diagnosis, so kids like mine are the ones where they get lumped under an umbrella term vs. kids who deserve the term and need all the supports and help that should (but doesn't always come with).  That is the point of all this.  When kids are little, receptive langue issues can look the same - lack of eye contact, not responding to questions/name, etc.  They do look very similar which is why its very hard to distinguish at 1-2-3 between ASD and language disorders which is why some here were misdiagnosed language disorders (from previous posts) and some were misdiagnosed other things like ASD, ADHD, etc.  Its very easy to make a mistake, especially when some of us get it in a 30 minute appointment (which clearly doesn't involve everything needed).   Many kids do have ASD and are appropriately diagnosed and that is not the issue.. its all the other kids like PP have commented about.[/quote]
Well, people are actually saying all kinds of different things that basically come down to, "I don't understand it or I had a bad experience, so ASD must be BS except when it isn't."  It IS the issue because the misinformation that you are spreading causes the misunderstanding you are complaining about.[/quote]

DP here. You are the one who is wrong. ASD is over diagnosed. Every thing that used to be something else is now called  ASD.

Every statistic points to this diagnostic substitution.

[/quote]
Diagnostic substitution is not the same as misdiagnosis or overdiagnosis.  That's just more misinformation about a complex subject.[/quote]

Actually it can be.  ASD is often used to get child and parent more services and help as ASD is the only diagnosis that mandates health insurances to pay in some states.  [/quote]
"Can be" is not the same as "is."   It's hard to say how often this happens, but my point and what people are not getting is that a PROPER diagnosis using best practices is usually correct and is for a real condition even for those called "high functioning."  Best practices means a neuropsych exam by a qualified expert, parent interview, medical history, ADOS, differential diagnosis for confounding factors and comorbidities, a detailed report explaining child's particular pattern of strengths.and weaknesses, and multidisciplinary team review.

People are confusing what a doctor checks on an insurance form and form vs. real diagnosis.  My psychiatrist only checks the ADHD box for my kid, does that mean he doesn't really have ASD too?

And if the states are only mandating coverage for ASD, maybe the law is the problem, not the diagnosis.[/quote]

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