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Kids With Special Needs and Disabilities
Reply to "18 y.o. DD's mysterious brain ailment, advice please "
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[quote=Anonymous]Sore knee is classic of late stage Lyme as is the brain fog. I do think you should further pursue this angle. See www.lymedisease.org for more information. Sometimes knee will swell, sometimes just pain for many. Lyme testing is less than 50% reliable so you can't really go by the blood test - it's reprehensible but the way it is. Clinical diagnosis by a LLMD is what you'd need but rule out everything else you can first. If you work with an LLMD you will know pretty quickly once on antibiotics if that's what you are dealing with. There are usually several infections involved by the time you get to late stage. Lyme past the first stage moves throughout the body and suppresses the immune system (like HIV), causes inflammation and exactly the symptoms your DD is describing. Many get a flu like illness in the weeks after bitten and no bullseye. Has she ever complained of a sudden stiff neck? That's another common symptom in kids as is headache(s).[/quote]
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