Reply to CNN report -- Autism: Could high U.S. rate be due to over-diagnosis?

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Reply to "CNN report -- Autism: Could high U.S. rate be due to over-diagnosis? "

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]My child was diagnosed with high functioning autism at 6. He has severe anxiety and behavioral problems with rigidity etc. He is in a special education school b/c he couldn't handle public school.

We have been to psychologists, play therapists, psychiatrists, neuropsychologists, social skills groups, and the ER. We tried two different special needs camps ($$$$) but he couldn't handle them. One of them was kind enough to refund half our fee back. A portion of the neuropsych and ER bill was paid for by insurance. Everything else has been completely 100% out of pocket cash.

What are these magical free services and therapies people are desperate for and why haven't we received any? [/quote]

Here are state by state rules on autism coverage. Not sure why your services aren't being covered. Why don't you arm yourself with knowledge and find out?

https://www.autismspeaks.org/advocacy/insurance/faqs-state-autism-insurance-reform-laws[/quote]

Do you have a special needs child? Insurance might technically cover a service for an "in network" provider, but there are no providers in your area who accept insurance. There are practically zero child psychiatrists in the entire DC metro area who are taking new patients who are "in network". Ditto for psychologists, neuropsych evals, social skills groups, etc. Maybe you should arm yourself with some more knowledge before you post. [/quote]

+1 And autism speaks is just a well paid advocacy group.  They do nothing to help families directly with all that fundraising - it does not go to pay for treatments, assistance or supports for families.  It just lines the pockets of the staff.  Just because it is mandated, does not mean insurance will pay or the providers are decent.  Our insurance only had three providers within 45 minute drive - one we were warned to stay away from, one never returned calls and the other was terrible - she did nothing, claimed she was a feeding specialist but no food in the office, and her perfume was killing me and my kid would not go near her.  She sang a few songs with a CD player and did one puzzle and called it speech therapy.  We private paid for over a year till we found a doc who could get it paid for.  We've gone out of state for evaluations as it was cheaper, etc.   Arm yourself with a website that is set up to fund raise and not actually help.  No thanks.[/quote]

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