Reply to The Kids Who Beat Autism: New York Times

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.[/quote]

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.[/quote]

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread. [/quote]

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.[/quote]

There are no answers.  Just interventions, wild educated guesses and pure luck.  She is sad, exhausted and really struggling.  Till you have been there, do not judge. [/quote]

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.[/quote]

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment.  I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle.  There is no cure - these kids can function better but they will still have their struggles.  Until they find out the individual causes for why, then can never truly cure it.  I believe in misdiagnosis as the reason not cure.  You cure cancer or another medical issue.  Autism is not something your cure.  [/quote]

How can you say a thing like that? If they don't even know what causes it -- and something obviously causes it -- then how can you be so determined that there is no cure? There is a cure. We need to find it. (they didn't used to cure cancer or other medical issues either -- but thanks to research, now we can cure some cancers and lots of other medical conditions.)[/quote]

This is not cancer or some illness.  This probably has multiple origins depending on the person.  We do not have the technology to identify it and while we can improve the quality of some lives, we can never cure it. [b] If it is "cured," then that person had something else entirely and never had autism.  [/b][b]Autism can never be cured[/b]... just the quality of life improved with early and continuing intervention (which our society often does not even want to pay for).  One day there may be a "cure" but as of today, we have a bunch of studies with educated guesses and wishful thinking and a group of us parents struggling to do the very best for our kids and hoping for the best possible outcome within this unknown.  This is NOT cancer.  This is not an allergy.  We don't know what it is and my guess is for many, it is something different.  It could be a birth defect, it could be a nutritional issue, it could be a birth injury, it could be a genetic issue or it could be none of the above.  We just do not know!  With some cancer's, they can pinpoint it and fix it.  Do not compare the two.  That is insulting.[/quote]

There are respected, mainstream medical professionals who do not agree with you.  There are kids who lose their DX and who improve enough that they are for all intents and purposes "cured."

We know so little about autism that to say that no one ever gets cured is ludicrous. People get better. Neuroplasticity is wonderful thing. Some people beat it.

[/quote]

Name those professionals who say Autism can be cured. Name them now. I will call them.[/quote]

James Copland 
http://www.drcoplan.com/

https://www.rethinkfirst.com/community/news/Story.aspx?ID=1008

[/quote]

Did you view the entire second link? Dr. Copland clearly states that just because many symptoms disappear does not mean the child is cured of ASD. In merely 15% of cases, symptoms do disappear but the child is not cured.[/quote]

Yes, I've read it. He has a full explanation here:

http://www.psychologytoday.com/blog/making-sense-autistic-spectrum-disorders/201008/017-losing-the-asd-diagnosis-does-not-equal-cur

Quit moving the goal line.  First you say that no kid with an autism spectrum disorder can lose their DX. According to you, if they do they were misdiagnosed.  Now you say "Well, if they lose their DX, they are still not cured because they have residual symptoms."

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