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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote]We only have OP’s description of providing substantial caregiving, which by her own account is not exactly what’s being provided. Caregiving typically refers to activities of daily living, which sounds more like what you were providing. Hiring movers, picking up milk at Target, talking to potential facilities’ staff, and helping a parent throw things away and prepare for moving are not the same.[/quote]

Until you have done this, as I have had to do for a parent with dementia, you dont really understand how much time it can take. I do not shower my mother (though I have and cleaned up sh&t) or do her laundry anymore, as she is now in memory care, but the organization of her finances and life, her many doctors' appointments (and because she has dementia, this is not something I could outsource as she could not fill out any paperwork); multiple hours long ER and urgent care visits; dealing with insurance, medicare, etc; and buying everything she needs, from clothing to diapers/wipes, to an eczema cream; and of course unwinding all the accounts and downsizing out of her home (the OP's description of trying to cancel an account is spot on).

I have pretty much stopped medical appointments at this point in dementia, but until this year, she would have them almost weekly. An appointment at 2 meant leaving work at noon. Getting to my mom's at 12:30. Even though I had spoken with her multiple times about being ready, still took her 30 minutes to get into the car. Get to the doctors at 1:30. She has limited mobility but I can't leave her in front of the building and park because last time I did that she wandered away. So I park and even the handicapped spots (I finally did get a pass to use with her) are, for her, a 10 min minimum walk to the doctors. We get there and they dont see us until 2:45. We are done by 3:15. Then it takes her 20 minutes to go to the bathroom. I get her back to her place at 4, and take her upstairs, get her settled in, then have to find the nursing office to make sure they have the new RX (and will have to follow up the next day), so I finally leave and at home at 5, just in time to drive my kids to after school activities.  It was exhausting, but also really impacted my work, and I would have to try to catch up nights/weekends as so much of what I do is deadline driven. so yeah, my job is "flexible" in terms of leaving or taking off hours, but not in terms of when I have to turn in deliverables. It also takes time away from my own kids, health, etc. Aside from "social" visits, I was spending an average of 10 hours a week on my mom's care, and that does not include the 3 weeks I took off (my full vacation for the year) to downsize her. ANd that was not "helping her thrown thigns away," she was completely incapable at that point of making decisions, and had been scammed of hundreds of thousands of dollars, while my sibling was supposedly overseeing her finances. That's when I stepped in.

The other thing that doesn't get mentioned here is how often women are the caretakers. When my mom first received the diagnosis of Alzheimers, she was so upset. And she said something in front of the doctor to me--"I hate how much of a burden this has been and will be on you." And the (male) doctor's response was "that's what daughters are for." I was SO PISSED. But of course, in my case, my brother hasn't lifted a finger. I had to move my mom across the country so that I could make sure she got the care she needed, while he does whatever he wants. [/quote]

Thus is OP. Thank you for writing this! Sorry you are going through the same thing.

This is a great explanation. People don’t understand a medical appointment takes hours! It’s not the actual appointment -that part is easy peasy. It’s getting the parent moving along. Often they haven’t showed or changed, it’s then getting them out the door (they can’t find keys to lock door, can’t find wallet, etc.) then and yes- the parking!

Lately I have been so stressed I have been taking one kid out of their last period early (luckily a really easy subject where they have an A+) because there is often no parking nearby even handicap parking. So I can leave my high schooler and my dad in front of building while I park far away.

Yup then all the added stuff. And you were spot on of course I’m the daughter.

As it is working full time with a husband and two high school kids, pets, no maid or gardener I can barely keep my life organized. I need ti declutter my house and organize but have didnt weeks and countless hours dealing up my dad’s house.

The stress is something no amount of money is worth. The overall toll this has taken on my health, my relationship with my spouse, the time away from my kids has been horrendous. [/quote]
There are services that will help with appointments and day-to-day living. You framed your post as an issue about personal remuneration due to the time and effort you’ve spent helping your parent. Why not start using your parent’s funds toward professional assistance? Are you concerned about them not having enough money for their care in the future?[/quote]
If finances ten concern OP isn’t helping because she’s charging an hourly rate 5x that of what home aids charge. 
[/quote]

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