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Reply to "More evidence for folate malabsorption in Neurodivergent bodies"
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[quote=Anonymous][quote=Anonymous]I stumbled upon this thread and am wondering if someone can point me in a direction. DS is 30 and was diagnosed as PANDAS at NIH at age 11 but didn't qualify for the study. He had his first of many episodes (strep induced) at age 6 and the last known strep caused outbreak was in his 20s. His debilitating OCD has made him unable to finish school or to work. He did exposure and response prevention therapy for a couple of years with prophylactic antibiotics, which carried him through high school, but in college he fell apart after a couple of strep episodes. He has refused further ERP treatment and any other therapy, which in any case has proven counterproductive as his (distorted) views of the psychologists just become part of his obsessive ruminations. The FRAT test looks well worth looking into and something he might agree to do. Where could I find a doctor who might agree to do this testing for adult? Honestly, we have just about given up. I have resigned myself to saving enough money to support him for life and my daughter has resigned herself to having responsibility for him once DH and I are gone. Thanks for any help.[/quote] Not the pp but can you give your doctor some evidence of why it is worth ordering the test. I found this: Could Folate Receptor Autoantibodies Be the Missing Link in PANS/PANDAS? | Philadelphia Integrative Psychiatry https://share.google/cOsCJXR1OUCsDSjOB [/quote]
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