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Kids With Special Needs and Disabilities
Reply to "Want a divorce but can’t handle DS alone"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Op here. We have a full time nanny but she only works 9-5:30, Monday-Friday while DH and I are working. We have respite care for 11 hours per week but they only show up about half of the time. I know it seems like it should be enough and we have more support than other people but I don’t know what to say. We just can’t handle him.[/quote] Why isn't he in school? That would cover a big chunk of the day during the school year and may help you stretch childcare hours later into the evening.[/quote] Op Here. He is in Kindergarten. It’s a long story but the short version is that the nanny goes to school with him as like a private aide. In a public school. It’s complex and for a whole other thread. But we don’t really get the benefit of school in the sense that even when he’s in school he still requires continuous support (either from us because the school calls us repeatedly or from the nanny). [/quote] OP, you and your DS may need to speak with a lawyer or advocate. A public school shouldn't have you provide your own one-on-one. Also, I am so sorry that you are going through this. As a SN mom, I can say that our family had a hard time navigating this age. I am sending you support![/quote] Just here to echo others - a school who is permitting an aide paid by you to one on one your child all day is by definition in violation of IDEA federal statute and denying you a Free and Appropriate Public Education (FAPE). An educational advocate can help you understand what other educational programs would be appropriate in or outside of the school district. You may need a lawyer to make a claim for failure to provide FAPE which would push your school to provide the one on one service themselves.[/quote]
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