Reply to SN parents, why don’t you disclose or share?

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Reply to "SN parents, why don’t you disclose or share? "

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]OP it sounds like your concern relates to one family so why are you making it about all SN families?[/quote]
While hers might sound like it, we know it's about many families. There are many more who ignore it all.
We had that happen in extended family. We knew a person over a decade and nobody says a word. [b]When life got hard, it got really hard for them, and nobody knew why. Too late now.[/b]
Don't want to know or want to hide, keep them safe. Others can't do it without some of that information.[/quote]

NP.  Knowing some letters would not have made anything easier except your curiosity.

For the OP, kids are different in different situations and environments.  It's quite possible that the family doesn't know what information you would have liked to have, either because it's not an issue at home or it's not an issue for them.  [/quote]

When soothing the kid, she said she only eats X. Ever. When I asked the parents, they did confirm but also said they didn’t know why she was being so picky. Of course she is more selective on comfort foods in a different environment. To me, this was such an easy solution.

This was the path of discovery for many things over the week. [b]I don’t care if it’s labeled a quirk or an SN, i just want kid to have a good time here if i am tasked with watching her as a favor. 12+ hours out of my week, and my child’s is a lot and we deserve the kindness of understanding. We can be empathetic but we could also be armed to help reduce the stressors that made everyone uncomfortable. [/b]

I guess what gets me is meeting this kid for a few minutes, you see that she is very particular. We adore her anyways and want her in our
Lives. I just wish the parents knew that we are actually here to help, but that help requires a meeting of truth. Finding out her “things” when they are stressors isn’t my job. [/quote]

You don't need a diagnosis for this. Next time just ask the parents, "is there anything I should know in advance? Are there specific foods Larla likes? Are there things she refuses to eat? Anything I should know that can help our time go smoothly?"

Then they can respond in a helpful way, and include the information they're comfortable sharing.[/quote]

But that doesn’t satisfy OP’ Main Character Syndrome (MCS). She needed the parents to have fully discussed their child’s diagnosis along with the exact steps OP could take to guarantee a playdate that both satisfied OP that she was such a good, inclusive person for hosting a poor disabled child; AND simultaneously ensuring that OP and her child would not have to witness any non-NT behavior. Because of course the parents have some sort of proprietary information that would have made the playdate go perfectly that they are inexplicably withholding from OP. [/quote]

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