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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]OP - thank you for sharing your own stories, it does help to know there are other people going through similar experiences.

In response to why this is happening to our daughter- we don’t know. I can say reflectively that she has always been disregulated, even as a newborn. Even as a toddler her tantrums were more extreme than a typical peer but easier to write off as normal development. Her doctors and treatment teams have not identified a reason but rather diagnosis.

I have thought about taking leave from my job and have had to take short term leave during both of her hospitalizations.  My job though is the only place I can feel somewhat normal and is something I really enjoy. It is an escape for me. I also realize that I may have no choice soon, especially now that my other child and husband need to be in a different location.

If anyone has experience with a residential treatment or therapeutic boarding school please share them.  This is something we are exploring but it is a very scary thought. I don’t want her to go somewhere that causes more trauma.

Weekends are hard and this thread really helped me get through yesterday. Thank you! [/quote]

Hi OP, counterstrain booster here. I can say that counterstrain can work on birth injuries, not just new ones. My sweet dc toe walked for years. We took him to a counterstrain pt. The part of the brain they treated was exactly where the cord was wrapped around his neck during birth.

I would strongly, strongly suggest that you call Brian Tuckey’s clinic and ask to see Brian. Your DC’s symptoms correspond with his current research. He will NOT string you asking for extra appointments unless he can help. Many people call and simply can’t get an appointment, because the clinic is so busy.

They assess what’s going on inside the head by lightly pressing on the outside. He let me feel my dc’s head after the drained the swelling first side, but before he drained the swelling on the other. There was a distinct difference. He’s also treated my kid for lack of blood flow and tension on the nerves.

Obviously, if your dc has a tumor, PT is not going to cut it. But it’s a noninvasive way to get information about what’s going on inside.  Of course, I’d recommend a scan of some type as well.  If your DC has brain surgery, having a PT appointment before the surgery is helpful. Once the surgeon cuts, that part can’t really be treated as successfully with counterstrain.

Even if you choose not to go this route, you have my support and my admiration. I couldn’t send my sweet DC away husband. He’s what got me through the hard times. [/quote]

I would love to hear more about counterstrain. Do you know if it helps mood disorders?
[/quote]

It can help mood disorders IF there is swelling, reduced blood flow, or nerve tension in the wrong area. Counterstrain does NOT rewire the brain, so anything that runs in the family is probably not treatable. Just like a cast can help ankle pain due to a broken bone, but not ankle pain due to cancer. It’s a tool that fits a specific type of problem.

You won’t know whether counterstrain can help until you go to the first appointment. Brian Tuckey’s clinic is very busy, so don’t expect to get Brian unless your life is being ruined. (OP’s child clearly falls in that category.) Tell the receptionist the specific symptoms. Sometimes she’ll consult the clinicians and call you back. They don’t know as much about the brain as other areas, so a lot of symptoms aren’t treatable yet.[/quote]

I should clarify, to my knowledge, parts of the brain are currently being researched. That’s Brian Tuckey. You can’t go to any random counterstrain pt and get this type of help. Call the clinic and describe the symptoms. If they can pass you off to someone, they will, especially if you live far away.[/quote]

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