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[quote=Anonymous][quote=Anonymous][quote=Anonymous]My father, a lifelong alcoholic, was diagnosed with primary progressive aphasia (AKA “what Bruce Willis has”) at age 75. He died an agonizingly slow death culminating in being “locked in” - he was completely unable to communicate verbally (could not utter one sound) yet was fully conscious and immobile.

He lived/survived for nearly four years in a nursing home. My mother insisted that he be fully resuscitated and so one year in, he “coded” and was “brought back” to an even more diminished state. He continued to receive BP meds and I think a diuretic (he had high BP for decades).

So he lingered on a in a progressively more vegetative state; it wasn’t until he began refusing food that I got my mother to bring in hospice. Hospice advised a DNR needs to be in place and began palliative care in lieu of BP meds. My dad died 6 months later, in his sleep. [/quote]

I am dealing with a parent with PPA now - although we are having trouble getting a definite diagnosis.  Where did you go for the diagnosis?[/quote]

Not the PP but my mom has a PPA diagnosis- her neurologist diagnosed her and she had that before the dementia.  Or at least manifested.  Now she’s got both.[/quote]

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