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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Yes! I posted twice recently about gestalt language and finding a therapist. Instead, I got pages of nasty replies saying it wasn't a thing, I was jumping on the trend, arguing about if it's a thing, etc. Take the arguments off this board - I am going by what our current, professional therapists are calling it and asking for help finding someone local. In the past, people were so kind even if they didn't have suggestions. Now I'm scared to post.[/quote]

Not to prove you point (lol - arguing that what you say is true isn’t true)…. But I remember back in 2014-2015 when I had a 3 year old and was finding myself on this forum more and more, one thing this forum liked to shit all over was PANDAS. Not relevant to me, but I just remember reading threads about aggressive kids (I was reading because ds was an incredibly handsy hyper toddler - and quickly got a adhd asd diagnosis). Whenever someone posted about “what do you think is going on with my aggressive kid” there were twenty posts about  “probably adhd” and one short post “I would look into pandas”. And then several people would shit on them “made up” “doesn’t exist”. I didn’t even know what pandas was but figured it was made up.

Fast forward to 2018 and my kid got pandas. It took two months and withdrawing from school to figure out what was going on. I spent those two months doing hours and hours of internet research, academic paper research etc - looking for anything that would explain it. I vaguely remember landing in threads and webpages about pandas. I paid no attention because I didn’t know what pandas was but I knew from here that it wasn’t real. Ultimately a reputable psych tested for pandas and others based on how we’d described his overnight change, and he was immediately diagnosed.  So point is that eight years ago, this forum had jerks telling ppl them were kooks.

Also, back then, there was a LOT  of the typical feedback of “lady get a grip, SPD isn’t real and eventually you’ll have a adhd diagnosis porbably with asd.” People were pretty cruel on those threads with regularity. Or maybe it just sucks to hear the truth when you’re hoping it’s something less. But I thought ppl on this forum were “mean but helpful”. Even back then.

So just adding some perspective to the folks who think it was all sunshine and lollipops back in the day. [/quote]

+1 I agree with this and I still think all those "mean" posts are helpful. It's good to know pandas exists. Also good to know the attitude towards the condition so I'd be prepared for skepticism with providers and others. It's the same situation with SPD and never getting an ASD or ADHD diagnosis. I appreciate the debate.[/quote]

I disagree with this. While I absolutely think we should be kind to each other, one of the benefits of DCUM’s demographic is that we are highly educated and evidence based. There are a LOT of snakeoil salesmen in the SN world as well as trendy narratives that are amplified by social media instead of evidence. PANDAS is a great example of that. It’s absolutely true that there are sudden neurological conditions that can cause severe behavioral changes, including infections. But there have been practitioners willing to take advantage of parents to diagnose everything as PANDAS and prescribe risky & expensive treatments. I 100% want DCUM to continue to be a place where this is called out. [/quote]

Sure. But it wasn't a dialogue about the authenticity of PANDAS.  It was 15 people saying "sounds like your kid has ADHD" and one person saying "you might want to look into pandas" and then without fail one or two people would respond to that and tersely respond "not real" or something else snide.  Again, this was years before my kid had pandas, and I was just generally reading threads (not even posting) about kids with sensory/adhd/asd preschool behaviors.  But the super snarky responses on PANDAS were frequent and standout, that it left an impression with me for years, such that my brain didn't go there even when my kid's symptoms were all pointing to it.  In any event, I'm not here to debate PANDAS. I'm just pointing out that my experience is that this forum has always been well-populated by jerks and it's not a new thing. Anti-pandas, and anti-spd are just the two examples that really stand out from my own experience almost ten years ago. [/quote]

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