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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous[/quote] So you never had an amnio that would make an actual diagnosis of Trisomy 18 and were counseled to terminate based on 2 screening tests? If that's the case, you had very poor doctors who didn't follow the standard of care.[/quote]

I wondered about this too.  Did the PP have an actual diagnostic test like CVS or amnio?  It was 18 years ago so I don't know whether these tests were available at that time.  I can't imagine any doctor recommending that a patient consider termination without an actual diagnostic test result.[/quote]

This is 14:24.  My mom had an amnio while pregnant with my sister 31 years ago.  I'm not sure when CVS became available, but amnio was definitely an option 18 years ago.  [/quote]

Honestly, I don't remember.  I know that amnio was available back then.  I don't remember it even being discussed.  I didn't have to wait until she was born to learn that she was healthy.  A later ultrasound revealed the cause:  My dates were way off.   From what I remember, cysts on the brain can be indicators of Trisomy 18.  However, these cysts are normal up to a certain point. My daughter's ultrasound was completely normal for a baby of her gestational age.  Unfortunately, the initial dating was incorrect.  The blood tests were completely incorrect.

It's really important to remember that a lot of the routine tests that are offered now, were not offered when my older kids were born.  Our oldest is almost 24.  Our youngest is 9.  I never had an ultrasound with my oldest.  My daughter's ultrasound was only done when one of the blood tests showed abnormalities.  When we found out I was pregnant with our youngest (Surprise!), it seems like I had an ultrasound at almost every appointment.

None of that changes the fact that I was counseled to consider terminating a perfectly healthy baby.  No test is 100% reliable.  And two screening tests showed problems that didn't exist.  I know that most stories don't end like mine did.  And I am so thankful that I had a healthy baby.  I'm certainly not trying to make those who chose differently feel bad.  I said earlier that on a different day, I might have made a different decision.  I simply shared that I wish that the option to terminate had never been offered to me.

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