Reply to Reminder about the purpose of the Kids with Special Needs Forum

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=jsteele][quote=Anonymous][quote=jsteele][quote=Anonymous][quote=jsteele][quote=Anonymous]If somebody is shopping around for a formal diagnosis that does not exist in the DSM-V, why is it offensive and inappropriate to point that?
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You are making assumptions that I am not sure you are in a position to make. In any case, such posts have disrupted many threads without yielding any observable benefit. Please refrain from posting them.
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Whether or not something exists (or does not exist) as a diagnosis in the DSM-5 is not an assumption.  It’s a fact.

I’m a long-time consumer of this board as a source of information.  If you censor factual information I’m not sure that does a great service.

But it’s your board and you set the rules.[/quote]
 
Whether someone is "shopping around for a diagnosis" could only be an assumption unless the poster specifically told you that's what they are doing. I think parents deserve the benefit of the doubt that they are trying to do the best for their children. Similarly, forum moderators who have long track records of maintaining popular forums should not cavalierly be accused of censorship. You may want to give a bit more thought to your language choices.
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Case in point.  Somebody recently began a thread titled “auditory processing disorder,” and in the very first line of her thread she said she was seeking somebody who could test/diagnose auditory processing disorder.

Fact one: That person was seeking somebody who could test for/diagnose auditory processing disorder.  She said so explicitly in the beginning of the post.

Fact two: Auditory Processing Disorder is NOT a diagnosis in the DSM-V.

Fact three: You removed my posting that noted APD is not a diagnosis.

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Yep, and I hope that you have learned from the experience or you will find a lot more of your posts getting deleted.

In response to the OP you could recommend someone to do the evaluation or you could shut the hell up. Starting an off-topic hijack was not among the appropriate responses. It was exactly that thread that triggered this post. [/quote]

As someone with a child diagnosed with apd and language based LDs, the thread got hijacked by an undisclosed merld mom.  Apd is only diagnosed by audiologists.  It’s not in the dsm.  It’s used as a descriptor by kids on the spectrum and with kids with learning based LDs.

Then you get a poster claiming not sticking to topic by bringing up either LDs or ASD or adhd, but that is reality.  These are linked to apd symptoms.
https://www.nidcd.nih.gov/health/auditory-processing-disorder
https://www.ncbi.nlm.nih.gov/pubmed/1866407e1
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6158468/

Jeff, you don’t understand merld or special needs.  You don’t know how to be objective.  I will happily provide you with the mountains of testing my kid has gone through, plugs medical, plus academic.

If someone insists their kid isn’t on the spectrum, doesn’t have language based LDs or adhd, but they have ‘“language issues” they belong on the merld Facebook group and not here, because we in the dissent respect the science and evidence based interventions.  We also vaccinate and understand that the brain and it’s lovely neural networks are complicated and related and there’s no shame in autism.

Language based LDs and autism and adhd have more similarities than differences.  Some of us are trying to breakthrough the bs that some people try to pull on here.[/quote]
Oh brother, give it up.  Jeff was right to do what he did.  If you disagree with someone, just present the facts.  Don't assume the other person is a "MERLD Mom," or whatever.  I personally have been accused of avoiding an autism diagnosis even though my kid does have autism.  It's clear that such accusations are used as a substitute for substantive discussion of interest to OPs.

If you want to have a general discussion about APD, start a separate thread for it.[/quote]

DP. I don't think I'd make half as many "have you assessed for autism" comments if I didn't IRL know someone actively avoiding the autism diagnosis for their (clearly autistic) child. It's hard to see.  [/quote]

So inappropriate. It is exhausting and heart-wrenching to suss out the right diagnosis and then fight for appropriate services. Peds screen for Asd more than anything else; it’s impossible to avoid. Everything else takes the equivalent of a part-time job to work through.[/quote]

I'm not sure what you're getting at. In the DC region, there's absolutely no reason not to have your child assessed for autism at an expert center (Childrens, KKI, Inova) if you have developmental concerns. [/quote]

There’s no need for to say anything because there isn’t a parent in America who hasn’t been told by their pediatrician that there might be concerns if warranted. Your crusade isn’t going to change that. [/quote]

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